Back from 5 day ketamine infusion

[DebbieHub]

Hi all- its great to be back online! Went for 5 day infusion and it didnt work- so depressing and sad- It was my only hope!
Well glad you are all here to vent again! Hope everyone is as ok . looking forward to staying in touch

Debbie

[whatsinaname]

sorry to hear that this did not work for you but im curious....did you get any relief at all?

again, I am truely sorry it did not give you the relief you desired, all is not lost though, just another step in the process of finding what will work for you

[Diamon Lil]

Debbie: I am very sorry to hear the infusions did not work for you. Do these have to be done soon after you get RSD in order for them to be effective? I hope you soon find something to help you. Again, I am sorry to hear the news. What a disappointment. Regards, Lil

[DebbieHub]

Lil & What- Thanks so much for your responses- No I did not get any relief to speak of...and yes and think if you do the ketamine earlier it could work better-I never had the sensitivity to touch and thats one area the Ketamine is supposed to help- I was so certain it would help me somewhat but when I "woke" up my calf was in such a tight knot (I guess from not moving) I could barely do anything- Now one week later the knot is gone but the pain is the same:( ...But I don't want to discourage anyone else from trying as a lot of people do get relief- I think the next thing I look into will be thelidamide which my doc said they are having some great results with....

Thanks again

Deb

[annabananabean]

im very sorry to hear that it didnt work, i know what its like to put all your hope into something and have it not come out as planned. Good luck though!!!

[frogga]

Hey

I am from the UK and ketamine is used in a couple of RSD patients (ok. 2 that I know of including me), It is a low oral dose given 3 times a day and I have been on it a year. It does work pretty well - my pain is still a 9 and still hits 10+ alot of the time, and I didn't realise how well it worked till I ran out and had to come off it for a week - my pain was soo bad!! just a shame that it doesn't "cure" it. I have ofund that it helped my alloydinia - it is still there, but I can now wear my splints for abit and can wear socks, trousers and jumpers which I couldn't have done before ketamine.

I'm really sorry it didn't work for you Debbi, have you tried medazzolan?

hope things improve!!

rosie ***x

[DebbieHub]

Thanks for your response- What is medazzolan?