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Levi
01-04-2007, 09:47 PM
To operate or not to operate? That is the question. -- Shakespeare (oh wait, no.., I mean Braintalk, colloid cyst forum, damn memory:-)

Hi all:

First off, take all this info as my personal opinion and with a grain of salt. I am nobody! I have no medical training, etc. When writing this, my only intent is to inform. As I pondered Dave's question, my first inclination was that "conservative management" is indeed an appropriate response to a colloid cyst diagnosis. I think that I had seen this action stated several times in the literature out there about colloid cysts (1). I think that the brain surgery to remove this cyst will remain an "art form" for the foreseeable future because it is so rare (2) but that there are many good artists (aka: neurosurgeons) and centers of excellence that can do a total resection either with the microscope or with the endoscope as has been stated here in the past.

Why all colloid cysts should be removed:

o Chance of sudden death associated even with small cysts (3)
o Chance of associated behavioral changes or psychiatric disorders (4)
o Chance of wreaking havoc on one's endocrine or limbic system (personal experience)
o Chance to minimize the invasiveness of the brain surgery while the cyst is small

Best Regards,
Matthew


1) "If a patient has a small (<9 mm) colloid cyst that is not causing either symptoms or evidence of hydrocephalus on MRI, then conservative management is typically recommended (serial MRI scans)".
http://neurosurgery.ucla.edu/Programs/BrainTumor/BrainTumor_Colloid%20cyst.html
(http://neurosurgery.ucla.edu/Programs/BrainTumor/BrainTumor_Colloid%20cyst.html)


2) "Approximately three persons per million per year are affected by this entity"
http://www.wjso.com/content/pdf/1477-7819-4-47.pdf
(http://www.wjso.com/content/pdf/1477-7819-4-47.pdf)


3) "However, since even small colloid cysts have been associated with sudden death, the precise criteria that differentiate cysts that require surgery from those that do not are uncertain at this time."
http://www.ajnr.org/cgi/reprint/19/5/875.pdf
(http://www.ajnr.org/cgi/reprint/19/5/875.pdf)

"Cyst size can range from 3–40 mm but size may not be a reliable predictor of outcome as even small cysts may cause sudden death"
http://www.wjso.com/content/pdf/1477-7819-4-47.pdf
(http://www.wjso.com/content/pdf/1477-7819-4-47.pdf)

“Cyst size does not appear to be a reliable predicator of outcome, since small cysts may result in sudden death.”
http://findarticles.com/p/articles/mi_qa3958/is_200309/ai_n9285362
(http://findarticles.com/p/articles/mi_qa3958/is_200309/ai_n9285362)

4) “Other symptoms may include decreasing memory, behavioral changes, and dizziness.”
http://neurosurgery.ucla.edu/Programs/BrainTumor/BrainTumor_Colloid%20cyst.html
(http://neurosurgery.ucla.edu/Programs/BrainTumor/BrainTumor_Colloid%20cyst.html)

chunky
01-07-2007, 12:15 AM
Great research Dave and you gave a good resource for further questions. I checked out the web sites and they are informative!!

BambiVA
01-07-2007, 10:42 AM
I also checked them out they were very informative. High Five to Levi for the research

~Bambi~

Levi
01-30-2007, 10:47 PM
Post-operative results can be a “mixed bag”. – The Oof

Hi all:

One area that I believe that results can be a “mixed bag” as the Oof once put it is in the area of personality changes. I was wondering if anyone else has noticed changes in their temperament or personality post operatively?

The Good:
"The personality change that I had feared turned out to be slight—and welcome."
http://www.christianitytoday.com/mp/2000/002/3.34.html
(http://www.christianitytoday.com/mp/2000/002/3.34.html)
"The literature covers personality differences in people who survive colloid cysts. The patient does not perceive a personality change, however his spouse and myself both do. His spouse says he is mellower, less excitable; he does not physically sweat as much, and has a new affinity for the roses in the yard."
http://www.humboldt.edu/~morgan/coll_s05.htm (http://www.humboldt.edu/~morgan/coll_s05.htm)

The Bad:
My wife says that she has noticed changes. I find myself more apathetic, more passive, and more reactive rather than proactive. Oh well, don’t sweat the little stuff, right? I tend to attribute it to less inhibitory influences of the corpus callasum.

The Ugly:
"Since the surgery she has little to no short term memory and has had a major personality change. ... She does not engage in any social activities that are outside of her home. ..."
http://www.medhelpinternational.com/forums/neuro/messages/32688.html (http://www.medhelpinternational.com/forums/neuro/messages/32688.html)

Regards,
Matthew