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#1
12-27-2006, 01:13 PM
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I am New to this Forum
Hello Everyone,
I just found this forum and am excited to talk with others who are in the world of neurology. Let me intoduce myself, I have a son who is 6 who has had febrile seizures when he was a toddler, then developed generalized epilepsy, and now Lennox Gastaut syndrome. They tell me he has a moderate to severe case of it. Wondering if anyone knows how this syndrome progresses, and what happens to kids that have this. He has tonic, tonic-clonic, atonic, atypical absence seizures. (Not all at once, though!  Anyway, any information is appreciated. alepatmat 
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#2
12-27-2006, 09:47 PM
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Hi, I am sorry to hear that your son has epilepsy. There is a space for a Lennox Gastaut forum here on BT but sadly, no one has been there. There is an active epilepsy forum. http://brain.hastypastry.net/forums/...play.php?f=144
Dietary intervention should not be overlooked in the treatment of epilepsy. Hopkins developed the ketogenic diet http://www.epilepsyfoundation.org/an...reatment/diet/ and has used it for years. There have been some people who have reported improvement on a gluten free diet. Here is some information on diet and seizures. http://jccglutenfree.googlepages.com/seizuresepilepsy. There is a gluten sensitivity/celiac disease forum here on BT. I hope you can find help for your child. Anne
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#3
12-29-2006, 03:45 PM
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Hi Alepatmat,
I'm sorry your son has epilepsy. I hope you can find the help you are looking for here. Either way, I know you will get the support from all of us. Good luck to you and your son. Take care, Linda
__________________
7 herniated discs~no surgeries, Heart Disease, Heart Attack~one stent, Congestive Heart Failure, Glaucoma, Severe DDD, Osteoporosis, Osteoarthritis, Rheumatiod Arthritis, Peripheral Neuropathy, COPD, Short Term Memory Loss, Fighting Severe Depression, On Oxygen
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#5
01-01-2007, 12:48 AM
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Welcome!
 I am so sorry about your little guy's LGS.  My best friend's little boy, six months old, was dx'ed with Infantile Spasms about a month ago and is now on ACTH with good control. LGS is a great fear for his future, so I understand your worries. (((((((HUGS))))))).Please come to the Child Neurology forum here: http://brain.hastypastry.net/forums/...play.php?f=115 There are many warm, friendly, knowledgeable folks who can help. God bless, LIZARD
__________________
LIZ in Li'l Rhody; hydrocephalus dx'ed at 3 weeks old. No shunt surgery in 29 years! Epilepsy well-controlled and autoimmune issues being worked on. Mom to Caren, 18 (  ), successful ablation 4/18/07 for WPW; and Drewy, 15 (autism dx'ed at 2 1/2, 13 mm ACM dx'ed at 5 1/2, no surgery, doing awesome!!) Wife of 19 years to Don...and friend to Gina. RIP. 9/5/66-10/22/07 http://s2.excoboard.com/exco/index.php?boardid=14130 http://health.groups.yahoo.com/group/autism-chiari/
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