WhataBreeze
02-07-2007, 12:44 AM
To: World of the Healing Arts, Healthcare and Drug Manufacturers
From: All of us that have been diagnosed both pre and post mortem with Central Pontine Myelinolysis since 1959.
Dr. R.D. Adams, the lead neurologist of the team studying this unknown disease from cadavers of those victims who died with the critical disorder of alcoholism was responsible for the name of the white matter disease of demyelination. In fact it is said the initial diagnosis of CPM to those alive post the demyelination period which has been stated to be as quick as forty eight hours did not happen until aproximately ten years after it's naming.
I'm pleased to say after my official diagnosis of CPM in mid 2003 (Yes, it's a long story to justify my 5 Year Anniversary) as my acquired disabilitating CPM symptoms ended my long professional career I began my research as a layman. It's hard to believe but as I started my direction, it was Google that initially was my guide to learn as much for my own world renown neuroscience physician to give me the title as the #1 CPM Layman Advocate in the world.
Yes, I said Google as the first time I pulled up Central Pontine Myelinolysis, there were just over 1,500/Fifteen Hundred available links including the "Generic Information Pages" that were all the same with only a change of sponsors name. As it might still seem to most as a minimal amount, today there are over 70,000 available CPM links. Pull up Myelinolysis only as there is a version of CPM referred to as EPM (Extra Pontine Myelinolysis) which is the case when demyelination occurs outside the pons of the brainstem. Mylinolysis only, now on Google will add an additional 10,000 to 15,000 links which takes it well over 80,000 links.
At this point, the fact I'm doing my best to bring is Central Pontine Myelinolysis, the world wide secret of "Hospital Error," said to have no cure is to the best of my knowledge a complete falsehood as the actual cure is the error itself. The actual mortality statistics are impossible to be authenticated. This is why the truth will bring the AWARENESS needed to be able to truly CURE this horrific IATROGENIC TOXIC NEUROMUSCULAR disease/disorder of the Central Nervous System.
I continue to pray as NIH, (National Institutes of Health) NINDS (National Institute of Neurological Disorders and Stroke) and ORD (Office of Rare Diseases) has begun to answer.
It is God's vision, those of us who have been blessed to survive CPM along with our chronic futures will be able to watch what many fine physicians have been steadilly reporting in their articles of reality. We are very close to what we who have CPM pray for you to never have to experience. G-d Bless...
Franky and Breeze
_______________
February 13, 2007: I really didn't want to add another Posting to this Thread at this time. Both Buttons2 and Javisi still continue to offer their thoughts as well as cordial wishes as they did for the last few years. They both have experienced what the old BrainTalk Community was like pre-crash. It's still wonderful to come back to B/T every few days at it really has been a helpful experience for many needing support and the assistance or advice someone could find from those of us who have been living the issue.
Buttons2 and Javisi, I'm very pleased to say what those who had knowledge of CENTRAL PONTINE MYELINOLYSIS knew when it was first titled. There is a CURE for CPM. It's called AWARENESS by those whose position it is to order treatment that has to be carried out by nurses, techs, etc. Some of us who live on with the severe symptoms of this chronic disease, have discussed the unbelievable reality how this concequence of Hospital Error that only gets diagnosed by MRI if your blessed to have a real professional caring physician of the "Healing Arts." The only other possibility is post mortem by autopsy and how many times does the family want to pay for that especially when God only knows what they were previously told. The truth is CPM is not as RARE as those responsible have found a way to make the world AWARE of. Trust me those who view these Postings as I have no reason for "Sour Grapes," as I've been blessed to live.
_________________________
From: All of us that have been diagnosed both pre and post mortem with Central Pontine Myelinolysis since 1959.
Dr. R.D. Adams, the lead neurologist of the team studying this unknown disease from cadavers of those victims who died with the critical disorder of alcoholism was responsible for the name of the white matter disease of demyelination. In fact it is said the initial diagnosis of CPM to those alive post the demyelination period which has been stated to be as quick as forty eight hours did not happen until aproximately ten years after it's naming.
I'm pleased to say after my official diagnosis of CPM in mid 2003 (Yes, it's a long story to justify my 5 Year Anniversary) as my acquired disabilitating CPM symptoms ended my long professional career I began my research as a layman. It's hard to believe but as I started my direction, it was Google that initially was my guide to learn as much for my own world renown neuroscience physician to give me the title as the #1 CPM Layman Advocate in the world.
Yes, I said Google as the first time I pulled up Central Pontine Myelinolysis, there were just over 1,500/Fifteen Hundred available links including the "Generic Information Pages" that were all the same with only a change of sponsors name. As it might still seem to most as a minimal amount, today there are over 70,000 available CPM links. Pull up Myelinolysis only as there is a version of CPM referred to as EPM (Extra Pontine Myelinolysis) which is the case when demyelination occurs outside the pons of the brainstem. Mylinolysis only, now on Google will add an additional 10,000 to 15,000 links which takes it well over 80,000 links.
At this point, the fact I'm doing my best to bring is Central Pontine Myelinolysis, the world wide secret of "Hospital Error," said to have no cure is to the best of my knowledge a complete falsehood as the actual cure is the error itself. The actual mortality statistics are impossible to be authenticated. This is why the truth will bring the AWARENESS needed to be able to truly CURE this horrific IATROGENIC TOXIC NEUROMUSCULAR disease/disorder of the Central Nervous System.
I continue to pray as NIH, (National Institutes of Health) NINDS (National Institute of Neurological Disorders and Stroke) and ORD (Office of Rare Diseases) has begun to answer.
It is God's vision, those of us who have been blessed to survive CPM along with our chronic futures will be able to watch what many fine physicians have been steadilly reporting in their articles of reality. We are very close to what we who have CPM pray for you to never have to experience. G-d Bless...
Franky and Breeze
_______________
February 13, 2007: I really didn't want to add another Posting to this Thread at this time. Both Buttons2 and Javisi still continue to offer their thoughts as well as cordial wishes as they did for the last few years. They both have experienced what the old BrainTalk Community was like pre-crash. It's still wonderful to come back to B/T every few days at it really has been a helpful experience for many needing support and the assistance or advice someone could find from those of us who have been living the issue.
Buttons2 and Javisi, I'm very pleased to say what those who had knowledge of CENTRAL PONTINE MYELINOLYSIS knew when it was first titled. There is a CURE for CPM. It's called AWARENESS by those whose position it is to order treatment that has to be carried out by nurses, techs, etc. Some of us who live on with the severe symptoms of this chronic disease, have discussed the unbelievable reality how this concequence of Hospital Error that only gets diagnosed by MRI if your blessed to have a real professional caring physician of the "Healing Arts." The only other possibility is post mortem by autopsy and how many times does the family want to pay for that especially when God only knows what they were previously told. The truth is CPM is not as RARE as those responsible have found a way to make the world AWARE of. Trust me those who view these Postings as I have no reason for "Sour Grapes," as I've been blessed to live.
_________________________