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Old 01-01-2007, 03:14 PM
DystoniaGal DystoniaGal is offline
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Default CoolAngel/Kristin--migraines.

Kristin

I go through this every 3 months. As the botox wears off, the headaches come back. This time nothing worked so we had to use the heavy drugs. I am counting down the days to the 4th when I get my round of Botox.

I should also add that my shunt is wide open. We did Topamax for about a year then started on Elavil and slowly weaned te dopamax.

Suzie
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DYT1 positive dytonia . Dx 1989.
Deep Brain Stimuation at Shands at UF in 2003.
Hydrocephalus dx in 1/2004 due to an infection and resolved as of 4/4/08. Hydrocephalus returned and shunted 7/9/09 with OSV II,revised 8/5/09. So many CT scans I should
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Old 01-01-2007, 05:05 PM
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CoolAngel28 CoolAngel28 is offline
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Lightbulb

Thanks for the reply..I don't do this migraine bit very often,but...even though it's mild..it's a little annoying.
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