finding a doctor

[southerngirl]

As I read many of your post I am learning how much info many of you have about your conditions. My sister, who doesn't own a computer, does not have half of the info about her condition. She has to find a doctor who takes medacare in the New York area, anyone who knows of a good doctor around the 5 boroughs who is knowledgeable with this illness would be extremely helpful to her. She can't afford to pay out of pocket so I know that limits her but I'm hoping someone in the area knows a good doc that could help.
Also thank you for all the info you have given me so far, she has started on the B12 that you all talk about and I'm hoping in time it will start to show some progress. I have passed on the info about the charlie horses she is getting (I print and mail it to her) and I know it will also help.
Thanks so much for all your help
Catherine

[dahlek]

First, go to the 'neuropathy association' web site; I believe they list docs and NYC should have many of them. Second, go to USNews& World reports [web up top 100 hospitals-then scroll down to the neurology section...you will find at least 3 in the top 25 in NYC. Then search out the docs practicing in that department....you will find docs that specialize in all sorts of sub-specialities, ALS, Inherited disorders, MS and most likely several who either specialize in muscular or sensory [peripheral] neuropathies. You should be able to click on to their names and get a short bio.... The sites should also include phone #'s and addresses etc. I bet you will find enough for starters. If one wants to go further....web up each doc's name, [w/the MD]after it to see and see if you can read any research work they've done, You can even find out if they've helped out w/this 'n that charity! The web is a strange and useful instrument at times.

If you are adept w/the 'puter, you should be printing off pages in less than a half hour. It may take you longer as you get practice. I hope this helps, truly. We really don't need inconsiderate docs when we hurt this way - j

[HeyJoe]

Weill Cornel Medical center for Peripheral Neuropathy /New YOrk Hospital at 635 Madison Ave. in Manhattan has doctors who speicalize in peripheral neuropathy and has a very good reputation. Tel.# 1-212-888-8516. ( Edit note:The original address I put in was for the hospital itself. This is the correct address now)

[DanP]

southerngirl: here is a list of Neurologists I found in New York City.

Brannagan, Thomas M.D.
New York, New York United States
neurologists
The Peripheral Neuropathy Center
Weill Medical College of Cornell University
635 Madison Ave, Suite 400
New York City, NY 10022
Tel (212) 888-8516

Chin, Russell L. M.D
New York, New York United States
neurologists
Peripheral Neuropathy Center
635 Madison Avenue
Suite 400
New York, NY 10022
212-888-8516

Delfiner, Joel M.D.
New York, New York United States
neurologists
Chief, Division of General Neurology
Department of Neurology
St.Luke's-Roosevelt Hospital Center
Suite 10-G
1000 Tenth Avenue
New York, NY 10019
(212)523-6521

Dori-Calise, Susan
New York, New York United States
physical therapist
545 W. 111th Street
#8N
New York, NY 10025
(212) 662-8623

Gooch, Clifton M.D.
New York, New York United States
neurologists
Neurological Institute
Columbia University
710 W. 168th St
New York, NY 10032
212-305-0405

Lange, Dale E, M.D.
New York, New York United States
neurologists
Mt. Sinai School of Medicine
1 Gustave Levy Pl
New York, NY 10029
212-241-8674

Latov, Norman M.D., PhD
New York, New York United States
neurologists
Director, Peripheral Neuropathy Center
Professor of Neurology and Neuroscience
Weill Medical College
Department of Neurology
635 Madison Avenue, Suite 400
New York, NY 10022
(212) 888-8516

Mirasol, Alan P, M.D.
New York, New York United States
physiatrists
Advanced Rehabilitation Center
Madison Medical Group
133 East 58th St, 14th Fl
New York, N.Y. 10022
212-980-4015

Sander, Howard W. M.D.
New York, New York United States
neurologists
Associate Director, Peripheral Neuropathy Center
Associate Professor of Neurology & Neuroscience
Weill Medical College
Department of Neurology
635 Madison Avenue, Suite 400
New York, NY 10022
(212) 888-8516

Schaumburg, Herbert H. M.D.
Bronx, New York United States
neurologists
Chairan, Department of Neurology
Albert Einstein College of Medicine
1300 Morris Park Avenue
Bronx, NY 10461
(718) 430-3166

Simpson, David M.D.
New York, New York United States
neurologists
Associate Professor of Neurology
Mt. Sinai Hospital
P.O. Box 1052
New York, NY 10029
(212) 241-8748

Sivac, Mark, M.D.
New York, New York United States
neurologists
Mt. Sinai Sch of Medicine
1 Gustave Levy Pl
New York. NY 10029
212-241-8747


Theirl, Scott DC, DACNB
New York, New York United States
chiropractic neurologist
Functional Restoration
20 East 35th Street
Suite 1A
New York, NY 10016
212-889-4156


Valderrama, Ramon M.D.
New York, New York United States
neurologists
30 East 60th Street, Suite 901
New York, NY 10022
(212) 319-1929


Weimer Louis H, M.D.
New York, New York United States
neurologists
Neurological Institute
Columbia University
710 W. 168th St
New York, NY 10032
212-305-1330


Younger, David M.D.
New York, New York United States
neurologists
715 Park Ave
New York City, NY 10021
212-535-4314

For the entire state - go to this site and click on the individual areas - good luck:

http://www.neuropathy.org/site/PageServer?pagename=phy_us_newyork

[nide44]

I think that old member 'Glenntaj',
sees Latov @ Cornell-Wiell and speaks highly of him.

[glenntaj]

--and feels very confident in recommending Drs. Latov, Chin, Brannigan, et. al. (Dr. Chin is my official neuro of record; he's quite the expert in celiac and Lyme, among other autoimmune conditions, and their relationship to neural symptoms.)

Getting an initial appointment at Cornell-Weill can be difficult, but I always recommend calling every so often for cancellations--that's how I got in more quickly than the general waiting period. (Of course, you have to be ready to just drop other committments and go on short notice.)

Not only are these guys all researchers as well as practitioners, but you can talk with them all about ongoing research, current trends, etc. They seem to not mind having well-informed patients who suggest things, and they disucss their views on whatever you bring up. (Very different from many other doctors who seem to fell threatened whenever a patient suggests something.)

[southerngirl]

Thanks so much for all your help my sister is making an appointment with Dr. Latov and hopefully she won't have to wait to long she is available in case of cancellations so maybe that will happen.
I'll keep everyone informed on how she does again thank you all so much
Catherine

[Cry Tears]

Make sure its the Methylcobalamin that Rose has written about. Just incase her cause is vit and min def causing the neuropathy that is from having absorbtion issues.
All the other forms of B12 in the world won't do a thing if she mal absorbs or is missing Co-factors (something to do with conversions, too med techno).

I suffered needlessly for months and feel I was at deaths door when I found Braintalks and got on my bodies usable form of Methyl B12. I had been taking vitamins that included B12, Cynocobalamin...but wouldn't absorb.
Doctors should have had a clue...I was drinking an expensive green drink called Enerprime. It had a natural plant form, Hawaiin Spyrulina, of B12...3 to 4 hours after drinking it I'd have enough energy to get out of bed.....while it worked wonders, my health continued declining to where I spent an entire summer bed ridden needing full time care even for personal care. I even had spinal involvment from B12 defciency although my level was 232, but was only that "high" as I'd been on the Enerprime and had taken it that morning. It was way too scary.
Its not been a total healing with the B12...but life is much more managable.
I beleive 99.999% of my health issues are tied to my having years of irritable bowels which turned out to be Crohns disease....then having 2 bowel resection and missing 3 feet of small intestines....and DUH....STUPID,STUPID,STUPID....dismissive and disinterested doctors refused to listen to me when I'd ASK...could it be from a deficiancy of some sort.
Its standard protocol to give B12 to ANYONE missing part of the small intestines...the only place B12 is absorbed besides under your tongue! B12 is a large molocule and will fit into the blood stream via your gut or sublingual.
If I could sue them....I'd spend every nickle I had filing lawsuits of those gastros who NEVER advised me to take B12! Well....DUH! I am very angry!
I suffered needlessly and that is just so wrong....they need to go back and read that oath they took in med school of doing NO HARM~!
Thanks for allowing me to rant....but its been so hard on me and I continue to suffer.
I do wish your sister total healing. Health! Cheryl

[rose]

Most people who have malabsorption or severe malabsorption can use oral cyanocobalamin or hydroxycobalamin just fine. Most can convert to methylcobalamin.

The size of the dose is what is usually important.

However, for a minority the methylcobalamin form is crucial.

rose