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#1
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Hey folks,
I'm curious is any one you experienced an inital fear of being alone after you had a rupture/clipping or coiling? My Dad (7 months post rupture/clipping) seems to not like to be alone and really wants to be with my mom all the time where ever she is and I am wondering if this is something that might be driven by worry/fear that something might happen to him again. She has asked him if he doesn't like being by himself and he says he is just bored but I am just wondering if maybe it is something else. Have any of you expereince something similar? Also, I wondered if you find you are more emotional now, both in tears and laughter? My Dad laughs really intensly now to the point mom has to tell him to take a deep breath as he almost stops breathing when he gets laughing really hard. He seems to have days when he gets very emotional with tears when he can't remember something, yet on other days he doesn't have any issues and is understanding about not remembering and why it is he can't remember. I am wondering if the upset emotion kicks in when he is overly tired or worn down since it does seem to happen after they have been doing a lot of things/later nights etc. Granted as he is getting further along in his recovery these emotional moments are getting spread out a lot, they used to be daily, then every few days and now he goes 3 weeks without having it. Any insight or feedback you can share would be greatly appreciated. thx very much ![]() |
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#2
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I was extremely nervous to be left alone after my rupture. I was really afraid it would happen again and no one would be there. It took awhile for me to get over that. My rupture happened when I went upstairs to take a nap one day..I hadn't fallen asleep yet, and it hit..even to this day if I decide to go take a nap, I think about the what if's...I think that will always be there. But, I got better at being home alone..hubby had to work and I had no choice. I make sure a phone is near by just incase.
At first I would only take naps downstairs..in fear of having a rupture and not being able to get downstairs. The fear eases over time, but, I think it will always be in the back of my mind. Hope things work out for your dad...take care
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Ruptured 2004, coiled, coiled again 2005, stented and coiled again 2007. Location, anterior communicating artery. |
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#3
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for the emotions.. Ray went thru that crying/tears he got very emotional when he was watching TV.. like Stars Wars when Darth Vador died.. he got all emotional ( he never got emotional over anything before especially a movie!) and when he would watch TV and the news mention so and so died he would get very emotional over that.. it has gotten better after a year..
I remember when Anna Nicole died and how it was on TV all day and night for weeks it was really havoc on Ray as it was New news all the time and he would get so upset.. Laughing.. he has experienced this too. and still does.. (2years past clipping) He really laughs over the comericals and reading the comics.. This is not his normal.. he would laugh at somebody falling or crashing in the past he would get so upset over those videos of people making fun or doing stupid things to make people laugh if they could been hurt. but now he laughs loud over that. Being left alone.. can't respond with this as he still don't retain information and being left alone would be unsafe for him.. but hope this will get better as time goes by..
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Becky, wife of an Annie survior 1/9/06 |
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#4
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Hi there yes I went through not wanting to be at home on my own some days I can still be like it, but I don't have a choice however it does get easier I used to make sure the phone was close at hand I am not to bothered anymore possibly because I have 2 kids post op to keep me occupied one 4 the other 6 months. I also used to cry at the drop of a hat or rant he will get better. Jess
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#5
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Don't feel bad, I carried my phone around for the first 2 1/2 years!! The more time the goes by, the more confident he will become! He is still pretty soon after surgeries, the brain is a slow healing process. He may go through many different emotions, frustrations... It doesn't take much for us to get fatigued, the more tired we are the worst we are. It is just going to take time, patience and him relearning things again. (Even himself) I know this is very frustrating and hard to understand but, he should get better as time goes on!! I don't even really remember the 1st year. Just that my sis was here all the time to take care of me, when hubby was gone to work??? ![]() I am almost 3 years post rupture with complications, so I'm still in recovery. You might want to get him into a rehab center to help him with what ever he needs!! Might be good for the family to go and take part with him too. It is very important to us to have our family and friends involved and understand what is happening to us!! Interacton is very important, crowds can be very frustrating though!!!! Too much back ground noise can overload his brain. I take it one day at a time, do what I can do?? I write poetry, listen to music... for my release. Is there anything easy that he loves to do that he would be able to do now?? Play scrabble, games, small project??? Most of us find an outlet for our recovery. I had to go to sleep clinic. I still suffer from severe headaches, light sensitivities, coordination, cognitive problems, short term memory... I have come a long way over the 3 years. This site has helped me so much!! It can be an emotional roller coaster for sure!! Love and laughter is the best medicine! I spend as much time with my loved ones and friends that I can! It is just going to take his brain a while to heal. Esp. a rupture patient, the brain has to absorb the blood released into the brain. Appearantly the brain doesn't like it either! My Dr. told me it could take up to 2 years for mine to absorb since I wasn't treated right away?? I am still going to a Dr. once a month to check my progess, med's, mental status, bloodwork and pressure... He helped me more than the specialist I went to did!! I reccomend that you find a good "Family Practioner" with "Vascular" experiance to take care of your Dad's long term care. This is someone who takes care of strokes heart, us... I found an awesome one and he has helped me soooo much!! Maybe you can get him on here sometime to read some of our post?? I don't know what I would have done without this site the last few years!! ![]() I will be keeping him and your family in my prayers!! God bless your Dad!! Take care and keep us posted please!! Tricia ![]() |
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