Indyjess
10-09-2006, 03:42 AM
Hello, I am not sure that many of you will remember who I am... I stopped posting around December of last year when my husband was deployed to Iraq. The stress of everything was just too much to bear.. and even though I eventually adapted the first couple of months were very difficult.
Savanah is doing very well. She has been in school for almost a year (her fourth birthday is on Halloween) and her teachers are very pleased with her progress. She is making more purposeful movements with her hands and seems to manuver her legs around pretty well. She can stand with minimal assistance, but not for too long. Always happy, this little girl! And she loves to talk... not English words but she has her own little language that she loves to use often. Always. Especially when she is not getting the attention that she deserves ;)
Still no big steps forward with seizure control. Just recently weaned off Keppra, it just wasn't working. So, she is still on Phenobarb, which her body will not give up, Topomax, and Zonigran(?) Just a recent switch, and too lazy to walk to the medicine cabinet and check! But she is still having several myoclonics and partials a day.
Other than that, things going well... got a couple of promotions at work and now I am a bank officer. Wow, a career for the first time in my life. Also, my husband came back from Iraq injured from a roadside bomb incident. He lost hearing completely in his right ear, about 30% in his left... shrapnel wounds all over, including a huge hunk of metal in his knee that hurts him terribly. Also, some brain damage (oh great, right?) and post traumatic stress disorder are present on the neurological side. But I am very lucky.. the driver of the humvee was killed and one is still in a coma, a year later.
I am happy to be back, and I am glad to see that so many of you are doing well!
Savanah is doing very well. She has been in school for almost a year (her fourth birthday is on Halloween) and her teachers are very pleased with her progress. She is making more purposeful movements with her hands and seems to manuver her legs around pretty well. She can stand with minimal assistance, but not for too long. Always happy, this little girl! And she loves to talk... not English words but she has her own little language that she loves to use often. Always. Especially when she is not getting the attention that she deserves ;)
Still no big steps forward with seizure control. Just recently weaned off Keppra, it just wasn't working. So, she is still on Phenobarb, which her body will not give up, Topomax, and Zonigran(?) Just a recent switch, and too lazy to walk to the medicine cabinet and check! But she is still having several myoclonics and partials a day.
Other than that, things going well... got a couple of promotions at work and now I am a bank officer. Wow, a career for the first time in my life. Also, my husband came back from Iraq injured from a roadside bomb incident. He lost hearing completely in his right ear, about 30% in his left... shrapnel wounds all over, including a huge hunk of metal in his knee that hurts him terribly. Also, some brain damage (oh great, right?) and post traumatic stress disorder are present on the neurological side. But I am very lucky.. the driver of the humvee was killed and one is still in a coma, a year later.
I am happy to be back, and I am glad to see that so many of you are doing well!