Hi Everyone ! No Narc's???

[B Bart]

Obviously glad this is back! I'm 58, had PN diagnosed over 7 years ago and it has been downhill since. Had stim implanted 1 year ago - no help at all. Been on HEAVY doses of narcotics as well as trying "every" other med my docs could think of. Been to Johns-Hopkins, Columbia, Mt Sinai, Dr. Latov and they have all said (basically) "'sucks-to-be-you', see a pain doc". Trouble is, my pain doc of several years dropped out of my plan and NO-ONE in my plan will touch me because of the narcotics I have been on. I am now almost completely off of the narcotics and basically taking only Lyrica 300mg/day for pain. "They" say narcotics does not help with nerve pain? Well the pain sure is worse for me without them. I feel much better overall but my feet are keeping me in absolute agony. How are all of you coping? I am a manager at a manufacturing company, so I can't "take it easy" or spend extra time with my light boot. Any thoughts of help or encouragement.
Glad this forum is back!
(I should start another thread about the ABSOLUTE jerks I have met, masquerading as pain doctors!)
Tom

[keithy02]

do not know how i would cope with out them
tried the lycra it sucked sorry keep looking for another doc
my doc sent me to pain doc who then told my reg doc to prescribe my meds sorry for you keep looking out there for pain doc who will verify that you need your meds
:) :) :) keith

[Brian]

Hi Tom, I'd like to see one of those doctors be in your shoes just for a day, it would certainly change their mind about essential pain relief medication, i thought the reason why the drug companies were aloud to make these meds were for people who can't get by without extra, extra strong pain relief.

Whist having neuropathy I have come accross some real jerks as well, seems like there is a few around :)
I hope you can find a real doctor that can give you some relief soon.
good luck
Brian

[Quahog]

Hi Tom,

wow I too can relate. Thankfully I found a wonderful pain clinic and Doctor.
He has helped in so many ways and I feel was responsible for my SSDI being approved this past spring. Of course I have seen the bad doctors too. These people have no business in pain management if they don't know how to treat their patients with respect and dignity. The last bad one I saw immediately told me I was diabetic and my pain was from that when everyone else said no. He didn't even do any tests other than the standard exam and when he tested my reflexes my leg jumped (I have hyper reflexes) and he yelled at me and told me to stop it!! I was very upset. He then launched into a lecture about my narcotic uasage without even looking at my history of trying every non-narcotic there is. Is it any wonder so many of us are suspicious of doctors? You are not alone in your fight and the only thing one can do is keep searching for answers and a decent doctor. They are out there.

Glenn

[californiaDana]

My drs. were the ones to suggest them. Ive had CDIP for over 3 yrs now and started out just taking vicodin, went to the highest dosage but didnt want to stay on the acedominiphine in the vicodin because I was taking 8 a day. The Dr put me on oxycontin,moriphine, cymbalta and valium when I have leg cramps. I didnt ask for these meds the drs thought I needed them because they said no one should be in the kind of pain I was going through.
So there are caring drs out there, I have been with my dr 20 yrs hes the only one I really trust and my neuro is very good too. She has me use lidocane patches at night so I can sleep
No one should have to go through nerve pain

Dana