JicJac
10-01-2009, 08:14 PM
Hey, hey.
Below is the entire post I submitted at the welcome (post here first) point. It explains my situation. Please remember, I wrote and posted it there, so it may sound a little out of context.
Here goes:
First, hello everyone. I was amazed when I stumbled onto this forum. I had no idea so many people went through brain trauma of one sort or the other. Wow, what a community.
Around the first of the year a meningioma was discovered - apparently anchored to my olfactory nerves. It was remove, olfactory nerves severed, in April and I recovered (without smell and extremely diminished taste) quickly. However, since then I've been plagued with a horrific toxic smell and taste that no one around me (friends and family) can relate to. I'm not a whiner, but heck, I just want to know if it is normal.
When I first (a few minutes ago) found this site, I found a thread relating to CSF. I dunno, maybe that's what's up. I will also post this same message over there. It may not be cool to double post, but this (here) is where new members are supposed to log in and I have an idea I'd be directed over there anyway.
But hey, I'm all ears. I'll follow this thread and begin reading others and contributing where I can.
Below is a message I wrote to one of my doctor's assistants this evening. It will explain what I am dealing with.
Here's the message:
Thanks again for the great work you do.
I have a quick question. As you probably know, I have complete loss of smell due to the tumor removal. Well, except for a constant 24/7 toxic smell that permeates my senses and dominates what little taste I have left. Yes, the metallic/toxic taste and smell preoccupies my thinking. A little too much I’d say. It seems to be worse when I’ve been working hard and/or bending over a lot. The odor and taste is really horrific.
I haven’t mentioned it to anyone in the medical field because I figure it might be normal. Of course my wife and children have heard more explaining (complaining) about it than they would like.
It’s probably not related, but I also have a deep, deep cavity in the back left that’s been there before surgery and remains. The taste aspect of this distraction seems worse there.
I have an MRI coming up on the 20th of October and a follow-up in November.
Does this sound normal?
JicJac
Below is the entire post I submitted at the welcome (post here first) point. It explains my situation. Please remember, I wrote and posted it there, so it may sound a little out of context.
Here goes:
First, hello everyone. I was amazed when I stumbled onto this forum. I had no idea so many people went through brain trauma of one sort or the other. Wow, what a community.
Around the first of the year a meningioma was discovered - apparently anchored to my olfactory nerves. It was remove, olfactory nerves severed, in April and I recovered (without smell and extremely diminished taste) quickly. However, since then I've been plagued with a horrific toxic smell and taste that no one around me (friends and family) can relate to. I'm not a whiner, but heck, I just want to know if it is normal.
When I first (a few minutes ago) found this site, I found a thread relating to CSF. I dunno, maybe that's what's up. I will also post this same message over there. It may not be cool to double post, but this (here) is where new members are supposed to log in and I have an idea I'd be directed over there anyway.
But hey, I'm all ears. I'll follow this thread and begin reading others and contributing where I can.
Below is a message I wrote to one of my doctor's assistants this evening. It will explain what I am dealing with.
Here's the message:
Thanks again for the great work you do.
I have a quick question. As you probably know, I have complete loss of smell due to the tumor removal. Well, except for a constant 24/7 toxic smell that permeates my senses and dominates what little taste I have left. Yes, the metallic/toxic taste and smell preoccupies my thinking. A little too much I’d say. It seems to be worse when I’ve been working hard and/or bending over a lot. The odor and taste is really horrific.
I haven’t mentioned it to anyone in the medical field because I figure it might be normal. Of course my wife and children have heard more explaining (complaining) about it than they would like.
It’s probably not related, but I also have a deep, deep cavity in the back left that’s been there before surgery and remains. The taste aspect of this distraction seems worse there.
I have an MRI coming up on the 20th of October and a follow-up in November.
Does this sound normal?
JicJac