ioana
09-08-2009, 09:58 PM
Hello.
Someone asked here why we come back. To me it's very clear, though I've been here very short time I found comfort in talking to people who are experiencing the same things we do. Thank you very much for that. Of course there always tensions on these boards but that doesn't detract from how incredibly useful they are. Not to feel alone.
The past three weeks, my husband has been doing better. Last week, he had four fantastic days in which he came with me on the subway and walked around downtown with minimal pain. A true miracle. Then on Friday and Saturday he was not so good again. Sunday, Monday, good again. Today, another setback, it was a bad day. All in all, things have improved slowly, though I'm not exactly sure which direction we're going any given day. We're hopeful, but I know this is not the end of the battle.
Our neurologist, a real cowboy lady, soft spoken but incredibly fast acting, decided that it would be better for my husband to get his next blood patch at another hospital in Toronto, the Western Toronto hospital. Because they have more experience there. So I had to jump in a taxi from work today to get home to pick up my husband to get him to the appointment, she gave us exaclty one hour to do this (seriously, the lady is a cowboy, everything needs to be done NOW).
When we got there, from our talks to the doctors there we found out some very interesting information.
Such as: we were the 2nd case of spontaneous CSF leak being treated TODAY. I made sure I asked twice if they really mean spontaneous or LP cases. The doc specified right back, "spontaneous". Last week he had another such case. He clearly said to us that the blood patch treatments usually work well and our prognosis is good. That after the treatment my husband should lift at most a pillow for 2 weeks, and stay horizontal for most of the time.
I filled a glass of water, and held it in one hand while in the other I had a pillow. Guess which one is heavier.
It will be difficult but I'm so very hopeful that this will work. And if it doesn't, G-d forbid, I still have faith that things will be better soon. They gave me confidence. The doctor said people are able to resume their lives after this.
I'm posting this with great fear not to jinx us. I know it's very silly, but in the past few months, I've become very superstitious. But I know how much I craved to hear good news when I first got here.
Tomorrow, then, 8am is our blood patch.... and then two difficult weeks in which I have to stitch my husband to the bed.
*** Too Much Information WARNING ***
Unfortunately, it will be completely useless because I found out this morning that *gasp* we are pregnant already. heh
Someone asked here why we come back. To me it's very clear, though I've been here very short time I found comfort in talking to people who are experiencing the same things we do. Thank you very much for that. Of course there always tensions on these boards but that doesn't detract from how incredibly useful they are. Not to feel alone.
The past three weeks, my husband has been doing better. Last week, he had four fantastic days in which he came with me on the subway and walked around downtown with minimal pain. A true miracle. Then on Friday and Saturday he was not so good again. Sunday, Monday, good again. Today, another setback, it was a bad day. All in all, things have improved slowly, though I'm not exactly sure which direction we're going any given day. We're hopeful, but I know this is not the end of the battle.
Our neurologist, a real cowboy lady, soft spoken but incredibly fast acting, decided that it would be better for my husband to get his next blood patch at another hospital in Toronto, the Western Toronto hospital. Because they have more experience there. So I had to jump in a taxi from work today to get home to pick up my husband to get him to the appointment, she gave us exaclty one hour to do this (seriously, the lady is a cowboy, everything needs to be done NOW).
When we got there, from our talks to the doctors there we found out some very interesting information.
Such as: we were the 2nd case of spontaneous CSF leak being treated TODAY. I made sure I asked twice if they really mean spontaneous or LP cases. The doc specified right back, "spontaneous". Last week he had another such case. He clearly said to us that the blood patch treatments usually work well and our prognosis is good. That after the treatment my husband should lift at most a pillow for 2 weeks, and stay horizontal for most of the time.
I filled a glass of water, and held it in one hand while in the other I had a pillow. Guess which one is heavier.
It will be difficult but I'm so very hopeful that this will work. And if it doesn't, G-d forbid, I still have faith that things will be better soon. They gave me confidence. The doctor said people are able to resume their lives after this.
I'm posting this with great fear not to jinx us. I know it's very silly, but in the past few months, I've become very superstitious. But I know how much I craved to hear good news when I first got here.
Tomorrow, then, 8am is our blood patch.... and then two difficult weeks in which I have to stitch my husband to the bed.
*** Too Much Information WARNING ***
Unfortunately, it will be completely useless because I found out this morning that *gasp* we are pregnant already. heh