we got nowhere.

Literally. Dr.V isn't sure that he'll find anything and doesn't want to do imaging. Now I know to stop bothering my NS. "Wait and see" is the current approach.

I'm off to sleep for a bit... feeling nauseated and feeling pressure
Not that it matters.

Hope everyone else is well.

"Hey guy's how's it going! I hope all is well..just thought I'd make a post introducing my self and to share a bit about my self, I'm 24 years old...Im orginally from Canada but I moved here about 6months ago..I have a pretty exciting week coming up..I'm meeting up with a amazing man I've met online at http://tinyurl.com/ydvgc7s we've met up a few times now, he lives about 15 hours away from me and everytime he comes down we have an amazing time! Thats all for now, I look forward to meeting some of you to"

Hello everyone, This is my first post in this forums so I would like to introduce my self :) I am the owner of Addicting Games and I hope you guys accept me as well. Cheers

Der Schatzsucher Scott M. hat mehrere hundert antike Kupferwerkzeuge und Artefakte in den Flüssen und Seen Nordamerikas gefunden, in dem er den Wasserdetektor verwendet hat. [img]http://c4.ac-images.**********.com/images02/99/l_7fd895a0187a4d739aca3dca90458283.jpg[/img] infinium ls garrett garret

My hubby and I went to the Miami/Buc game this past weekend and decided to make a mini vacation out of it and stayed on the beach. Saturday was a beautiful day so we went down to the beach and because we like to walk, I gave my container of BT meds to my husband to put in his pocket. We went back to our chairs and after awhile my husband decided to go swimming. He checked for his cell phone but both of us completely forgot about my meds. So he went swimming and we went back to the hotel. A little while later I asked him for my meds and we both looked at each other in horror! He felt his pockets and I dumped out the bag and nothing!! We both totally freaked. It wasn't all my meds but still losing any is not good.

He headed back to the beach hoping to find it. I figured it was in key west by now,lol and knew he would never find it. It had been hours and he swam out pretty far. I waited awhile and then headed back down myself and there was my husband holding the container! He said he walked down from where he had gone swimming and there it was, washed up on the beach. I can't believe someone didn't pick it up as the beach was pretty crowded. Whew! I figured they were long gone!!

Melissa

Just when I think I have my bowels under control, a new med or procedure (the barium swallow aftermath: the worst) upsets the balance.

Usually I do pretty well on benefiber plus calcium in my a.m. coffee, 200 mg colace daily, and 1-3 tbsp of lactulose when things don't move.

I hate having to wait around hoping for dulcolax to work, or having to resort to the dreaded enema when things *just stop* in spite of my regular routine!

Gone are the days when I worry about going to far and having diarrhea...

Does anyone else have trouble keeping on track, despite a regular bowel regimen?

-Kay

First, a BIG thank you to Lindy (again)!!!!!! I am now sleeping through the night again, thanks to 5-HTP!!!!!! :) Keppra continues to keep my brainwaves happy :), and (I'm still amazed...) hormones are not causing any probs with sz control. :) I'm also down to 500 mg Keppra without problems. Life's good again!

Thanks, everyone, for all the advice and prayers!


LIZARD, SO relieved!!!!!!!!

I had my hearing with the ALJ 11/2/09, and he issued a bench or OTR at the hearing. My problem is this entire situation with becoming disabled has led to my being financially ruined. I rec'd a letter from my landlord stating that if my rent isn't paid by 11/30/09 ( it's 2 months of rent) he will begin eviction procedures. Is there any way I can get payment center to expedite processing of my case?

Summary of the Eighth Meeting, 27 October 2009

1. Consent for blood transfusion

Members were reminded that questionnaires regarding informed consent for blood transfusion had been finalised by a working group consisting of SaBTO members and other experts. Two questionnaires have been developed which are specifically for either Healthcare Professionals or Patient groups. The working group had agreed the management of the consultation process with the Department of Health. The consultation process will be UK wide. Participants will be given 12 weeks to respond, after which time the consultation will close and the responses will be analysed.

2. MSBTO Guidance update

Members noted the urgent need for this update, which was expected to be forthcoming shortly.

3. Prion Filtration

Members had discussed prion filtration at previous meetings, and had asked to be kept updated on progress of both efficacy and safety assessments. This was provided via a presentation from the vCJD working group, with new data from both the ongoing clinical trial to assess safety of prion filtered red blood cells (the PRISM trial) and independent efficacy assessments of the performance of the same product. Early results from the clinical trial are encouraging, but members noted that the trial is still some way from completion. Members were appraised of data from the Health Protection Agency’s independent evaluation of efficacy, in addition to information from the manufacturer and another independent study. The committee noted that independent data from animal based, endogenous studies of efficacy will not be available until 2014. Having considered the information and analysis provided, the committee:

• is satisfied that there is now sufficient evidence that this particular filter reduces infectivity;

• recommends that filtered red cells be provided to those born since 1 January 1996, subject to satisfactory completion of the PRISM clinical trial.

The committee also noted that, if implemented, the continuing requirement for prion filtration should be reviewed in the event that either further data on prevalence or efficacy of the filters becomes available.

1

The committee had previously recommended the introduction of double dose red cells (DDRC) as a vCJD risk-reduction measure for under 16s and patients with haemoglobinopathies. SaBTO recommended that DDRC be rescinded for those groups receiving prion filtered blood.

2

http://www.dh.gov.uk/prod_consum_dh/.../dh_108860.pdf

Tuesday, November 11, 2008

SaBTO Summary of 1st Public Meeting – variant CJD and blood Tuesday 21st October 2008, 2pm-4pm

http://vcjdblood.blogspot.com/2008/1...c-meeting.html

Tuesday, October 27, 2009 AMORFIX DETECTS vCJD PRIONS IN BLOOD FROM NON-HUMAN PRIMATES

NEWS RELEASE TSX: AMF

FOR IMMEDIATE RELEASE

http://vcjdtransfusion.blogspot.com/...-in-blood.html

TSEAC MEETING FEBRUARY 12, 2004 THE BAXTER STUDY GSS

http://tseac.blogspot.com/2009/09/ts...04-baxter.html

Sunday, May 10, 2009

Meeting of the Transmissible Spongiform Encephalopathies Committee On June 12, 2009 (Singeltary submission)

http://tseac.blogspot.com/2009/05/me...pongiform.html

SEE UPDATED DATA ON BLOOD AND CJD HERE ;

Tuesday, November 17, 2009

SEAC EFFECT OF AGE ON THE PATHOGENESIS OF TRANSMISSIBLE SPONGIFORM ENCEPHALOPATHIES SEAC 103/2

http://downercattle.blogspot.com/200...enesis-of.html


Tuesday, November 17, 2009

SEAC NEW RESULTS ON IDIOPATHIC BRAINSTEM NEURONAL CHROMATOLYSIS (IBNC) FROM THE VETERINARY LABORATORIES AGENCY (VLA) SEAC 103/1

http://bse-atypical.blogspot.com/200...diopathic.html




TSS



Friday, November 20, 2009


SaBTO Advisory Committee on the Safety of Blood, Tissues and Organs Summary of the Eighth Meeting, 27 October 2009


http://vcjdtransfusion.blogspot.com/...safety-of.html

Hello, I am new to this site. I have a son who was born with hydrocephalus. He is 36. Has not had to have a shunt revision since 1 1/2 yrs. old. In fact, one (he has two) shunt has not worked properly since around 11 yrs old. The doctors say no pressure, so no revision. But, he is having some symtoms. Breathing heavy. Falling asleep in the car or just sitting around. Also, he does have memory problems. Unable to keep a job. Any advice?? Thanks.

http://www.independent.co.uk/news/science/stem-cells-the-first-human-trial-1824099.html


not sure if that worked or not, but its a link to the first human trial of a stem cell treatment. exciting stuff, we're edging closer and closer!

Hi,
I am seven year experienced Administrative Assistant, experience in Word, Excel, QuickBooks, Outlook, Receptionist, Norstar Multiple Extension Switchboard, business equipment management, supply orders and inventory, and lost last position in December 2008 due to corporate downsizing. I am diagnosed tarlov cyst, have another find on CT scan, and am looking for work as Administrative Assistant. Due to the rheumatism and problems remembering, being slow, I am concerned I will be terminated if I am not able to learn new skills, since my memory is not at all too well anymore. I post here to offer services in Administrative Support to a physician, or for a company, for health insurance and treatment. A find on CT Scan showing something cordlike extending down from spleen, wraps around spine, and does not appear to connect anywhere in my spine. A cauli-flower like image inside of spleen this cordlike extension connects to. When comparing other spleen images to others on CT, I see nothing cauli-flower like, nor see any cord-like image extending down from spleen and wrapping around spinal column. It was confirmed by reporting CT radiologist, this was a blood vessel inside of spleen, yet, he failed to report find on the report, nor make mention about cord-like structure extending from blood vessel that is wrapped around my spinal cord. I retain copy CT Scan images, with report. My research indicates, this "cauli-flower" form in spleen may be a harmatoma? I have some precancerous diagnoses. I feel too sick. I am offering Administrative Support services in exchange for physician care and any treatment. My spine is more a problem than my spleen. I have my imaging and reports, and physician papers.

Hello,

First posting, have a diagnosed Tarlov cyst. Not much to say since can't remember things too well anymore. Pretty much depressed person now.