It is nice to see this place again..

[aggscott]

I have not been in here in a long time but, when I did come here I always learned something about my Fibro. It was nice to know I was not alone.

My name is Aggie and I was DX'ed with Fibro in 98-99 somewhere around there. When the doc told me what I had -I couldn't remember what it was!
I also have MPS pretty bad as well. I'm 33 I have three kids and a great husband that totally understand and is ever patience with me. So are my kids actually when I think about it. They joke all the time about Mom sleeping in the afternoon when I come home from work and things like that but, they are great when it comes time to help me.

Just recently I went to the doctor for hand pain with very sore wrists and very swollen fingers. I chatted with the doctor about different things and have an almost DX for Lupus(If there is such a thing as almost Lupus!)
I have quite a few of the symtoms but, I do not have the rash. My SED rate labs are always normal but, my ANA is always very high. Who Knows?:) Anyone else ever get this DX from a doctor? I'm very curious about that...

It is nice to be back and I look forward to chatting with everyone~:D

Aggie

[Linda25]

Welcome back Aggie!

:)

good to see so many people coming back

love,
Linda

[Fayelle]

Hi :)

Hey I am 33 too with a wonderful hubby, and pretty good kids....

My doc did test me for lupus but didn't say anything about almost LOL....

I do have quite a few symptoms in common but I think thats pretty typical with almost everything in fibro.....

Fay

[Tootsie]

Making a diagnosis of lupus is a notoriously difficult task and is one easily taking an extended period of time to review laboratory findings periodically to find a pattern.

What is MPS? Cheerio.

[aggscott]

Hi Fayelle & Toosie-Linda25

Thanks for the posts, it is nice to chat with others again--:)

I actually looked it up yesterday while I was at the Library- It was The Lupus Book by Daniel Wallace MD.and it had in there about having a few of the symtoms but, most of your tests come back O.K. so the doctor put it in a catagory as "almost Lupus". You might get Lupus as time goes on or something different such as RA or a different connective tissue disease. I'm going to read more about it, it was a very interesting chapter that I found this info in. It also mentioned the relationship between Lupus and Fibro.


MPS is Myofacial Pain Syndrome. MPS is characterized by the development of Myofascial trigger points (TrPs) that are locally tender when active, and refer pain through specific patterns to other areas of the body. I have quite a few in my back that sometimes make my skin feel so tight that it will burst open. They hurt too..I have had Trigger point injections but, they never worked.

Time to get back to work~:D

Aggie

[Fayelle]

I have those MPS spots....My doc said that I most likely had MPS too but not much else when I brought it up.....Those trigger points can be very painful and cause many other problems in the most bizarre places.....

There are 2 in my back that when pressed send pain all the way up my shoulder and into my neck, in some cases into my jaw......I think they also manage to hit my chest muscles......It's pretty strange to hit those and have a lightning bolt go through my neck and jaw.....They are my hurts so good spots. I love having them pushed on because it causes a discomfort that sends me through the roof, but I think it helps loosen things up when they are massaged so I love it.....Go figure......

I have a massage pad that does shiatsu and those pushing balls are delightful on those upper back spots......Chiropractic actually got rid of those knots, the only problem being when I got vertigo and he could not tell me the reason....What bothered me was him manipulating my central nervous system and not knowing what causes a CNS problem....Granted vertigo is a tough thing to understand and diagnose but I felt uncomfortable with him adjusting my neck and not knowing about the vertigo.....So after the treatment time was over I stopped going which was shortly after the vertigo incident....I also lost the entire middle portion of my vision once during that time, I had this black spot all through my vision except around the edges, I could see the outline and nothing else.....That scared me to death.....

So many symptoms so little explanation......

Fay

[aggscott]

The trigger points were the first thing I had too. I remember going to the doctor about 96-97 and telling him I had a bad backache. He felt around and told me I had a huge knot in my back and wow when he touched it I went through the roof! He also told me at the time there was nothing i could do for it-live with it...Nice huh? He was an old doctor who was so mean all the time. He was more than likely in pain and felt everyone else should be too!!:rolleyes:

I switched doctors' after that and soon found out what it was and that I had more. I was in a car accident after that and was sent to massage. She had worked with patients who had trigger points and when she would push on them I would want to cry and usually did. But afterwards, it was not to bad. I felt good and relaxed. That didn't last long and the money from the insurance ran out and I could not afford it..

Now I just try not to get stressed out to much. I know that when I get to a certain point I can feel my back get tight and it feels like the skin on my back is sticking to my bones or something. Nothing moves and it hurts! It also refers pain through my neck and head.

Wow, can I type! Carpel Tunnel will be next! ;)

Aggie

[Tootsie]

I found Alexander Technique to be the most helpful thing in dealing with that tension, pain and aching in my neck, upper arms, and back. It is basically posture lessons but taught me how to fix myself. My use of aspirin for pain went down about 75 percent after I learned how to relax and monitor my posture. Cheerio.