acc_angelsaroundtheworld
10-16-2009, 02:38 PM
Hi Everyone...
Some of you may already know Lynnea. She has ACC and she founded a non-profit group called Agenesis Corpus Callosum Awareness Association (ACCAA).
She posted an online ACC Petition several months ago to gather hundreds of signatures in an effort to gain media attention for ACC and corpus callosum disorders. Her dream and plan is to go to talk shows such as Oprah and Ellen and other shows and create awareness of ACC.
I know that many parents have wished, dreamed and talked of also wanting this kind of media attention for ACC so this is a great way to help make it happen and YOU can help by signing the ACC Petition at the link below:
http://www.petitiononline.com/ACCA2009/petition.html
HER GOAL IS TO HAVE 1,000 SIGNATURES ON THE PETITION BY DECEMBER 2009!! Can you help her and sign the Petition?
Sandie *Mom to 16 year old Matthew with complete ACC in Oregon USA*
Below you will find a quote directly from Lynnea (an adult who has ACC) pertaining to the ACC Petition and her desire, dream and goal to create greater awareness through the media:
"Okay everyone I need your help we have a Petition Challenge. I'm determined to get 1000 signatures by December. But I cant do this alone! We've got 430+ right now. And it's october. But On facebook we've got announced that from now to Dec. 15th we're gonna try to get 1000 signatures! So help me by sending the petition link out. I'm posting what I put on Facebook, and I need you all to spread the word! Lets get 1000 signatures, more if possible but lets get 1000 by december! Come on yall! we can do this with team work.
_____________________
ACCAA has a petition up so that we can get media attention about the brain disorder Agenesis of the Corpus Callosum (ACC) That means someone was born with the corpus callosum (bridge to both sides of the brain) either completely or partially missing.
It's rare, and very few people know about this disorder. That needs to change and helping the media get aware of it is a good way to start solving the problem.
We've got quite a few signatures but we need more. And thats where you come in. Please, if you havent already, go sign the petition to help us out. If you have any questions contact ACCawareness@gmail.com Also send this event to everyone you know! Or send the link to everyone you know! Help us get tons of signatures by Dec I'd like to see 1000 signatures on there! And if we all help promote the petition I know we can get there!
Rules: Please Sign first and last name and fill out all the fields. you e-mail IS private if you choose it to be, you have that option. Also if there is more than one person signing please make sure you each sign it. And please everyone make sure you only sign it once. First and last name is prefered as well. We can have signatures for ALL OVER THE WORLD. Hopefully in the future if this goes well ACCAA will be able to bring what were doing to the UK, other places...but for that we need YOUR HELP!"
Here's the petition. Click here and read it and sign:
http://www.petitiononline.com/ACCA2009/petition.html
-Lynnea
ACCA
2nd Corinthians 12:7-10
Phil 4:13
Remember that in God's eyes we're all special cause God dont make no junk.
http://sites.google.com/site/accawareness/
http://www.myspace.com/ACCawareness
http://www.twitter.com/ACCawareness
Say now number: 740-205-6957
http://www.youtube.com/lynny1206
http://www.justin.tv/koalalynny
http://www.petitiononline.com/ACCA2009/petition.html
Some of you may already know Lynnea. She has ACC and she founded a non-profit group called Agenesis Corpus Callosum Awareness Association (ACCAA).
She posted an online ACC Petition several months ago to gather hundreds of signatures in an effort to gain media attention for ACC and corpus callosum disorders. Her dream and plan is to go to talk shows such as Oprah and Ellen and other shows and create awareness of ACC.
I know that many parents have wished, dreamed and talked of also wanting this kind of media attention for ACC so this is a great way to help make it happen and YOU can help by signing the ACC Petition at the link below:
http://www.petitiononline.com/ACCA2009/petition.html
HER GOAL IS TO HAVE 1,000 SIGNATURES ON THE PETITION BY DECEMBER 2009!! Can you help her and sign the Petition?
Sandie *Mom to 16 year old Matthew with complete ACC in Oregon USA*
Below you will find a quote directly from Lynnea (an adult who has ACC) pertaining to the ACC Petition and her desire, dream and goal to create greater awareness through the media:
"Okay everyone I need your help we have a Petition Challenge. I'm determined to get 1000 signatures by December. But I cant do this alone! We've got 430+ right now. And it's october. But On facebook we've got announced that from now to Dec. 15th we're gonna try to get 1000 signatures! So help me by sending the petition link out. I'm posting what I put on Facebook, and I need you all to spread the word! Lets get 1000 signatures, more if possible but lets get 1000 by december! Come on yall! we can do this with team work.
_____________________
ACCAA has a petition up so that we can get media attention about the brain disorder Agenesis of the Corpus Callosum (ACC) That means someone was born with the corpus callosum (bridge to both sides of the brain) either completely or partially missing.
It's rare, and very few people know about this disorder. That needs to change and helping the media get aware of it is a good way to start solving the problem.
We've got quite a few signatures but we need more. And thats where you come in. Please, if you havent already, go sign the petition to help us out. If you have any questions contact ACCawareness@gmail.com Also send this event to everyone you know! Or send the link to everyone you know! Help us get tons of signatures by Dec I'd like to see 1000 signatures on there! And if we all help promote the petition I know we can get there!
Rules: Please Sign first and last name and fill out all the fields. you e-mail IS private if you choose it to be, you have that option. Also if there is more than one person signing please make sure you each sign it. And please everyone make sure you only sign it once. First and last name is prefered as well. We can have signatures for ALL OVER THE WORLD. Hopefully in the future if this goes well ACCAA will be able to bring what were doing to the UK, other places...but for that we need YOUR HELP!"
Here's the petition. Click here and read it and sign:
http://www.petitiononline.com/ACCA2009/petition.html
-Lynnea
ACCA
2nd Corinthians 12:7-10
Phil 4:13
Remember that in God's eyes we're all special cause God dont make no junk.
http://sites.google.com/site/accawareness/
http://www.myspace.com/ACCawareness
http://www.twitter.com/ACCawareness
Say now number: 740-205-6957
http://www.youtube.com/lynny1206
http://www.justin.tv/koalalynny
http://www.petitiononline.com/ACCA2009/petition.html