Not so happy...

[Paul Wicks]

What happened to the money we donated last time this happened? I thought the entire point was that the extra funds would prevent anything like this from happening again. I also seem to remember a promise that everyone who donated would be personally thanked, which also didn't happen (or at least not to me). When BT was run as a free service then I can understand that you had no obligation to keep the system running or really to offer any kind of customer service, it was all on your terms. But once people paid to restore the community, we became stakeholders here, and frankly I find the lack of communication over the past 2 months beyond discourteous.

[pam]

hi Paul.
I give you alot of credit for asking your questions openly and honestly. I see that many have read but none have replied. I had second thoughts myself but.. I guess I am hoping that at least one thread will be allowed where we can discuss our concerns as long as we do so respectfully.
A ton of issues were brought up at the alternate forum as well as some really good suggestions. Hopefully some of those can be discussed as well.

I think alot of folks, myself included, are kind of walking on eggshells waiting to see if things are going to be exactly as they were before the crash, or if some changes might be made.

I hope something positive comes out of all this. Alot of folks are feeling hurt.. maybe this could be a place to share those feelings as long as it doesnt come to the level of personal attacks. ... Maybe ?

take care,
Pam

[John Lester]

I know the downtime was far longer than it should have been. And because of travel and my job, I was incognito far longer than I should have been. I sincerely apologize for that.

I'm very open to suggestions and feedback here. I'm truly sorry things were down for as long as they were. The fact of the matter is that, since leaving MGH, BT is something I can only work on in my "spare" time. And my current job keep me busier than I have ever been in my life (working at a startup).

Funds received from donations have always been used to maintain the server (it has a dedicated T1, and I also need to pay colo fees), and to pay for software (such as the update I just installed for the OS and vBulletin). About 99% of the funds for maintaining BrainTalk come from the Google ads, too. All the funds are essential in paying the colo rent, electricity, T1, etc. I don't get any income from BT, and neither do any of the moderators. It's all volunteer work.

I know it was lousy things were down as long as they were. I'm doing my best to make good on my promise to keep BT up. The crash was a worst-case scenario, involving tons of corrupted data and total reinstalls of everything on the server. Things seem good again so far, so I'm keeping my fingers crosses.

Take care,
-John

[Lara]

I've removed my message to another area.
I obviously put my question about the BrainTalk Domain in the wrong spot.

[~Pansy~]

:o

My goodness, I am blushing way over here on the West Coast!

John ~ I, too, have made donations to BT, but never for a minute ever doubted you or questioned your motives or ethics.

I remember a day many years ago, before BT accepted donations, when BT needed a major overhaul which required thousands of dollars. Those dollars came out of your personal savings & hard earned money. Just as it did when you created BT.

I am forever grateful for what you have done for us... creating BT, providing the majority of the financing from BT's inception, and your personal "spare" time in keeping it up for more than a decade... for those of us who love, need and depend on it.

You are my hero! I doubt I've said that enough in the last 10 years.

~Pansy~

[graymalkin]

Thank you, John. I for one understand, and accept the apology.

Be well,

graymalkin

[pam]

John, thanks so much for your reply.

I'm very open to suggestions and feedback here.
One thing that has always concerned me here has been that the moderators were not really seen as people, they were numbers, even though they were also regular posters here on the forums. I was always concerned that if I hit that little "report this post' button, the report could very well be going to the person who wrote the post. At the same time, If I had been a moderator and wanted to post about an issue under my forum name, I cannot imagine how hard it would have been to have to be conscious about my wording and my writing style, making sure I didnt somehow give myself away so I could be recognized when I posted as a moderator. Would it really be a huge problem if you had open moderation, where real usernames were used and we knew who the moderators were ? Obviously I dont know all the behind the scenes stuff, but it seems like people appreciate openness and honesty and maybe more respect would be shown that way.

Just my half a cent..
Pam

[LIZARD]

Pansy, hon', take a bow! :D I could not have said that any better myself. I doubt that any of us has a clue as to what goes into managing a site such as BT, with its many forums and thousands of members. This is not John's real job, and I think he deserves nothing but our endless gratitude for managing this site and listening to all our b!tching. Let's all be mindful of the effort he has put into this site and honoring our concerns and requests. I can't remember life before BT, and I owe that to him and all he does for us.


LIZARD :)

[SniffyNose]

Mr Lester,

I feel like there is an elephant in the room that people are avoiding and trying their best to ignore. However, this is rather typical of the stuff that is pulled here and really should not surprise me. I will say that you are not fooling everyone and it feels like you are not being completely honest with people. I have in good faith dontated money to you in the past, Sir. However, I will not in the future because quite frankly I do not trust you. The only reason I am here is because I have bonds with people that have been forged. I do realize that by voicing my opinion to you that I do run the risk of being banned. However, I will accept that risk in order to be able to say my point of view. Thank you for finally getting around to getting the site back up. I have said my two cents and am prepared for the banning that will likely ensue.

[ASkicker]

SniffyNose,

You have got to be kidding me. You actually think John has not been "honest" in the way he runs BrainTalk and that you don't trust him because of the stuff that "has been pulled here." What could you possibly be talking about that was "pulled here?" Implied in your comment is the idea that you think John--or someone--is making money off of BrainTalk. I'm sorry, that idea is laughable. Have you ever run a web site of this size and nature? Do you have any idea how much servers, software, bandwidth, and a T1 line cost? I'm guessing you don't, or you would never had made the post you did. It is far, far more expensive than almost everyone thinks, and with the small number of donations that I imagine John takes in, I seriously doubt that there is a penny to be made here. And, as another poster pointed out, before he decided that he finally had to ask for donations because the site--and the expenses related to it--had grown so much, John put thousands of HIS OWN dollars into fixing and operating this site.

Also, along similar lines, do you have ANY idea what it takes to keep a site like this running smoothly? What with the thousands of registered users, hundreds of people posting each hour, and the chat rooms, there are likely thousands of things that can go wrong at any time, even with up-to-date servers and software. That doesn't even begin to scratch the surface, however. Keeping the forums spam free (spam is dealt with almost instantly if it sneaks through here, it seems), keeping them safe from the malicious attacks of hackers who have nothing better to do than to waste time trying to bring sites down for the sake of bringing them down, keeping up with the flame wars that constantly sprout up in the forums, and keeping up with the troll users who come here just to make other people miserable is, quite simply, a full-time job. If this site WAS run as a commercial endeavor, I guarantee you that there would be an IT department of several people working full-time to do all the things that John does in his SPARE TIME after working a full-time job. Think you could handle that role, Sniffy? I kind of doubt it. In just one post, you have made it clear that you are the kind of individual who expects perfection out of others, especially once you have provided any of your own cash to help those others keep the site running.

And about that cash. Umm, the money you and others offered up was a donation, not a membership fee. No one made you make that donation, and if you already had suspicions about John and the site, which it sounds as if you definitely did, why did you even make said donation? I can guess why--because you feel that if you donated money, you get the right to b---- as much as you want about what goes on here. Well, honestly, because John runs this as an open community, we can all b---- about things here as much as we want! When you make a donation, you are making a gift, and to make that gift with strings clearly attached to it is without question an extremely classless move.

I don't want any of the wrong conclusions drawn here either. I am not, nor have I ever been, a moderator at this site nor am I affiliated (or friends with) John Lester or anyone else involved with BrainTalk. In fact, this is the first time I have posted here in probably two years, maybe longer. I used to post regularly under the user name "wolverinefan" (or maybe it was just "wolverine"--can't really remember it has been so long) in the Chronic Pain forum, but I stopped that a couple years ago when I began spending less time online and also spending what time I was online at a forum that is specifically for my disease (instead of at this general forum). No, I am just an average user here who has long admired the blood, sweat, and tears that John has put into this place. With all the crap he took from MassGen at one point, plus all the nastiness that spammers and others direct toward forums these days, I find it amazing that John has kept this place going as long as he has. To come back after the break and read the veiled accusations toward John that make up the core of your post was simply too much for me to take. If, as you say, the only reason you make such a supreme sacrifice to stay here is because you can stay in touch with a few friends, perhaps it would be best if you found another way to stay in touch with those friends so that you didn't have to post at this site run by criminals (which is pretty much what you are saying). That would probably be best for everyone. Oh, but I wouldn't worry about getting banned, quite honestly--I doubt that John will lose that much sleep over your post or that he cares if you want to voice your opinion. And, as harshly as I have criticized your post, that does not mean that I feel you should not have the right to make that post. After all, it is just your opinion, just as this post is my opinion, and you are entitled to it. That said, get ready for the storm of posts taking you to task for the content of that opinion, as I think you'll find that most folks here are a bit more understanding and a bit more tolerant of the problems that John faces in running this site, so much so that they don't feel the need to immediately jump in with both fists flying the day the site goes back up. I know that it is highly unlikely that you will change your opinion toward John and this site, and that my post will fall on deaf ears, but that's ok--it made me feel better to type it out.

[Wittesea*]

John,

Is it possible to find volunteers in your area who would be willing to help fix any future glitches to the hardware/software if they happen during another busy time for you?

There are so so so many people who rely on BT, so I would hope that something can be done to minimize future downtime.

[Paul Wicks]

To clarify, I do not have experience of running Braintalk but I do have 4 years experience of running BUILD-UK, a web forum for people with ALS/MND.

When we were recently shut down for two days by a malicious DOS of attack we used email and posts in other forums to inform members of the problem and keep them up to date about our progress. We also made sure we signposted other forums where people could talk to one another in the meantime. Instead of a static message it would have been useful to have had a list of other forums for the various neurological conditions catered for by Braintalk.

And ASkicker I take exception to the suggestion that by bringing up the issue of donations I am acting without class. My understanding was that there was a type of social contract in there, non-binding as it may be: "the forum outage in 2005 was very distressing, please help provide funds so we can prevent it from ever happening again". It was not: "please provide funds for the day-to-day running of the site". It was new capital to buy backup systems, not to cover overheads. If I'm misremembering that or I misunderstood it then some clarification would be welcome.

Of course I am grateful to John Lester on behalf of many many people who have used the forums over the years. But sometimes being part of a community also includes speaking about some hard truths. If Braintalk is going to rebuild trust there needs to be a rethink of a few things. I should think Moderation is high on that list.

[Joey54]

John,

You have done a wonderful job and never did I doubt that the forum would return … never … I have given to BT and asked for no card but I got one …

I have never felt that you were obligated to maintain this forum but you have for your own reasons with dedication towards helping others … anyone in need …

I addressed your envelope for my donation several days ago & was waiting to see if it was the correct address before I mailed it, as I knew you were running hard …

I spent years without a diagnosis, without income or benefits and only because you gave did I receive the happiness I now enjoy.

When I see that the address has not changed I will send my donation … so you can recover some of what you spent out of pocket.

I have been here since 99 and all of the upgrades have been expensive and now we have a Rolls Royce.

Be safe & get some rest … I am going to leave in a few minutes to get a caudal & facet injection … thank you!

Joey54 :)

[TexRose]

[QUOTE=John Lester;396]
I'm very open to suggestions and feedback here.


Good morning JL and all.

I have been with MGH/BT forever. :p (new name as I had problems logging in) Yes, I know some people eventually got bent out of shape when no word on BT or JL's fate. I personally thought you were deathly sick and could not post to update us. I sent an e-mail offering $$$ and a collection of $$$ if needed for equipment to get BT back up. Have no idea if my e-mail was ever received.

DocJohn (BT2) came to the rescue and opened his doors for those who needed a place to go and a place to vent in Forum Feedback. Yes, you are still loved JL and rightfully so by still many.

One of the biggest gripes on BT2 Forum Feedback was the Mods on BT1. I know this is all volunteer work but would you please make available the names of the Mods on BT1 like BT2 has done?

I am glad to be back and I speak for many.

TR

[Bernard]

Instead of a static message it would have been useful to have had a list of other forums for the various neurological conditions catered for by Braintalk.

I sent John an email suggesting this about a month ago (more or less).

[clouds z]

i wonder if all he posts would be preserved better at

www.xsorbit.com

[laurensmom]

I never would have met some very special friends who are going through some of the same things my children are if not for someone recommending me to braintalk in a hospital corridor (thanks Kathleen) about 4 years ago......John Lester has donated his time and his knowlege to keep us all together and informed about current treatments for our precious loved ones and up to date on current treatments, etc.

John Lester, thank you for your selfless acts and your dedication to the Braintalk Communities....

Hugs,

Debi & Lauren

[oh_snap]

SniffyNose,

You have got to be kidding me. You actually think John has not been "honest" in the way he runs BrainTalk and that you don't trust him because of the stuff that "has been pulled here." What could you possibly be talking about that was "pulled here?" Implied in your comment is the idea that you think John--or someone--is making money off of BrainTalk. I'm sorry, that idea is laughable. Have you ever run a web site of this size and nature? Do you have any idea how much servers, software, bandwidth, and a T1 line cost? I'm guessing you don't, or you would never had made the post you did. It is far, far more expensive than almost everyone thinks, and with the small number of donations that I imagine John takes in, I seriously doubt that there is a penny to be made here. And, as another poster pointed out, before he decided that he finally had to ask for donations because the site--and the expenses related to it--had grown so much, John put thousands of HIS OWN dollars into fixing and operating this site.

Also, along similar lines, do you have ANY idea what it takes to keep a site like this running smoothly? What with the thousands of registered users, hundreds of people posting each hour, and the chat rooms, there are likely thousands of things that can go wrong at any time, even with up-to-date servers and software. That doesn't even begin to scratch the surface, however. Keeping the forums spam free (spam is dealt with almost instantly if it sneaks through here, it seems), keeping them safe from the malicious attacks of hackers who have nothing better to do than to waste time trying to bring sites down for the sake of bringing them down, keeping up with the flame wars that constantly sprout up in the forums, and keeping up with the troll users who come here just to make other people miserable is, quite simply, a full-time job. If this site WAS run as a commercial endeavor, I guarantee you that there would be an IT department of several people working full-time to do all the things that John does in his SPARE TIME after working a full-time job. Think you could handle that role, Sniffy? I kind of doubt it. In just one post, you have made it clear that you are the kind of individual who expects perfection out of others, especially once you have provided any of your own cash to help those others keep the site running.

And about that cash. Umm, the money you and others offered up was a donation, not a membership fee. No one made you make that donation, and if you already had suspicions about John and the site, which it sounds as if you definitely did, why did you even make said donation? I can guess why--because you feel that if you donated money, you get the right to b---- as much as you want about what goes on here. Well, honestly, because John runs this as an open community, we can all b---- about things here as much as we want! When you make a donation, you are making a gift, and to make that gift with strings clearly attached to it is without question an extremely classless move.

I don't want any of the wrong conclusions drawn here either. I am not, nor have I ever been, a moderator at this site nor am I affiliated (or friends with) John Lester or anyone else involved with BrainTalk. In fact, this is the first time I have posted here in probably two years, maybe longer. I used to post regularly under the user name "wolverinefan" (or maybe it was just "wolverine"--can't really remember it has been so long) in the Chronic Pain forum, but I stopped that a couple years ago when I began spending less time online and also spending what time I was online at a forum that is specifically for my disease (instead of at this general forum). No, I am just an average user here who has long admired the blood, sweat, and tears that John has put into this place. With all the crap he took from MassGen at one point, plus all the nastiness that spammers and others direct toward forums these days, I find it amazing that John has kept this place going as long as he has. To come back after the break and read the veiled accusations toward John that make up the core of your post was simply too much for me to take. If, as you say, the only reason you make such a supreme sacrifice to stay here is because you can stay in touch with a few friends, perhaps it would be best if you found another way to stay in touch with those friends so that you didn't have to post at this site run by criminals (which is pretty much what you are saying). That would probably be best for everyone. Oh, but I wouldn't worry about getting banned, quite honestly--I doubt that John will lose that much sleep over your post or that he cares if you want to voice your opinion. And, as harshly as I have criticized your post, that does not mean that I feel you should not have the right to make that post. After all, it is just your opinion, just as this post is my opinion, and you are entitled to it. That said, get ready for the storm of posts taking you to task for the content of that opinion, as I think you'll find that most folks here are a bit more understanding and a bit more tolerant of the problems that John faces in running this site, so much so that they don't feel the need to immediately jump in with both fists flying the day the site goes back up. I know that it is highly unlikely that you will change your opinion toward John and this site, and that my post will fall on deaf ears, but that's ok--it made me feel better to type it out.

I may not have donated to BT, but I have helped other BT members [over time] as best I could.

With those "donations" did not come a list of "do's and don'ts" as to how the money should be spent. It was given in the hopes that it would end up right where it should be...

I donated...and hoped for the best...but, that's just how I do things. I can completely understand the hours that are required by a start-up company, and that turning over the reigns of BT may not have been a possibility at the time.

I am completely astonished that some are putting the bar so high [for jlester].

For those that are so completely pissed off, why not take advantage of the "other site"? Can't we put this one issue to bed?:eek:

Instead of lamenting...why not offer positive ideas, as JL has requested. For those that no longer trust him...move on for goodness sake. Please.

[maridane]

MOVE ON! Oh yea of little faith. I knew this site would be back up and running and I also expected it to take awhile, maybe not as long as it did, but hey, that's ok. It is back up and J.L. has done a fine job as always.

John explained to us in his update that his work had him covering a lot of territory and I for one understood and waited patiently, so if you can not offer positive feedback and all you want to do is gripe, complain, badger and belittle then by all means MOVE ON! Get over yourself. There are a great many people who have donated so that this site can continue and I don't know how anyone could expect or even think that they were entitled to some kind of special treatment for their donation.

That said, I am moving on. On to all the other forums I posted to regularly to let my friends know that I am ok and to make sure that they are ok. I have better things to do than spout some imagined slight and distrust.

Thanks John, you are the best!
Marilyn

[Kamie]

The concerns of Paul_W are valid and has some good constructive criticism. There is not a need to bash him or call him names for voicing his opinion.

Instead of burrying your head in the sand, why not listen to what he has to say?

[Matt A]

SniffyNose doesn't trust John. Paul doesn't like the way the money was used, moderators, or the lack of updates.

So what? Why jump on them? I trust John, I don't care how the money is used, and moderators don't bother me in the least. I'm just happy to be back. No offense guys, but it really doesn't matter to me how they feel about this place. Why does it bother you so much?

[jcc]

Well... I have just a few things to say, for what it's worth.

We all base our opinions upon our individual experiences here, and our individual needs, and our individual points of view.

Good, Bad, Indifferent. Some have no complaints, some have valid complaints, some have invalid complaints, some have valid concerns, some just like to join the crowd...good or bad, and some live to cause trouble.

I miss the data, too, and hope it can be restored. I agree that this forum stood above many others because if offered not only support, but a great wealth of information. Not everyone agrees that research and medical information belongs here, though, and sadly I've seen many a problem caused by the "support only please" vs. "information givers and seekers" clash. Personally, I think they go together like bread and butter, but not all will agree with that.

In any case, I think we've learned that we can't necessarily depend on the data being preserved here and that those of us who feel it is important need to find alternatives for safeguarding the data we've collected. That is not a judgemental statement, but just the way it is.

JL, if you are reading any of this, I very much hope you will respond to some of the valid concerns expressed by some longstanding and valued members. I sure don't expect you to put yourself out as a target, but I hope you will respond to some of these concerns privately, or make a few statements that generally cover the areas of concern. Communication is a real issue here; perhaps the biggest issue.

I have just a few concerns myself, which I won't publicly air. I'll try another approach. If you are interested in hearing them...just ask me. I appreciate that you have gotten things up and running again here to accomodate all the members who really depend on BrainTalk.

I found answers to all of my family's health problems here over six years, and have made many special friends. For that, I am forever grateful.

Cara

[mrsdoubtfyre]

I'd like to join this thread, with the qualification that I am not a good writer,
not good at forming words from feelings. (I think mostly visually).

Cara said it very well, and echos alot of my feelings too.

I am glad this venue returned, I suspected it would. And I have read many other peoples' posts here and elsewhere, on various points of view.

I personally can "take" rules. Most people do not live within the number of rules I
have to follow in my own job.
I have State Laws, Federal Laws, DEA regulations, inventory laws, insurance restrictions/frustrations, employer rules/regulations, the list seems endless.
In order to function, and effect my profession, I have to come to terms with alot of rules. I have learned to live that way, and I can accept this forum and its administration in the same fashion.

I may not agree with something, but usually I can find a way to live with it.
I don't believe it is my place or others here to question what should happen here. After 10 yrs John has proprietary claims, and creative control ultimately.
That is just the way it is. (for me at least).

Everyone's personality is different. So their experiences here will all be different, as pertains rules and administration here.

I too, have made very special friendships here, met alot of people, and have felt very satisfied with the format here. I send many patients who have
frustrations with their treatments to Braintalk,to the members of all the boards who work so hard to help and bring information that helpsothers
deal with difficult medical problems.

I am very worried about the retrieval of the data base. Expecting people to find past posts on Google, is not a clear solution. Often the caches only show one page, out of a long thread. The abbreviated links do not connect. Many of my patients are not computer savvy and even find coming here difficult. To retrieve caches is beyond the capabilities of many.

This database is unique, and has been mentioned on this thread and others recently on FF. I am not worried about MY posts...I have saved them....but I will admit I use Braintalk as a resource in my own profession. I have learned perhaps MORE than given of myself here, from other posters, on all the forums.

I suspect that retrieval of the database is a huge labor intensive task, and perhaps John, you don't have time for that. But even if it is done slowly,
piecemeal, it would be a tremendous boon for the public and the members here.

Thank you, John, and the other admins here, for returning. I hope to see more of the great Braintalk, that we had before this event.

Sincerely,

[LizaJane]

I loved this community, and especially the amount of information which was amassed and stored here. I loved that all neuro disorders were represented.

But here we are---there are at least 3 or 4 threads in forum feedback which speak of the same issues: What happened to the data, will it be better safeguarded going forward; will John Lester be more transparent going forward; how was money used that was donated; and can we exist on more than one forum?

I've posted in several places at this point, and am not sure where to put my thoughts anymore. So, here goes:

1. I look daily to see if JL is posting at all on the board here, and he is not. When it is so clear that we all felt hurt by his lack of communication, one would think a compassionate CEO would try to rectify this and communicate.
This disappoints me greatly.

2. John has not addressed questions which people have asked which do, indeed, deserve an answer. I for one do really want to know what happened to the money we all donated when the servers crashed last. Nonprofits are supposed to have open balance sheets.

3. I think the idea of using two bulletin boards is not practical for many of us. I am not homebound and hold a full time job, in addition to trying to take care of my health needs. I don't want to spend more time at the computer than I need to. I'd like one place to post and have friendships. So it's important to me where everyone ends up--I want to post on the board with all the friends I've come to care for and respect over the many years I've been posting.

I'm extremely disappointed at this point that braintalk is back, strangely enough, as we all seemed to be congregating at BT2, which seemed to be taking a form which would be more transparent than OBT. This just gives me tsurus.

4. I just read a great article on apologies and mistakes, and the value of the form of an apology. When people are hurt by someone else's mistake, it is a humiliating experiencing with a breach in trust. For an apology to be meaningful, it must not be an "I'm sorry", which is a quick expression of compassion without responsibility, but needs to be a statement which takes responsibility, asks for forgiveness, and promises atonement---atonement meaning actions which will do two things, first, empower the victim of the mistake by producing change in the perpetuator, and second, demonstrate that all actions possible are being taken to prevent a repeat. I really would like to see this, and I don't think I will.

It was a great little article, emphasizing the difference between saying "I apologize" and saying "I'm sorry". I don't really think we've heard the former. In fact, I'm feelinlg so strongly about this as I write, that I think I'm going to place it in its own thread. Forgive my perseveration!

LizaJane

[SalpalSally]

It was a great little article, emphasizing the difference between saying "I apologize" and saying "I'm sorry". I don't really think we've heard the former. In fact, I'm feelinlg so strongly about this as I write, that I think I'm going to place it in its own thread. Forgive my perseveration!

LizaJane

Please see below, Lisa.:)

I know the downtime was far longer than it should have been. And because of travel and my job, I was incognito far longer than I should have been. I sincerely apologize for that.

[SalpalSally]

I truly love you JL. You are #1 in my book. I left BT, for the most part over one year ago, for health reasons.

I could not take the stress of the constantly being stalked by the Mods.:eek: We had a lovely little OT "curmudgeons corner" thread which was very popular with most everyone in the MS forum. It was fun, it was informative, and, most of all, it was a place to get all or our gripes out to discuss, and laugh about them. Every chance the Mods got, one Mod expecially, I think, would rain on our parade, with snide comments, and personal PMs to warn us.:rolleyes:

After I left, I came back and donated big bucks to your plea for funds, to help You and the BT community. I received no thanks from you, and wondered why, but held no grudge. I was happy to see BT back up and running. Many so depended on BT, and I'm happy to have played a small part n that.

My request, John, is simple and echoes many of the other's here. "Please consider having you Mods open, accountable, and part of our community."

Thanks Dahlink,

Sally

[ConnersMom]

I want to thank John for restoring the forums. For those who feel their donations have been 'misused', i agree with other posters who have said you didn't have a contract and weren't guaranteed goods or services. That's why it's called a DONATION. I have contributed to BT because these forums are important to me and the people I've met here are important to me, and the good work that is done here makes me proud to be a member.

I donate to a lot of good causes. When i donate to the United Way or the American Cancer Society, they are not accountable to me to tell me how they spent my $100 dollars. Nor do I get any personal gain from those donations, i simply donate because I care. When I donate to BT, I do get something personal, the knowledge and support of a huge group of virtual friends and experts.

I hope that users who want to stay here and benefit will, and those that don't like or trust the site anymore, will leave peacefully.

Karen

[Linda25]

I want to THANK John Lester for restoring BT and for ALL of the hard work he has selflessly devoted over the past - 10 years???? I became a member in '96 (I think - excuse the poor memory - topomax)- a long time in any case.

I can't believe some of the pettiness here, especially the bit about thank you notes and transparency.

BT has been an awesome gift to many folks and I greatly appreciate it. Is it perfect? NO, but what organization, non-profit or major corporation is?

Websites like BT and all the computer programming and hardware upkeep that goes with it take HOURS/DAYS/WEEKS of painstaking work to maintain, and plenty of money to keep going. My husband is a computer programmer and designs his own hardware so I DO know what I'm talking about.

In all my years at BT I don't think I've ever seen someone banned who I didn't believe deserved it, and in fact there have been many folks who really overstayed their welcome, but were allowed to stay on anyway. An unmoderated board can quickly turn into a nightmare. I believe the TOS are fair and do not favor individuals. Moderators are human beings and do make mistakes, but I believe they are making a good faith effort to be fair.

If people are so unhappy here, I wish they would go to a different board, so we don't have to listen to their whining. Some folks have to grind the ax for such a long time that all that's left is a toothpick.

sorry to be so contrary, but it all gets very old - especially in light of the loving gift we have been given- for FREE.

Thanks for being here

Linda25

[mmcc53]

Thank you again for restoring the forums. As to the critisisms:

1. When you give money to charity you frequently get nothing personal out of the donation. Here you do. I suggest that those of you who are sorry you donated post the amount you donated and the number of hours you enjoyed Braintalk over the years. In my case it is about 1 cent an hour. If you don't want to donate, then don't.

If what you want is a refund and to leave Braintalk, post how much money you donated and I will be one, probably of many, who will be glad to contribute if it will stop the complaining.

2. JL DONATES HIS TIME AND EFFORT. When someone does that the appropriate response is "thank you," not a stream of complaints.

3. As to the moderators - during the time BT was down, I joined other forums and learned a lot about moderaters.

First I HATE unmoderated forums - they open the door to personal ugly attacks, spamming, obscenity and stupidity. Individuals are able to dominate those forums to the point they are unpleasant to belong to.

I also do not like forums where the moderators end threads for no reason other than that they do not agree or arbitrarily decide a posting has gone on for too long. Those seem to be ones where the moderators are not anonymous and are heavily involved in the postings.

I have changed my mind about the BT rule against discussing other forums. I used to not like that rule, but now that I have seen how one other forums ugly, personal attacks are permitted because they are about other forums, I wholeheartedly support the BT rule.

I like the BT (and one other forum's) method of moderating. Please keep it up. I want to belong to a forum where personal attacks are not permitted, obscenity is not permitted, etc. I want people who violate the rules banned.

The one suggestion I would make to improve moderating - when something violates the rules or a thread is closed, please don't delete it. Deleting the name of the person being attacked or something similar is appropriate, but I think there would be fewer hard feelings if people could read the posting that resulted in a banning (even if you don't say "Sam has been banned.").

Keep up the good work, moderators, and JL - most of us appreciate your efforts.

[Meg1]

I agree with everything mmc53 said and wish I had said it. I am absolutely horrified at the sense of entitlement shown by some posters here.

[Diandra]

Thank you John. I know you are doing your level best and I appreciate that. I have donated money and will continue to do so. You are giving us a valuable and free service here and obviously, from some of the comments, there are folks here who still just don't get that. Some seem to adopt a lifestyle of whining and complaining and I try to understand it by thinking they are very unwell or unhappy and need to direct that somewhere and often times it comes here. Please deflect that negativity and know there so many here who are glad to have Braintalk back.....thanks for your time and effort. It is nice to be back and to be able to connect with those we have lost contact with.

All my best to you John,
Diandra

[pam]

I also do not like forums where the moderators end threads for no reason other than that they do not agree or arbitrarily decide a posting has gone on for too long. Those seem to be ones where the moderators are not anonymous and are heavily involved in the postings.
.

The moderators on this forum may have anonymous titles, but they are definitely very heavily involved in the postings under their regular forum names. This is where I see the problem. You could be having a discussion with "username-x" and it could become controversial. Did you make username-x mad ? Did you know that "username-x" who posts very frequently, is also moderator 2 ?

Do you see the potential for problems there ? Yeah moderators are supposed to put aside their personal feelings but c'mon.. they are human. I know that if someone made some really hurtful remarks toward me it might take a while to let that go and not let it influence my decisions.

Oh and by the way, I am not all that unwell, definitely not unhappy, not whining and not complaining, just responding to this comment..

I'm very open to suggestions and feedback here.
-John
Most of the suggestions I have seen here have been made with respect.. most of them.

[Linda25]

Thanks Meg1 - "Entitlement" is the word I was trying to think of - I don't understand how some people get off thinking that they are owed something????

[suede]

Huh. I try to stay away from threads such as this as I seem to always open mouth and insert foot.
I want to thank JL also for all he has done and is doing, Know it is very appreciated, I'm sure with all your life experience your aware that you can't please everyone.
I have not had any problems with any members of this forum or mods for that matter.
I do want to point out though that I have seen where others have gotten banned just for mentioning the name of a person that had been banned and they had not known it, I believe that is going over and beyond, as unless you ck out all the members to make sure no one you want to post to has not been banned you may not know.
I have talked to a couple of these people and know how very deeply they have been hurt and confused as to getting baned over something like this.
I understand completly that there have to be rules and people to enforce them when there is this many people expressing so many issues as is here.
I however believe that there has to be a better way of doing so.
suede

[Cry Tears]

JL...thanks mucho for working so hard and getting us back up and running again.
You can count on my monthly donation. $$$$
I understand the cost involved of keeping such equipment running.
My husband engineers 911 systems...when there's a crash, its always a doozy!
And to learn you've done this as an unpaid side line....wow!
Then to read you put in your own money to get this going in the begining...
I do thank you for all you've done.
Finding Braintalks 2 years ago saved my life. I would be dead had I not found the info regarding B12...
I was in the late stages of deficiency with spinal cord involvment.
I owe BT and all who are involved a heart felt thanks.
So you can count on my few dollars!
Blessings, Cheryl
PS....Anyone in this above threads....If you donated money to BT and feel JL misused the money....perhaps you should get a refund in exchange for your "privelage" of posting here? Just a thought.

[TexRose]

The moderators on this forum may have anonymous titles, but they are definitely very heavily involved in the postings under their regular forum names. This is where I see the problem. You could be having a discussion with "username-x" and it could become controversial. Did you make username-x mad ? Did you know that "username-x" who posts very frequently, is also moderator 2 ? Do you see the potential for problems there ? Yeah moderators are supposed to put aside their personal feelings but c'mon.. they are human. I know that if someone made some really hurtful remarks toward me it might take a while to let that go and not let it influence my decisions. Oh and by the way, I am not all that unwell, definitely not unhappy, not whining and not complaining, just responding to this comment..
Most of the suggestions I have seen here have been made with respect.. most of them.

I posted earlier with total respect for JL. JL asked that we post our questions/comments to him as he welcomes them all. I did just that but no reply. My suggestion was to make the Moderators KNOWN to all members. I saw what happened in the OBT and making known the Moderators can eliminate problems and make members more comfortable in writing them. You certainly do not want to write a MOD to complain/question something when you may be complaining to a person who is the issue. Do you think that MOD would do anything about it? :o I think JL wants BT to run smoothly and fairly. This is a good way, JL. You are a decent man and I know you will eventually listen to this request that many of us has voiced. Thanks TR

[dahlek]

Can you spend, at least 35 seconds, to say: Yeah I'm reading, I'm Hearing, I'm Seeing....and explain in 20 words or less that YOU are doing X...Y & Z? Isn't there anyone on your board who can function and provide a very caring membership w/the trifling details? I am sure that a heap is going on, but, can you give us clues as to the who/s what/s?

The beauty of BT is that it does not...at least publicly on the 'boards' live under rocks. It does seem tho, that rite now the administrative functions DO live under same rocks. I myself would NOT have made a donation [and having funded non-profits in a prior life] had I not scrutinized your financial reports posted prior to my donation...Believe me guys...I can sniff out fudgy spending a mile away. I gave, as I could find nothing stinky, kinky or even hinky. I hoped BT would/could grow, change and become even MORE legitimate and valued to US the users and to the vicarious medicos who might actually take the time to read about us and HEAR us and our plights.

I believe that during the prolonged absence...some of the members feel abandoned, betrayed, alienated...John, you cannot do it all on your own...not for the place a size of this. PUT YOUR BOARD TO FRICKING WORK! I believe the Harvard Business School still has the axiom for board members: GIVE, GO OR GET OFF!.. Has the Bus School changed that much over the years? Especially as it relates to Non-Profits? We all/at least many of us want to do/give/help in whatever ways we can...apparently your 'development' side isn't working?

ULtimately, yeah, in yer spare time...What do you want to be/see BT grow up to BE? WHEN it grows UP? I for one envision something with a few more 'layers' of support...beginners, intermediate and then the 'seniors' where we can each explore the different dimensions of our 'conditions' and approaches to same...it doesn't mean a lack of access to various levels, simply an ability to discuss on a level w/o all the explanations...

I do, John Lester, beseiged as you are, have a fairly painless, well documented procedure to aid a non-profit to attain any level they wish to achieve. Truly. I've assessment documentation that proves it. And, it can only take 1 hour to get the stuff down on paper. No hair lost? got it!

We care, we are here...we are smart - we are RESOURCES...USE US well, and mercilessly! You just have to ask? - j

BTW - can you PROVE you are reading any of this copralite? A SIGN - ANY SIGN DURN - would surely be accpeted.

Wasn't there a quote about 'Alliegences are hard won, but easily lost'.... Think on it.

[TexRose]

JL, if you propose this request (and the request of many on BT) of not making your (BT) MODS anonymous and some or all of the MODS balk at this idea, there are plenty of very good people on BT that would gladly step in, make their presence known and take their positions as New Moderators. Thanks JL.

TR

[SalpalSally]

Thanks TexRose. Well said.:)

I posted earlier with total respect for JL. JL asked that we post our questions/comments to him as he welcomes them all. I did just that but no reply. My suggestion was to make the Moderators KNOWN to all members. I saw what happened in the OBT and making known the Moderators can eliminate problems and make members more comfortable in writing them. You certainly do not want to write a MOD to complain/question something when you may be complaining to a person who is the issue. Do you think that MOD would do anything about it? :o I think JL wants BT to run smoothly and fairly. This is a good way, JL. You are a decent man and I know you will eventually listen to this request that many of us has voiced. Thanks TR

[graymalkin]

The original thinking behind keeping the mods anonymous, as I understand it, was so they could participate in the life of the board like any other member, and not be seen as "officers" and therefore interacted with differently.

There's some merit in that model, I think, but a lot of bad feeling seems to have developed around the perceived abuse of power by one or more of the mods. One issue that keeps coming up is that if the mods are anonymous, and a member is having problems with that person's public persona, the member could find him/herself PMing someone who has a personal involvement in the issue.

A solution for that exists, if everyone is willing to have a little faith. JL could put a policy in place of having a mod who is personally involved in a problem recuse him/herself and pass all pertinent PMs on to another mod. If the mods are, indeed, going to stay anonymous, I think having such a policy could make the membership feel safer.

graymalkin

[Mike Weins]

Not to mention how the mods would feel suddenly being exposed. Think of all the bashing against the mods in the past and in recent days. Then think how you would feel if you were exposed as a mod.

Take into consideration that people will treat you differently from there on out because you were/are a mod.

I think the only sensible thing to do is keep them annonymous. It's a bad idea to expose them.

[Pamster]

Not to mention how the mods would feel suddenly being exposed. Think of all the bashing against the mods in the past and in recent days. Then think how you would feel if you were exposed as a mod.

Take into consideration that people will treat you differently from there on out because you were/are a mod.

I think the only sensible thing to do is keep them annonymous. It's a bad idea to expose them.

I fully agree with everything you ssaid ZombieSlayer, it's not right to expose them or anything. Just not cool. :(

[Linda25]

I agree that anonymity is the right choice for Moderators - for many reasons - and really - why do we need to know who they are? what does it matter????? what would it change?

By participating on BT I have to take a leap of faith that I'll be treated fairly and that the TOS is a good thing for everyone's benefit. If I didn't agree, then I would go elsewhere. so far my "leap of faith" has paid off.

thanks

Linda25

[Gimpy]

Maybe the old mods could be "released" from duty and new exposed mods put in place.

That would solve the problem and make a lot of people very happy in the process. Kind of a new, fresh start.

[TexRose]

Maybe the old mods could be "released" from duty and new exposed mods put in place. That would solve the problem and make a lot of people very happy in the process. Kind of a new, fresh start.

Gimpy, what an excellant idea!~! JL may go for this.

If the old MODS want to stay they all have to take a course at the Dale Carnegie School on how to deal with people in a humane and fair manner.

[Braindrain]

Why is it so important to know who the mods are? What difference
does it make? There are over 1000 members of BT and most of them
are registered under user names that aren't their real names. Some
of the members (like me) sign their real names in posts, but not all of
them do. If it's "wrong" for the mods to "hide", then it's wrong for the
rest of us, isn't it?

As for the mods being "released from duty", only JL can make that
decision-it's not up to us.

I've been with BT for a few years, starting back when it was with MGH,
and I've never had trouble with a mod.

I've been on other forums where there was only one moderator and
other members took it upon themselves to dictate what should and
shouldn't be discussed on the forum. ("Stay on topic") And, I've
been on forums where there is no moderation, and members just
"shout" each other down when someone makes a post they don'
agree with. Is that really what you want here? The moderators
aren't police. They have rules to follow and expect that the
members will do the same. Unfortunately, some members insist
on breaking the rules and they end up being banned.

John can't be on here 24/7, so the mods are here to deal with most
of the situations that come up. Suppose we had no mods here and
someone started insulting/fighting with members. Who would stop
it? Nobody, because there would be no mods to delete the messages
and ban the troublemaker. Suppose someone joined and started
advertising their own product, or soliciting members for their own
purposes-both of which are against the rules. Who would stop this?
I've been on sites where someone started posting **** spam-links and
explicit pictures. Since there were no moderators/administrators on the
forum, the messages weren't removed.

Is that really the type of forum you want?

Think about it.

[Matt A]

Gimpy, what an excellant idea!~! JL may go for this.

If the old MODS want to stay they all have to take a course at the Dale Carnegie School on how to deal with people in a humane and fair manner.

One thing all the complainers here forget is:

THIS IS NOT REAL LIFE

REAL life is everything else that happens AWAY from the 17" horizontally-measured square you stare at all day. This is just anonymous words on a screen that come and go like the wind. You may THINK this website is real life, but it's just an illusion. Why do you get so excited when the illusion fades and real life sets in for a few moments of time? Are you so into the dream that awaking is just too much to handle?

It's like getting offended at being called names here. Someones anonymous name and words on a screen called someone elses' anonymous name something nasty. Makes a WHOLE lot of sense to get offended, now doesn't it?

[lady_express_44]

One thing all the complainers here forget is:

THIS IS NOT REAL LIFE

REAL life is everything else that happens AWAY from the 17" horizontally-measured square you stare at all day. This is just anonymous words on a screen that come and go like the wind. You may THINK this website is real life, but it's just an illusion. Why do you get so excited when the illusion fades and real life sets in for a few moments of time? Are you so into the dream that awaking is just too much to handle?

It's like getting offended at being called names here. Someones anonymous name and words on a screen called someone elses' anonymous name something nasty. Makes a WHOLE lot of sense to get offended, now doesn't it?

I'm not sure I agree.

For some people, especially those who are homebound/bedridden, interacting here IS virtually their only means of communicating with understanding people.

Some of my closest friends, those that can relate to my lifestyle, struggles and woes, are people on from these boards. I have actually met many of these people in person, and I value their relationships as much as those I met in my "real" life.

Cherie

[diamondheart]

My opinion on this is that moderators should be known. All the other forums I have been on, the moderators are known, and it's not a big deal. This forum has some history with the moderators. It's time to clear the air now. I think it's important to have open and truthful discussions.

Claire

[TexRose]

My opinion on this is that moderators should be known. All the other forums I have been on, the moderators are known, and it's not a big deal. This forum has some history with the moderators. It's time to clear the air now. I think it's important to have open and truthful discussions. Claire

Yes, this forum has some history with Moderators and I don't think JL is fully aware of the extent of this.

I have always considered JL to be a very kind and undertstanding person who has given of his time and of himself to start MGH/BT for all those suffering with a medical problem. I praised GOD often for giving me a JL in 1997 when I was at the end of my ropes with an illness and had no one to turn to. I soon realized that there is sunshine at the end of the tunnel and it was in 1998, I found the right doctors for me, thanks to JL/MGH.

As the years passed and BT grew and JL got more invovled in his work and his new job he brought on more MODS. Little by Little I saw the changes and so did others.

No, I have never been banned but I know of others who were innocently banned. I know of some that had the wits scard out of them by over zealous Mod/s in a chat room. One lady never returned to BT after that. She was an innocent victim.

I saw favoritism. I saw lack of responses from MODS. I saw what was once a beautiful castle swivel down to a broken fort.

Granted, every forum needs Mods and there really are some good ones. And yes, there are times when some posters get so unruly that action needs to be taken, But, I will not continually beat a dead horse for changes I feel are for the betterment of BT1. BT1 is not mine. I am a visitor. I am a guest but if guests are not treated well, it is time to move on and not return.

I care too much for people. I am proud of the two humanitarian awards I have received in the past. I hope to continue helping people. The rewards are endless.

I am moving on. There's a new ship in port with new captains and great First Mates. I want to sail with that crew.

I wish BT1 better days ahead.

TR

[Jolene]

The thing people need to remember when they board that new ship is that it is using a "borrowed" building plan. I truly doubt that anyone received anything in writing granting permission to "borrow" said plan. People may find that their vessel becomes the Titanic after they learn that "borrowing" things that have copyrights and trademarks on them is illegal for a very good reason.

As for moderators-- It's kind of like the Sky Marshal system on air planes. No one, not even the crew knows who the sky marshals are or if there are even any on board. This way people can't pick an unobserved time/flight to cause trouble. Same way with the moderators here. As a moderator they are here to do a job. Not be anyones pal. If they create a profile and talk as anyone else does, and keeps their mouth shut that they are a moderator that's fine. Then if trouble arrises they sign in as a moderator and deal with it that makes sense as long as they do the job right. I couldn't care less who they are as long as they do the job justly and fairly. Which in my experience they do.

A few months ago someone posted something that was totally off topic for the forum where it was. I didn't even point that out then. But because I dared to disagree with the poster and the people catering to them they started whining and b---hing that I should be kicked out. Now I spend hours researching things for people. Finding Dr.s, verifying their backgrounds, etc. But because I disagree with that person I am worthless and should be banned. Well I personally mailed every moderator with links to the relevant threads. I was informed I had done nothing to be banned for and that was El Fine' for that topic. :)

[Grasshopper]

What has surprised me (and I haven't seen anyone mention it - though I may have simply overlooked it), it is how much money comes from advertising here on the forum.

JL posted that he gets 95% (or was it 99) of the corporations' money from Google advertising revenue.

If one takes that $10,000 contributed last year.
And you mutiple that by 100.
You get $100,000 dollars.
Which added to contributions of all sorts, from all sources.
So even when you subtract the 1% (or the $5%) from $100,000, you still end up with a big pile of money.

Is this all reasonable and understandable? Or am I missing something? Did what he said not mean what he said? I'm confused. Perhas he meant what he gets when he doesn't ask for rescue funds?

If anyone here writes to get a copy of the money in/money out statement, plus how it was spent, as provided by federal law, I sure would like to know what it says. I've been having this rattle around in my brain ever since I saw that statement and I want to put it to bed permanently.

Also, let me put in my 2cents worth about how this operation is run at the top.

I think that there should be someone in Boston who is capable of running this place, solving hardware and software problems, who has the time to devote to it. As long as BT was with the medical school hospital, if something permanent happened to JL, they would have hired someone else who hopefully would keep it up. But as it is now, BT dies along with JL if it should happen. Just my worst case scenario thoughts.

Dentist Hopper

[reverett123]

...TexRose said it all. As to "borrowed" designs, this layout and color scheme is nothing more than the default for the software. As for the name, "neurotalk" has already been registered and the ship has sailed.

[*Joy*]

I praised GOD often for giving me a JL in 1997 when I was at the end of my ropes with an illness and had no one to turn to. I soon realized that there is sunshine at the end of the tunnel and it was in 1998, I found the right doctors for me, thanks to JL/MGH.

and...

I am moving on. There's a new ship in port with new captains and great First Mates. I want to sail with that crew.

I wish BT1 better days ahead.

TR

Why would you want to desert a "ship" that was there for you when you so desperately needed it to keep your head above water? Why would you not rather make an effort to nail a few nails here and there to make the forum stronger.

Just questions TR, not recrimination. I'm puzzled by your post.

I'll be sorry to see you go, TR. You'll be missed. I sincerely mean that. There are wonderful people here on this forum too (many of which will enjoy both forums) and there will be thousands (and thousands) of us who will stay here.

~~~~~~~~~~~~~~~~~~~~~~~~~


Jolene
As for moderators-- It's kind of like the Sky Marshal system on air planes. No one, not even the crew knows who the sky marshals are or if there are even any on board. This way people can't pick an unobserved time/flight to cause trouble. Same way with the moderators here. As a moderator they are here to do a job. Not be anyones pal.

I agree with Jolene on this one. Well said by the way.

My opinion on the issues:

There are favoritisms and personal bias in everyone (whether someone can admit it or not is a different story). It doesn't matter whether you put a screenname to that someone or not. I see no reason at all to "out" or name mods.

By revealing mods, I can instead see registered members afraid to post an opinion that differs from a moderator's. Not me, mind you :) <-- me = big mouth smilin' fool who says what she thinks

I do like the idea of teamwork though.

I noticed that vBulletins has a choice of administrators, moderators and super moderators. Could this feature be used to establish teams and allow the members of each team to police each other? It looks like priviledges such as altering/deleting posts and bannings can be limited. What about a majority vote instead.

Another idea, could private chat be utilitized to allow members to defend themselves against warnings and in particular a banning? A forum court so to speak.

I think Braintalk is a fantasic forum and I'm certainly going to stay.


I removed my closing because it was corny. :)

[ASkicker]

The moderators on this forum may have anonymous titles, but they are definitely very heavily involved in the postings under their regular forum names.

You know, everyone keeps saying the moderators are heavily involved in the forums under their "real" screen names too, but I'm curious: If they are all anonymous, how is it that everyone knows that they are posting under their real names? I for one have never known who a moderator was, but apparently I am the exception to the rule. Have people really seen moderators admit their real handle? Or is this simply a complete temest in a teapot where everyone is worried about this theoretical situation (eg, where a moderator also posts under his/her real name), but no one can point to a thread where this problem actually occurred? Seriously, how is it people think they know who the moderators are--I just don't get this. Any explanation would be welcomed.

[TexRose]

[QUOTE=*Joy*;4084]Why would you want to desert a "ship" that was there for you when you so desperately needed it to keep your head above water? Why would you not rather make an effort to nail a few nails here and there to make the forum stronger. Just questions TR, not recrimination. I'm puzzled by your post. I'll be sorry to see you go, TR. You'll be missed. I sincerely mean that. There are wonderful people here on this forum too (many of which will enjoy both forums) and there will be thousands (and thousands) of us who will stay here.
~~~~~~~~~~~~~~~~~~~~~~~~~

Joy, I do not think you get it. I have not deserted the ship. Quite the contrary, dear. INMHO, this ship deserted some good people. I paid my dues over and over again throughout the years, in helping others in need. It is time to move on. I do not recogonize this "ship" anymore. I am sailing on. I am sure BT will survive without me. Thank You for your kind words.

TR

[ASkicker]

I think that there should be someone in Boston who is capable of running this place, solving hardware and software problems, who has the time to devote to it. As long as BT was with the medical school hospital, if something permanent happened to JL, they would have hired someone else who hopefully would keep it up. But as it is now, BT dies along with JL if it should happen. Just my worst case scenario thoughts.

Grasshopper,

Yes, in a perfect world, it would be great if the hospital created a permanent position for someone to oversee BT. However, several years ago, when the BT forums started getting more attention and more members (and thus more problems cropped up), the hospital decided to cut all direct ties with the forums. The forums were no longer considered an official hospital endeavor, and material posted here by John or moderators no longer could be said to represent the views of the hospital. The hospital was worried about lawsuites and/or bad press, if I remember correctly (and any other longtime members feel free to correct me here) and decided that they couldn't afford the exposure. If not for John Lester stepping up and agreeing to take over the management of the forums himself, they would have died right then. Thus, there is no way that these forums are ever going to fall back under the supervision of Mass Gen hospital, which means it is almost certain that there will never be a full-time, paid director of the BrainTalk site, nor will there be additional employees to lighten John's load.

So, when you say that you are worried that if John decided to leave that Braintalk would likely die with him, you are pretty much exactly right--that is what would happen. With many of the comments made in this thread, it seems as if too many people really don't understand that--Braintalk is John's baby these days, and it continues to exist because John still cares about it enough to make it exist. Why he continues to do this, to give up so much of his own time and money in light of the headaches this site must provide on a daily basis is beyond me--John is unquestionably a better and more patient man than I.

Also, Grasshopper, I'm afraid I didn't understand where you were going with the money part of your post, but there was one minor mistake I thought you might want to know about--if you take 100 times 10,000, you end up with one million, not 100,000. Not sure if that changes where you were going with that argument, but thought you should know.

[SalpalSally]

So, when you say that you are worried that if John decided to leave that Braintalk would likely die with him, you are pretty much exactly right--that is what would happen. With many of the comments made in this thread, it seems as if too many people really don't understand that--Braintalk is John's baby these days, and it continues to exist because John still cares about it enough to make it exist. Why he continues to do this, to give up so much of his own time and money in light of the headaches this site must provide on a daily basis is beyond me--John is unquestionably a better and more patient man than I.

Everyone should probably read this again.;)