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#1
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I've finally been able to sign up and make posts. It was a little hairy there for a couple of days as for some reason or another, I was not receiving my confirmation/registration emails at the email address I gave. Strange as it was, I finally figured out another way
Now to the reason I'm here. My youngest daughter (24) is in the process of being dx'd with a brain cyst. Naturally, this is very unnerving, especially since I lost my mom 25 years ago to brain cancer. I know that the 2 are different entities, but it's unnerving just the same. I'm reading a lot here and learning a lot. I want to thank all of you for posting so that myself and others can learn and grow from your experiences. I hope that I can make a difference here too. I'm a very supportive personality and who doesn't need support now and again in their lives eh? I look forward to meeting and chatting with everyone. I wish all of you well on your journeys to better health! ![]()
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khamcam |
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#2
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((((((((((HUGS)))))))))))). How scary for you and your daughter.
![]() There are forums for a few different types of cysts here, so as soon as you find out what type it is, you can find hands-on support here re specifics you need to know. I'm sure you know, too, that technology for treating cysts and tumors has changed tremendously since your mom was sick, so there is a great deal of help and hope for your daughter. You have every reason to believe she can live a good life in spite of it. Make sure to get a neurosurgeon you trust, and never be afraid to ask anything.Good luck, and please let me know what you find out. ![]() LIZARD ![]()
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LIZ in Li'l Rhody; hydrocephalus dx'ed at 3 weeks old. No shunt surgery in 29 years! Epilepsy well-controlled and autoimmune issues being worked on. Mom to Caren, 18 ( ), successful ablation 4/18/07 for WPW; and Drewy, 15 (autism dx'ed at 2 1/2, 13 mm ACM dx'ed at 5 1/2, no surgery, doing awesome!!) Wife of 19 years to Don...and friend to Gina. RIP. 9/5/66-10/22/07 ![]() http://s2.excoboard.com/exco/index.php?boardid=14130 http://health.groups.yahoo.com/group/autism-chiari/ |
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#3
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Hi Lizard!
Thanks for responding to my post. I surely do realize things are way different than they were 25 years ago...thank goodnes I'm very anxious to find out the results and get moving on getting her better. She goes for another MRI on Thursday, so hopefully we'll get results next week. I have noticed that there is not a whole lot of information regarding brain cysts on the net. There is some, and of course a lot of it is medical lingo so I'm not really understanding much of it. I do look things up when I have a chance and try to learn. Here at the forums, I've been reading a lot and learning a lot...so that's all good ![]() Take care, and again thanks!
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khamcam |
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#4
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When you have some specific info, I'll help you sort it out. Good luck Thursday. I'll be thinking of you both.
![]() (((((((((((((HUGS)))))))))))))))), LIZARD ![]()
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LIZ in Li'l Rhody; hydrocephalus dx'ed at 3 weeks old. No shunt surgery in 29 years! Epilepsy well-controlled and autoimmune issues being worked on. Mom to Caren, 18 ( ), successful ablation 4/18/07 for WPW; and Drewy, 15 (autism dx'ed at 2 1/2, 13 mm ACM dx'ed at 5 1/2, no surgery, doing awesome!!) Wife of 19 years to Don...and friend to Gina. RIP. 9/5/66-10/22/07 ![]() http://s2.excoboard.com/exco/index.php?boardid=14130 http://health.groups.yahoo.com/group/autism-chiari/ |
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#5
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LIZARD>>>>>>>
Do people ever thank you for all the things you do to help us?? You are really positive and so willing to help. I wanted to say thanks! |
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#6
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Hi KhamCam,
First, I would like to Welcome you to the forum. Second, I am so sorry your daughter is going through this. It must be so scary for all of you. I am wishing her and you the very best. I hope everything turns out good for her. Let us know anytime we can help you. I'm sure someone can come up with something that will help, even if it's just to support you. Again, Good Luck, Linda
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7 herniated discs~no surgeries, Heart Disease, Heart Attack~one stent, Congestive Heart Failure, Glaucoma, Severe DDD, Osteoporosis, Osteoarthritis, Rheumatiod Arthritis, Peripheral Neuropathy, COPD, Short Term Memory Loss, Fighting Severe Depression, On Oxygen |
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#7
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I do so appreciate your offer of help Lizard. I'll keep you posted
Hugssssssss Jean
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khamcam |
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#8
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Hi! Sorry to hear the news about your daughter. It must be scary after losing your mom to brain cancer. My daughter is a brain tumor survivor - seven years out from chemo!
I just wanted to tell you that I understand that the American Brain Tumor Association has a new BT primer that includes some very good information on cysts in addition to tumors, so you might want to check that out. http://hope.abta.org/site/PageServer keep us posted on how she is doing (and how you are doing, too!) |
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#9
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{{{{Boopers}}}} Thank you so much for the welcome and for your support. I truly appreciate it
Take good care of yourself!Hugssssss
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khamcam |
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#10
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{{{{Beth & daughter}}}}
I'm so happy to hear that your daughter is doing so well! That is truly awesome! Thanks very much for the info on ABTI. As soon as I get home from work later, I will check it out! Take good care and I'll definitely keep posting ![]() Hugssssssssss
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khamcam |
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