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#1
11-15-2006, 05:57 AM
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I'm a newbie, looking for peripheral neuropathy site
Hello. I have been diagnosed with a virus which led to erythromalalgia(rare disease) and then also with a peripheral neuropathy in hands, feet, lips and tongue. I am seeing alot of doctors and I've ended up seeing dr alan pestronk about every 4 months. he says erythromalalgia, peripheral neuropathy and a vasculopathy(????). I also have both hands and feet with muscle atrophy. I have been trying to find a cure (ha, ha) or that magic pill everyone is looking for. I am receiving one gram of solumedral (steriods) infusion every two weeks for the last six months. It has significantly decreased the break thru pain I have had and moving through transitions. I am just looking for some support, advice, new tx's, and I want my life back. I'm just sad.karen nichole
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#2
11-15-2006, 06:58 AM
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Hi, Karen and welcome to BrainTalk!
 You can find the PN forum here:http://brain.hastypastry.net/forums/...play.php?f=219 Nice to meet you!
__________________
Gina ************************************* Hydrocephalus, Porencephalic Cyst, Epilepsy, Vision Problems, Slit Ventricle Syndrome, Spinal Stenosis My website: http://s2.excoboard.com/exco/index.php?boardid=14130 Support for people who have hydrocephalus and associated conditions-and their families and friends.
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#3
11-16-2006, 06:39 PM
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Gina,
Thanks for the info...will go there now. karen nichole
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