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| Chronic Pain Whatever the cause, support for managing long term or intractable pain. |
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#1
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I have read where some of you have spine problems that causes their chronic pain and I have seen where some people have other problems. I am one that has spine problems but I wondered what others are getting medication for.
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#2
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I have a wide variety if problems. I have a bladder disorder called interstitial cystitis, Mellody Sponge Kidney Disease, Pelvic Floor Dysfucntion, IBS, FMS, hypermobile joint syndrome, and I know I forgot a few. I hope this helps you some.
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Lisa ![]() DX's: Interstitial Cystitis, Fibromyalgia, Pelvic Floor Dysfunction, Mellody Sponge Kidney Disease, Hyper Joint Syndrome, IBS, migraines, and anxiety. |
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#3
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C4-5-6 fusion with hardware. Possible failed fusion at 5-6,herniated disc at6-7.
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#4
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inoperable brain aneurysm, LMCA ( Left Middle Cerebral Artery ) Fusiform shape or the whole artery is affected..It's 1 centimeter by 6.7 mm. It's been pulsating on the trigemenal nerve for the past 6 years..Did I mention how awful bad that hurts..And at times I can't think cause the pain is so intense..My pain was down once to a 2 in the last 6 years..the rest of the time it is over 5..But I'm not complaining..I have a great pain Doc..And if it gets me down, I'm only a shot away..Alls I have to do is asked..I just got my disability,,that I had to fight for over 5 years for...cause #1, to young And #2, I have a education and have supervisor skills....( was a charge nurse ) for many years..I finnally won my battle in the federal courts..Which they stated, the ALJ, was very wrong in his decision, And made me fully fav. back to the day I Got my first thunderbolt headheadache.Jan. 3 2001 and which I was hospitalized..in 3 different hospitals...I don't know if anyone will ever come up with a safe surgery for me,,But I am hoping.....The last surgery allmost killed me and I still got this monster...Hugs, Cindy
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Severe horrible headpain for over 8 years..Related to a inoperable brain aneurysm.. Meds, methadone, ativan, topamax, accupril, asprin, miralax, phenergan. Got SSDI for disabling pain..I know pain...And I know how to live everyday as it may be my last....Hugs, Cindy |
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#5
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PN, muscle spasms.
Have some neuro symptoms also. |
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#6
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Well, let me see, I have arachnoiditis, cauda equina syndrome, disc herniations at T10-11, T11-12 and L2-3, neuropathy of legs, left hand/arm, and some paralysis of bladder/bowel. My pain stays at 6-9 24/7 and I take kadian and percocet/Lyrica and valium for the constant muscle spasms.
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MVA 1999, DDD,Pn, Osteo arthritis throughout spine, knees, 2 level fusion 6-15-06 which resulted in Arachnoiditis from a nicked dura with bleeding in Csf chronic pain, 24\7. Diabetic controlled by low carb, lost 105 lbs so far. |
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#7
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Mitochondrial disorder. I have a myopathy that causes a lot of pain.
Mito is a problem with how your cells turn fuel (food) into energy. When your cells aren't getting enough energy, they begin to function abnormally and die. My muscle tissue (as well as CNS, kidneys, heart) is pretty much always starving for energy. Dead muscle tissue swells up, gets inflamed (body trying to get rid of it), etc. Also get crampy, spasmy pain (like a Charley Horse that won't let go for days). I have some neuro stuff that I think contributes to my spasticity, too. People hear "muscle pain" and think of the pain you get when you overdo it, or when you sprain something, or whatever. But this is a very different kind of pain. This is "dead tissue" pain. A sprain would be about a 2 on my pain scale. Post-op shoulder surgery pain is about a 5. I have been living at a 7 or 8 most of the time (until recently, when I went to the pain clinic... now more of a 5 or 6). My worst attack of rhabdomyolysis (muscle tissue dies on a large scale, releases a bunch of stuff that is toxic to the kidneys, etc) was a 10. My usual attacks of rhabdomyolysis are about a 9.
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Mitochondrial Disease (Complex I Deficiency)--I have complicated medical issues affecting multiple organ systems. See http://www.umdf.org and http://www.mitoaction.org for more info on mitochondrial diseases. |
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#8
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I have Fibromyalgia, Myofaical Pain, SI joint problems, Bulging disc's in neck and lumbar area. Currently I'm going through testing for Lupus like symptoms.
That is all but, for me it's more than enough! Aggie |
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#9
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2 blown discs L4 L5 and L5s1.
that lead to a variety of other fun things like myofacial pain syndrome, and pelvic weakness/unstable and hip pain as well. After my 2 level fusion I am doing better though but the back/spine is the cause of all the trouble. |
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#10
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C5-6 fusion w/ hardware and hip bone graft , from a ruptured disc thanx to a drunk driver. Also complimented with DDD and bulges at the C4 and 7 discs..bone spurs and nerve /muscle pain as well.
Interesting to read someone else had the C5-6 levels done and it didnt work either. I never dreamed Id actually be taking 180mg morphine and 30 mg hydrocodone 3 x a day each , nearly 4 years after the surgery. Mines just getting worse and the weather changing right now hasnt been helping to terribly much ! |
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