dagaz
10-07-2006, 01:16 PM
Hi I have had a Csf leak for 13 years I sneezed after a bi-frontal craniotomy and blew the whole surgery site open, I filled a cup full of CSF and it has been unrepairable since obviously. My NS put a shunt in to take the pressure off of the leak site, well
my ventrilcles became dependent on a shunt I became hydrocephalic! I was flown air ambulance because of a blocked shunt and my ventricle had blown up like a baloon, and I will always depend on a shunt to live :mad:
The shunt never slowed down my leak, obviously I don't leak a cup full anymore or I'd be dead, but I'll say the NS don't have to question it because it runs down my face if I don't catch it with something. I live with the pain, My Dr.'s are great about it after my last craniofacial craniotomy they said enough is enough there is nothing they can do for me so they make me as comfortable as possible.
my ventrilcles became dependent on a shunt I became hydrocephalic! I was flown air ambulance because of a blocked shunt and my ventricle had blown up like a baloon, and I will always depend on a shunt to live :mad:
The shunt never slowed down my leak, obviously I don't leak a cup full anymore or I'd be dead, but I'll say the NS don't have to question it because it runs down my face if I don't catch it with something. I live with the pain, My Dr.'s are great about it after my last craniofacial craniotomy they said enough is enough there is nothing they can do for me so they make me as comfortable as possible.