Pals Websites and Links

[BobbyB]

http://www.mattschallenge.com/images/warrior%20scholar.gifWhat does the Chinese symbol mean?
It has a double meaning Warrior/Scholar. To me it is a reminder to fight with my head.
http://www.mattschallenge.com/

Welcome to the ALS/MND Registry
http://www.patientslikeme.com/registry

http://www.patientslikeme.com/images/logo_beta.gif
http://www.patientslikeme.com/user/login

http://www.enjoyyourlife.ch/images/alstdflogo1.jpg
ALS TDF
http://www.als.net/default.asp

Build-UK Chat Forums
http://www.magimedia.co.uk/buildforum/viewforum.php?f=1&sid=3b60c458ef77eb56472f2b25b2148671

Ride for Life
http://www.rideforlife.com/

Living with ALS
http://health.groups.yahoo.com/group/living-with-als/

CareCure Forums
http://sci****tgers.edu/forum/index.php

http://www.eurekalert.org/index.php


http://www.extrahands.org/
http://www.geocities.com/sweekes99/ALStitle.html

http://www.permobilusa.com/images/assets/permobilLogo.jpg
http://www.permobilusa.com/newProducts_RS.php

The Jazzy
indoor/outdoor Power Chair.
http://www.accessusaonline.com/davismobility/2.htm


http://www.mattschallenge.com/
http://brainhell.blogspot.com/
http://als.mdausa.org/
http://www.whatisals.com/
http://www.alsaiowa.org/index.html
http://alsnetwork.com/
http://www.cagw.org/site/PageServer
http://www.chadscorner4pals.com/
http://www.als-options.com/als-links.html
http://www.indestructiblefilm.com/2/home.html

A grassroots ALS/MND "Website" with the purpose of Inspiring Self Empowerment through Information & Knowledge.
http://www.kylehahn.com/

http://www.leahymusic.com/theband/
http://www.alsmnd********.org/directory/
http://www.curezone.com/forums/f.asp?f=482

http://www.kylehahn.com/Media/Gif/scrollbanner.gif
http://march-of-faces.org/
http://www.alsa.org/policy/alsday.cfm
http://home.goulburn.net.au/~shack/
http://home.comcast.net/~mrsre/
http://tpals.org/meds.htm
http://www.enjoyyourlife.ch/kontakt.html
http://health.groups.yahoo.com/group...n-ALS/messages

http://www.wrongdiagnosis.com/a/amyo...osis/intro.htm
http://www.sammonspreston.com/
http://www.pat.org/classi.html
http://www.wheelchair-van.com/wheelchair_van.php
http://sanlab.kz.tsukuba.ac.jp/HAL/indexE.html
http://www.virtualblueridge.com/park.../overlooks.asp
http://www.wheelchairjunkie.com/
http://www.disabilitynow.org.uk/time...ksex_feat1.htm
http://www.alscenter.org/
http://www.als-pls.org/Learn.htm
http://www.mndassociation.org/
http://www.alswarriorpoet.com/
http://www.survivingals.com/default.html
http://www.living-with-als.org/index.html
http://www.alsa.org/resources/magazine.cfm

http://www.cdc.gov/
http://als-net.gr/istorikouk.htm
http://www.alsalabama.org/
http://homepage.ntlworld.com/rob.shaz/
http://forums.braintalk2.org/forumdi...daysprune=&f=6
http://www.google.com/language_tools

http://www.iriscom.org/
http://rynomobility.com/RampTruckMedia.htm
https://als.clinicahealth.com/index.pl
http://www.petitiononline.com/create_petition.html
http://cnr.iop.kcl.ac.uk/recordings/...S/speechi.html
http://carlinalsfund.org/index.html
http://www.permobil.com/default.aspx?id=4
http://www.patrickobrienfoundation.org/

http://www.stemcellpals.com/mstory/storymy.htm
http://kildare.ie/Voluntary/irish-wh...tion/INDEX.HTM
http://racewilly.tripod.com/davespalspage/index.html
http://brewgrassfestival.com/
http://www.alsconnection.com/
http://www.alscharity.org/index.html
http://www.alsindependence.com/What's_Happening.htm
http://www.wayfaring.com/maps/show/14508
http://en.wikipedia.org/wiki/Main_Page
http://www.gatesfoundation.org/Globa...rantmaking.htm
http://www.alsaco.org/index.cfm?content=blog
http://all.jurkat.biz/phpBB2/viewforum.php?f=1
http://www.eyeresponse.com/Disabilities/
http://www.gloryinweakness.com/forums/index.php
http://www.stemcell.no/
http://livingwithals.net/index.html
http://www.mobilityconcepts.org/index2.html
http://spaces.msn.com/steveayse/
http://www.israls.org/israls_english.htm
http://forum.als-net.gr/viewtopic.php?t=107
http://alsnetwork.com/useful.htm
http://www.march-of-faces.org/aboutus/
http://www.alsa.org/exchange/article.cfm?id=804#5
http://www.sambush.com/



http://www.alslinks.com/

http://www.amsvans.com/index.asp
http://www.braunlift.com/
http://www.assistivetech.com/prod-index.htm
http://www.lakefolks.org/cnt/
http://www.etriloquist.com/index.html
http://www.vestil.com/wc/extreme4x4.htm

http://eyeresponse.com/
http://www.focusonals.com/index.htm
http://www.govbenefits.gov/govbenefits_en.portal
http://www.immly.org/
http://www.magitek.com/
http://www.massgeneral.org/neurology/index.asp
http://www.ninds.nih.gov/disorders/a...lsclerosis.htm

http://www.quackwatch.org/
http://www.easypivot.com./
http://www.directory.net/Society/Dis...Hand-Controls/
http://www.sciencemag.org/feature/data/als/
http://www.discountwheelchair.com/di...lchair_001.htm

http://www.myskeletonkey.com/
http://www.angletechcycles.com/bikes...eeds_bikes.htm
http://www.educational-software-dire...special-needs/
http://www.gusinc.com/
http://www.blvd.com/
http://www.eyegaze.com/2Products/Dis...bilitymain.htm
http://tpals.org/ftube.htm
http://tpals.org/index.htm
http://www.viewpointmobility.com/
http://www.neospeech.com/

ALS Links

www.alsa.org[/url]
www.projectals.org[/url]

www.lesturnerals.org[/url]
www.rideforlife.com
www.ericiswinning.com
http://alstherapy.info

red wrist bands.
www.nevergiveup4pals.org

United Kingdom ALS Support
www.build-uk.net

Spanish ALS Association
www.advernet.es/adela

German ALS Support
www.als-site.de

Scandinavian ALS Web Site
www.sasdx.com

Belgian ALS Support Group
www.ALS-MND.be

http://www.build-uk.net/links/builduk_banner_wide.jpg
http://www.magimedia.co.uk/buildforu...2b25b214 8671

Choosing a Powered Wheelchair
http://www.assistireland.ie/index.as...181&docID=6557

The Happy Hutter
http://thehappyhutter.blogspot.com/

Austria http://als.themenplattform.com/128291.1/
Belgium www.ALS-MND.be
Croacia mailto: marija.sostarko@zg.tel.hr
Denmark www.muskelsvindfonden.dk
Finland www.lihastautiliitto.fi
France www.ars.asso.fr/

www.multimania.com/als/
Germany www.dgm.org
Ireland www.iol.ie/~killeen/stevemnd/imndesc.htm
Island www.mnd.is
Israel mailto:vdrory@post.tau.ac.il
Italy www.aisla.it
Netherland www.vsn.nl

www.als-centrum.nl
Norway http://www.alsweb.no/
www.geocities.com/HotSprings/Spa/9932/

Poland
http://www.idn.org.pl/szczecin/tzchm...strony/sla.htm
http://www.fundacja-sm.malopolska.pl...y/kolo_sla.htm

Scotland www.scotmnd.org.uk
Spain www.adelaweb.com
Sweden http://www.sos.se/smkh/1998-29-078/1998-29-078.HTM
Switzerland ALS -Ratgeber für Betroffene & Angehörige: http://www.neurohelp.ch/als.htm
other CH languages : http://www.hon.ch/HONselect/RareDise...8.854.139.html

Turkey mailto:Coskunoz@superonline.com
UnitedKingdom www.mndassociation.org

Buy your Strike Out ALS Wristbands NOW!
http://www.catfishchapter.org/help/Wristbands.html



http://www.dreamfoundation.org/

Packard Center for ALS Research at Johns Hopkins University

www.hopkinsmedicine.org/alscenter

The ALS Therapy Development Foundation
www.als.net

ALS Association's Jim "Catfish" Hunter Chapter

www.catfishchapter.org
www.alsa.org

The ALS Center of Wake Forest University Baptist Medical Center
www.wfubmc.edu/neurology/als/




Helpful Sites for PALS and CALS

ALSlinks.com "An Internet Portal for the ALS Community"
www.alslinks.com

The ALS Survival Guide
www.alssurvivalguide.com

ALS and Associated Websites (a comprehensive collection of ALS resources)

http://www.geocities.com/sweekes99/ALStitle.html

The Irish MND association
http://www.imnda.ie/index.cfm/loc/1.htm

Other ALS Non-Profit'S

Ride for Life
www.rideforlife.com

*******************************.com/images/misc/logo.gif
*******************************.com/forumdisplay.php?s=&daysprune=&f=6

[BobbyB]

Project ALS
www.projectals.org

Hope for ALS
www.hopeforals.com

Les Turner ALS Foundation
www.lesturnerals.org
http://www.kylehahn.com/Media/Gif/scrollbanner.gif
March of Faces
www.march-of-faces.org

The Fran Delaney Foundation
www.frandelaney.org

The Muscular Dystrophy Association
http://www.mdausa.org

MDA's ALS Newsletter
http://www.mdausa.org/publications/als/index.html

The ALS Association
http://alsa.org/

Ride for Life Online
http://www.rideforlife.com

Project ALS
http://www.projectals.org

ALS Links - Internet Portal for the ALS Community
http://www.alslinks.com

International ALS Clinics and Research Centers
http://www.alslinks.com/clinicsinternational.htm

International ******** of ALS/MND Associations
http://www.alsmnd********.org

The ALS Society of Canada
http://www.als.ca

Focus on ALS - site created by a PALS for PALS
http://www.focusonals.com/

Coalition for the Advancement of Medical Research
http://www.camradvocacy.org/

Stem Cell Information - the official NIH resource
http://stemcells.nih.gov/index.asp

Stem Cell Action
http://www.stemcellaction.org/

Laboratory for ALS Research, San Diego
http://ludwig.ucsd.edu/ClevelandLabCMM/ALSgroup.html

ALS Digest (online newsletter). Archive is available at http://www.alslinks.com/alsdigestarchives.htm.
CLINICAL TRIALS

MUSCULAR DYSTROPHY ASSOCIATION
http://www.mdausa.org/research/ctrials.cfm

ALS ASSOCIATION
http://www.alsa.org/research/drugdev.cfm

NATIONAL INSTITUTES OF HEALTH
http://www.clinicaltrials.gov/

ALS Association (USA):
http://www.alsa.org/

ALS Association, Greater Philadelphia Chapter
http://www.als-phila.org/

Motor Neurone Disease Association (UK)
http://www.businessconnections.com/mnd/mnd.htm

Irish Motor Neurone Disease Association
http://www.iol.ie/~killeen/stevemnd/imndesc.htm

Deutsche Gesellschaft f r Muskelkranke
http://weka.rpr-cologne.de/

ADELA (Association Espanola de Esclerosis Lateral Amiotrofica)
http://www.seker.es/adela

AMELA (Asociacion Madrilena de ELA)
http://www.servicom.es/amela/0 AMELA.HTM

ALS Advocacy
http://pages.prodigy.com/ALSPROD/



Medical/Scientific/Commercial

The John Bevan MND Research Unit:
http://http1.brunel.ac.uk:8080/~hssr...g/als_rsrc.htm

Cleveland Clinic Foundation:
http://www.ccf.org/ed/pated/events/als.htm

Baylor College of Medicine, Department of Neurology MDA/ALS CLINIC
http://www.bcm.tmc.edu/neurol/struct/als/als1.html

Washington University School of Medicine (St. Louis, MO); Neuromuscular Disease Center
http://www.neuro.wustl.edu/neuromuscular/

Neurosciences / United States:
http://www.lm.com/~nab/

Neurosciences / United Kingdom:
http://www.genetics.gla.ac.uk/neil/index.html

Neurosciences / Germany:
http://ilsebill.biologie.uni-freibur...ror/index.html

Drug InfoNet; ALS:
http://www.druginfonet.com/lougerig.htm

PLS Consulting: ALS Doctor's Guide to the Internet:
http://www.pslgroup.com/ALS.HTM

The Glaxo Neurologic Centre
http://www.connect.org.uk/merseyworld/glaxo/

American Academy of Neurology:
http://www.aan.com/public/bals.html

The Birmingham Neuroscience WWW pages
http://medweb.bham.ac.uk/clin_neuro.html

Neuroscience Resources: A component of The World-Wide Web Virtual Library; Cornell University Medical College Department of Neurology and Neuroscience
http://neuro.med.cornell.edu/
__________________

[BobbyB]

http://www.chadscorner4pals.com/
http://www.indestructiblefilm.com/2/home.html
http://www.kylehahn.com/
http://home.comcast.net/~mrsre/
http://tpals.org/index.htm
http://als-net.gr/istorikouk.htm
http://homepage.ntlworld.com/rob.shaz/
http://steveayse.spaces.*********/
http://www.alslinks.com/
http://www.scnature.com/
http://www.siteone.com/health/woodard/index.html
http://home20.inet.tele.dk/heaven/en/index.htm
Jeannie
My blog http://jeannie-world.blogspot.com/
My website http://uk.geocities.com/jeannie_25als@btinternet.com/

ALS/MND CHATROOM http://client1.sigmachat.com/sc.pl?id=144320
http://uk.geocities.com/jeannie_25als@btinternet.com/
http://groups.msn.com/duckiesbitofmsn/_homepage.msnw
http://www.geocities.com/mannco74/
http://www.onefivenine.info/johnclose.htm
http://www.als-gruppen-vestjylland.dk/
http://www.geocities.com/crafttmk/countryside.html
http://lindenwoods.tripod.com/
http://www.wheelsworld.co.uk/
http://www.justgiving.com/franceslowe
http://www.alsalternative.com/
http://www.als-project.com/
http://walk.catfishchapter.org/site/...0&team_id=7240
http://robertmnd.blogspot.com/
http://www.justgiving.com/granmac

http://home.goulburn.net.au/~shack/
http://brainhell.blogspot.com/
http://home.earthlink.net/~leonpeek/
http://www.johnsjourney.org/
http://www.patrickobrienfoundation.org/
http://hometown.aol.com/abe11/Davesindex.html
Serge J Vincent
http://www.als.ca/events/mysite.aspx...83&AdminMenu=1


http://home.goulburn.net.au/~shack/

Kramer Family Homepage
http://home.pacbell.net/ranger-1/

Joel Cutler's Website
http://www.als.ca/events/mysite.aspx?fid=561
PALS / CALS – PERSONAL WEB SITES:
Note: Names in bold are PALS / CALS Web Sites that have been in existence for more than five years.Compiled By: Steve Weekes ( sweekes99@yahoo.com )

(Listed Alphabetically by First Name)
Al Pickens’ Web Site: http://www.alslinks.com/ (“Al’s ALS Links”)
Alfred Butler’s Web Site: http://www.albutler.com/
Alfred Caffiero’s Web Site: http://www.alfredcaffierofoundation.org/ (“Alfred Caffiero Foundation”)
Angelo Sciulli’s Web Site: http://www.scnature.com

Bert Woodard’s Home Page: http://www.siteone.com/health/woodard/ (“An ALS Manual”)
Bill Quinn Jr.’s Web Site: http://www.alstasteoffame.com/ (“ALS Taste of Fame”)
Brenda Cupelli’s Home Page: http://www.geocities.com/story_als/ (“A Story Of Spirit”)
Brent Fendley’s Home Page: http://members.tripod.com/brentsplace/ (“Brent’s Place”)

Cecil Neth’s Web Site: http://www.alscecilneth.net/ (“ALS – A Beginner’s Manual”)
Charles Smith’s Home Page: http://freepages.health.rootsweb.com/~chousmith/
Cheryl Mathews-Prock’s Web Site: http://alsnetwork.com/ (“ALS Network”)
Chuck Hollenbach’s Home Page: http://members.aol.com/alspinpoint/index.html (“ALS PINpoint”)
Claire Culver’s Web Site: http://www.alssupport.org/ (“The ALS Support Network of Appalachia”)
Connie Zol’s Home Page: http://members.aol.com/zol588/
Craig Samples’ Home Page: http://members.aol.com/jcsam3/ (“Craig’s Place In Cyber Space”)

David Abell’s Home Page: http://hometown.aol.com/abe11/Davesindex.html
David Huff’s Home Page: http://communities.msn.com/PALSPeoplewithALS
Dean Chioles’ Home Page: http://www.shoptown.com/dean/Default.htm
Debbie Tope’s Web Site: http://www.focusonals.com/ (“Focus On ALS”)
Deliamc’s Home Page: http://www.geocities.com/HotSprings/2130/
Desmond Schulemann’s Home Page: http://www.fascinatinglife.com/ajournal.html (“An ALS Journal”)
Diane Huberty’s Home Page: http://home.att.net/~liveletdie5/ALS/ (“Nursing Tips for Living with ALS”)
Don Moore’s Home Page: http://members.aol.com/pjungles/PjunglesBegin.html
Donna Bohm’s Web Site: http://www.donnasjourneywithals.com/ (“Donna’s Journey With ALS”)
Doug Eshleman’s Web Site: http://www.lougehrigsdisease.net/ (“ALS Survival Guide”)
Doug Jacobson’s Home Page: http://home.earthlink.net/~jakesan/ (“Doug’s Beat ALS”)
Doug Satterlund’s Home Page: http://www.geocities.com/satterlu/

Edward Holmes’ Home Page: http://artists.mp3s.com/artists/129/....html?lang=eng

Gary Nicklas’ Home Page: http://www.netset.com/~gnicklas/
George Breedloves’ Home Page: http://home.rochester.rr.com/breedlove/george/index.htm
Grant Nicholas’ Web Site: http://www.glnicholas.com/ (“ALS Digest” Archives)
Greg Hicok’s Home Page: http://hometown.aol.com/palsfl41/home.htm (“Ride Across Michigan”)

Heidi Vance’s Web Site: http://www.als-curtisvancefoundation.org/ (“Curtis R. Vance Foundation”)
Henry Billen’s Web Site: http://www.nick-billen-alslougehrigs...oundation.org/
Holly Hufmeyer’s Home Page: http://members.aol.com/HollyHoffy/

Irene Poindexter’s Home Page: http://home.earthlink.net/~irenepoindexter/

Jason Becker’s Web Site: http://www.jasonbecker.com/
Jason Davis’ Web Site: http://www.death-dying.com/jason/ (“Jason’s Story”)
Jeff Pines’ Home Page: http://www.enteract.com/~jmp/index.html
Jerry Bergen’s Home Page: http://www.geocities.com/HotSprings/Falls/9451/ OR
http://www.55jer.com/home.htm
Joan Diez’s Home Page: http://www.geocities.com/SoHo/Opening/9238/
Joe Harris’ Web Site: http://www.joesalsadvocacy.com/ (“Joe’s Advocacy For PALS”)
John McDaniel’s Home Page: http://johnztown.tripod.com/johnstown/ (“John’s Town”)
Jon Phillips’s Home Page: http://members.aol.com/jphill1492/page/index.htm
Joyce Edelstein’s Web Site: http://www.helpjoyce*********/ (“Help Joyce Live”)
Judy Repass’ Home Page: http://members.aol.com/mrsre/index.html

Karl Boyken’s Home Page: http://www.avalon.net/~kboyken/als.html (“ALS Information”)
Katherine Stickney-Klaus’s Home Page: http://www.geocities.com/HotSprings/4340/ (“Picturesque PALS”)
Ken Stone’s Home Page: http://www.geocities.com/Heartland/Plains/1641/
Kenny Fullington’s Home Page: http://members.tripod.com/~kendeb/ (“The Life of a Firefighter”)
Kyle Hahn’s Web Site: http://www.kylehahn.com/ (“ALS Infobahn”)

Lane Jolliff’s Web Site: http://www.ljolliff.com (“Lanie’s Place”)
Leroy Kramer’s Home Page: http://home.pacbell.net/ranger-1/
Luther Conant’s Web Site: http://www.lutheroutloud.com/

Marcy Payne’s Web Site: http://www.everydayisprecious.com (“Everyday Is Precious”)
Mark Reiman’s Web Site: http://www.incrediblepeople.com/ (“Incredible People Magazine”)
Michael Zaslow’s Web Site: http://www.michaelzaslow.com/ (“Michael Zaslow’s ZazAngels”)
Michele Cornell’s Web Site: http://www.meetmyfriend.com/ (“Meet My Friend”)
Mikki Lawson’s Web Site: http://www.alstalk.org/ (“ALS Talk…”)

Paul Vineburg’s Home Page: http://www.users.bigpond.com/paulfran/Contents.htm (“Paul’s MND Pages”)

Richard Caughie’s Home Page: http://pweb.netcom.com/~rcaughie/pag..._home_page.htm
Rick Clark’s Home Page: http://home.earthlink.net/~clark524/ (“Rick Clark’s World”)
Robb Thompson’s Home Page:
http://www.voiceforjoanie.org/homepa.../thompson.html (“ALS Informer”)
Ron Crane’s Family Home Page: http://pta6000.pld.com/cranefam/ (“A Spiritual Resource”)
Ronnie Love’s Home Page: http://members.aol.com/Tlove607/index1.html (“Ron’s Place”)
Rose McKinley’s Web Pages: http://rosemck1.tripod.com/index-2.html OR
http://rosemck1.tripod.com/als.html

Sherry Ketzbeau’s Home Page: http://lindenwoods.tripod.com/index.html (“Lindenwood Acres”)
Steve Fowler’s Web Site: http://www.emdbd.com/stevefowler/
Steve Hutchins’ Home Page: http://www.angelfire.com/oh3/koolhutch/
Steve Weekes’ Home Page: http://www.geocities.com/sweekes99/ALStitle.html (“ALS & Associated Web Sites")
Steven Graham’s Home Page: http://members.tripod.com/~StevenGraham/

Tony Fuselier’s Home Page: http://www.geocities.com/tbear777000/index.html (“Tbear: Hunting ALS”)

Wayne Phillips’ Web Site: http://tpals.org/ (“Turning Points In ALS”)
William Kibbie’s Web Site: http://alsisnotfatal.com/ (“ALS Is Not Fatal”)


International PALS / CALS Personal Web Sites:

(Listed Alphabetically by Country)
Christine Magee’s Home Page: http://homepages.ihug.com.au/~magees/ (“Small’s Getaway” – Australia)
David Mackenzie’s Web Site: http://www.comingtolife.biz/ (Australia)
Jackie Williams’ Home Page: http://55jer.com/jackies%20page.htm (Birchip, Victoria, Australia)
John Graham’s Home Page: http://au.geocities.com/grahamjnjt/ (Sydney, Australia)
Keith Sunbeam’s Home Page: http://www.petrie.hotkey.net.au/~sunbeams/ (Australia)
Margit’s Internet Corner: http://mic.iinet.net.au (“Tools for the Motor Disabled” – Australia)
Robin Balsdon’s Home Page: http://www.users.bigpond.com/rbalsdon/index.html (“Enjoying Life” - Australia)
Stephen ("Mutley") Brown’s Home Page: http://members.tripod.com/~MNDMutley/index.html (Australia)
Steven Shackel’s Web Site: http://www.goulburn.net.au/~shack/ (Goulburn, Australia)

Irene Coutinho’s Home Page: http://www.webspace.com.br/acm/ (Brazil)

Chris Mann’s Home Page: http://ranger03.com/ALS.html (Calgary, Alberta, Canada)
George Goodwin’s Web Site: http://www.alsindependence.com/ (“ALS Independence” – Ontario, Canada)
Roger Poulin’s Home Page: http://pages.infinit.net/gagnonr/ (Quebec, Canada)

Birger Bergmann Jeppesen’s Home Page: http://home5.inet.tele.dk/bbj/als.htm (Odense, Denmark)
Jens Harhoff’s Home Page: http://home19.inet.tele.dk/joh_als/ (Denmark)
Tommy Pedersen’s Web Site: http://www.als-gruppen-vestjylland.dk/ (Denmark)

Jeannie Harrison’s Home Page:
http://uk.geocities.com/jeannie_25als@btinternet.com/ (“Jeannie’s Place” – England)

Jean-Marie Quiquempois’ Home Page: http://www.geocities.com/BourbonStreet/Delta/3573/ (France)

Renate Winke’s Home Page: http://pweb.de.uu.net/winke.ki/ (Germany)

Steve Killeen’s Home Page: http://www.iol.ie/~killeen/stevemnd/stevehom.htm (“IMNDA” – Ireland)

[BobbyB]

Moshe Zeevi’s Home Page: http://www.als-mnd-zeevi60minutesfilm.net/ (Israel)

Hitosi Nisio’s Home Page: http://www.horae.dti.ne.jp/~hnals/ALSweb/ (Japan)
Kaznao Mimaki’s Home Page: http://www2.ocn.ne.jp/~kazm/ (Japan)
Takeshi-Kamata’s Home Page: http://www.isn.ne.jp/~kamata/english/index.html (Japan)

Jeanet Vlist Kroft’s Home Page: http://home01.wxs.nl/~vlist008/frameset.html (Netherlands)

Aase Samsonsen’s Home Page: http://home.online.no/~aasamson/index.htm (Norway)
Per-Ivar Pettersen’s Home Page: http://www.sasdx.com (Norway)

Billy Currie’s Home Page: http://homepage.dtn.ntl.com/william.currie1/ (Glasgow, Scotland)
John Patterson’s Web Site: http://www.dochasfund.com/ (“The Dochas Fund” – Scotland)

Javier Ruiz Gimenez’s Home Page: http://bbs.seker.es/~adela (“ADELA” – Spain)

Rob Marshall’s Home Page:
http://homepage.ntlworld.com/rob.shaz/ (“Rob & Shaz’s Place” – Nottinghamshire, U.K.)



The following group of PALS / CALS Web Sites were in existence at one time, but now are
no longer valid. If you have any updated information on the following Web Sites, please
E-mail me at: sweekes99@yahoo.com

(Listed Alphabetically)
**ALS Trail Guide: http://pages.prodigy.net/dnd/ (Invalid)
**Barbara Keenan’s Home Page: http://homepages.which.net/~b.keenan/.html (Invalid)
**Bob Lee’s Web Site: http://aridewithareason.org/ (“A Ride With A Reason” – Invalid)
**Bob Perron’s Home Page: http://www.idir.net/~rlperron/als.htm (“ALS Magazine” – Invalid)
**Brent Dewar’s Home Page: http://www.cadvision.com/bdewar/ (Invalid)
**Dr. Charles Deevers’ Home Page: http://www.lifevictories.com/deevers/ (Invalid)
**Chris Davis’ Home Page: http://www.sfo.com/~hulaman/als.html (Invalid)
**Dave Mace’s Home Page: http://community-2.webtv.net/jdcane/MyHomePage/ (Invalid)
**David Mackenzie’s Home Page: http://www.iniaccess.net.au/~davidmac/ (Invalid)
**Deanna Hammond’s Web Site: http://www.beading4als.com/szw (“Beading 4 ALS” – Invalid)
**Diana’s Home Page: http://www.geocities.com/RainForest/2055/index.html (Invalid)
**Don Altier’s Home Page: http://home.earthlink.net/~alsfighter/index.html (Invalid)
**Jack Norton’s Home Page: http://pages.prodigy.com/ALSPROD/ (“ALS Advocacy” – Invalid)
(Note: Jack lost his battle with ALS in 1997)
**Jean Green’s Home Page: http://www.geocities.com/teamals/index.htm (“Team ALS” – Invalid)
(Note: Jean’s husband, Dave, lost his battle with ALS in July of 2002)
**Jim Compton’s Home Page: http://faculty-staff.ou.edu/C/Jimmie.D.Compton-1/ (Invalid)
**Jim Ritton’s Home Page: http://www.borg.com/~nlf/als/ (Invalid)
**Joe’s Home Page: http://www.homestead.com/joseph20000/front.html (Invalid)
**John McMullen’s Home Page: http://www.mindspring.com/~jmcmulln/als.html (Invalid)
**John Paterson’s Home Page: http://users.colloquium.co.uk/~ktravers/home_1.html (Invalid)
**Larry Carlson’s Home Page: http://home.talkcity.com/WorkoutPl/sunshines23/ (Invalid)
Pam’s Page: http://www0.delphi.com/family/pamals.html (Invalid)
Pam Carlson: http://members.delphi.com/pscarlson (Invalid)
**Leonard (Lenny) Brunner’s Home Page: http://home.talkcity.com/KarmaWay/leo-11/ (Invalid)
(Note: Lenny lost his battle with ALS on September 20, 2002)
Vicki’s Tribute to Lenny: http://expage.com/page/vickiscorner (Invalid)
**Lou Gehrig Tribute: http://msnhomepages.talkcity.com/Stu...oe/index1.html (Invalid)
**Marc Levison’s Home Page: http://home.talkcity.com/beanieblvd/ml60/ (Invalid)
**Marc Reynolds’ Home Page: http://www.execulink.com/~rreynold/ (Invalid)
**Marion Lippert’s Web Site: http://www.ldeem.com/ (Invalid)
**Mark Baird’s Home Page: http://www.cadvision.com/mbaird/ (Calgary, Alberta, Canada – Invalid)
(Note: Mark lost his battle with ALS in March of 2003)
**Merv Vindy’s Home Page: http://expage.com/THEmeger (Invalid)
**Mingo Montellano’s Home Page: http://home.talkcity.com/CarpoolLn/mingo4/index-3.html (Invalid)
**Paul’s Home Page: http://msnhomepages.talkcity.com/Sup...shimbleshanks/ (Invalid)
**Paul Johnson’s Home Page: http://home.earthlink.net/~alsalert/index.html (“ALS Alert” – Invalid)
(Note: Paul lost his battle with Lung Cancer on July 24, 2002)
**Richard Gelinas’ Home Page: http://home1.gte.net/cappanut/index.htm (Invalid)
**Robyn Bunce’s Web Site: http://www.robynsrace.com/Page_1x.htm (“Robyn’s Race 4 ALS” – Invalid)
**Roy Smith’s Home Page: http://www.iinet.com/users/royden/ (“The Mercury Connection” – Invalid)
**Russ Gamble’s Home Page: http://home.earthlink.net/~russgamble/ (“Lean On Jesus” – Invalid)
**Scott Dawson’s Home Page: http://www.interlog.com/~srdawson/alsintro.htm (Invalid)
**Stan Smith’s Home Page: http://www.scv.net/~stan/ (Invalid)
**Steve Holly’s Web Site: http://www.als-mnd.com OR (Invalid)
http://www.steveholly.com/ (Invalid)
(Note: Steve shutdown his Web Site in June of 2002 due to lack of funding)
**Sue Tufty’s Home Page: http://www.gothweb.co.uk/Tufty (Invalid)
**Tim Hawkins’ Home Page: http://timhawkins.homestead.com/untitled1.html (Invalid)
**Tom Brooks’ Web Site: http://www.tlbrooks.com/ (Invalid)
(Note: Tom lost his battle with ALS in July of 2004)


Eric Edney does not have a website yet, but he has managed to control the symptoms of his ALS.
For information about his progress and regimen you can E-mail him at:
GREDNEY@aol.com

Peter Ganzel’s Home Page – “A Potential Cause of ALS”
http://members.aol.com/pganzel/my.html
"A Potential Cause of ALS” by Peter Ganzel is worth reading.
Some of the ideas may initially appear unorthodox, but the article is well presented and
the results achieved by Peter are extremely impressive.
The E-mail address for Peter is:
Pganzel@aol.com


Compiled By: Steve Weekes ( sweekes99@yahoo.com )
http://www.geocities.com/sweekes99/ALS6.html

Background on ALS


Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s Disease, is a progressive, degenerative disease of the nervous system. ALS is within the group of diseases called motor neuron diseases (MND), in which specialized nerve cells that control movement of the voluntary muscles gradually cease functioning and die. These specialized nerve cells are called motor neurons. They carry impulses from the brain to the brainstem and spinal cord. The impulses are then carried to the muscles. The muscles respond to these impulses by contracting or relaxing, depending on the desired voluntary movement. In ALS and other motor neuron diseases, the muscle tissue deteriorates from a lack of stimulation by the nerve cells. This results in progressive weakness, atrophy, and often spasticity (excess muscle tone). In motor neuron disease, only the motor neurons are affected, therefore other neurons, such as the sensory neurons bringing information from the sense organs, remain intact and unaffected.

[Dina Scholtz]

ALSconnection at www.alsconnection.org is a patient driven registry that aims to collect data from persons with ALS (PALS). It is coordinated by Drs. Robert Miller, Jonathan Katz and Catherine Madison from the Forbes Norris MDA / ALS Research Center in San Francisco, California, a world leader in clinical ALS research.
The purposes are to learn more about the origin of ALS and to improve quality of care for people with this condition. Information provided to the registry will be used to evaluate variations in patient care and adherence to standards of care and to help foster ALS research.
We especially hope to learn about PALS who are not seen in larger ALS centers where data can be collected at the point of care. Through the internet we hope to reach more PALS in different regions.
We also hope to learn about the long-term experience with this disease. This will help us understand how to intervene more effectively. Therefore PALS who enter their data will be asked to update their data every 6 months.
We welcome your feedback and concerns about our project. While you are on-line we hope you will find valuable information on our site. We intend to update the contents and continue posting articles about different topics relevant to ALS. If there is a topic you would like to hear about, please let us know at scholtd@sutterhealth.org.
The ALSconnection team
www.alsconnection.org

[David Hosobuchi]

ALSconnection at www.alsconnection.org (http://www.alsconnection.org) is a patient driven registry that aims to collect data from persons with ALS (PALS). It is coordinated by Drs. Robert Miller, Jonathan Katz and Catherine Madison from the Forbes Norris MDA / ALS Research Center in San Francisco, California, a world leader in clinical ALS research.
The purposes are to learn more about the origin of ALS and to improve quality of care for people with this condition. Information provided to the registry will be used to evaluate variations in patient care and adherence to standards of care and to help foster ALS research.
We especially hope to learn about PALS who are not seen in larger ALS centers where data can be collected at the point of care. Through the internet we hope to reach more PALS in different regions.
We also hope to learn about the long-term experience with this disease. This will help us understand how to intervene more effectively. Therefore PALS who enter their data will be asked to update their data every 6 months.
We welcome your feedback and concerns about our project. While you are on-line we hope you will find valuable information on our site. We intend to update the contents and continue posting articles about different topics relevant to ALS. If there is a topic you would like to hear about, please let us know at scholtd@sutterhealth.org.
The ALSconnection team
www.alsconnection.org (http://www.alsconnection.org)

I spoke to Dina today on the phone, she expained to me the purpose of this site. as well as other programs they are interested in. I am very familiar with both the UCSF & California Pacific Medical Centers. They both have my highest respect.

I sincerely hope they can help the fight against ALS.

David

[BobbyB]

http://www.etriloquist.com/graphics/EtriloquistLogo.gif
http://www.etriloquist.com/


E-triloquisttm is a PC-based communication aid for a speech impaired person.
It serves as an electronic voice for those who can't speak on their own. :)

//////////////////////////////////////////////////////////////////////////////////////

http://www.aavans.com/images/top/top.jpg
http://www.aavans.com/

[Dina Scholtz]

Hi Booby:
I like to make you aware of www. ALSconnection.org. It provides informtion for people with ALS written by physicians and clinicians. It also has a registry part of the web-site.
Dina

[BobbyB]

i send invites to all pals to sign on the registry to come together and show we are here and here for all pals that cant be here because of als/mnd.

ALS/MND Registry
http://www.patientslikeme.com/registry

There are 751 PALS in the registry who recently joined us.
there are 1194 pals in patientslikeme so please check to see if you are signed on the registry.

PatientsLikeMe members, want to see your name listed here? Just enable your Public Registry permission and fill out your first and last names!

ALS News & Research
*********************************com/forumdisplay.php?f=6

[BobbyB]

http://www.alsmatters.org/distribution/styles/jomsilver/imageset/logo_joomla.png


http://www.alsmatters.org/


ALSMatters is dedicated to raising awareness and educating the public on amyotrophic lateral sclerosis.