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Abby2006
09-02-2009, 09:44 AM
I said in another post abut surfing into Oprah yesterday and there was this woman that had Dystonia, I had never seen a mirror image of what I look like before
The MS caused the Dystonia

Pic
http://www.oprah.com/article/oprahshow/20090319-tows-dystonia

http://www.oprah.com/search.jsp?query=Dystonia&resultsPerPage=20&sortBy=Relevancy&filterType=&filterBy=&page=1&x=9&y=11

Abby
stillstANNding
09-02-2009, 09:57 AM
Hi Abby,

You did a good job of finding an article and picture that shows the manifestations of dystonia. I am sorry that you have to live with this. Did you find anything to help the spasms other than "a drink of wine" mentioned in the article?

Best to you,
ANN
Abby2006
09-02-2009, 10:06 AM
Not really Ann and I can't drink because of the MS can you imagine this with MS/Emphasema/heart disease/chronic fatigue and fibro/ and NICO

I'm glad she was on the show as I had not had anything to compare this with.

And xanax can cause this disease

Abby
BBS1951
09-02-2009, 11:51 AM
Oh Abby, I know you ahve been struggling. This picture brings home what you have had to deal with. Its so darn unfair.
marcstck
09-02-2009, 02:17 PM
Abby, I'm so sorry that you have to deal with this terrible disease. Does it affect you as horribly as the woman in the picture?

Have you considered getting Botox injections as a treatment? It seems like this may be an effective therapy...

http://rarediseases.about.com/cs****ementdisorders/a/082403.htm
Abby2006
09-03-2009, 07:46 AM
Oh Marc you do care (mods we need a huggy emoticon) Marc, Botox is very expensive, painful and didn't help straighten that lady up so why bother I just wish I could drink (darn this MS)

Abby

My dystonia is going forward so yea its a bit of a challenge:)
gonnamakeit
09-03-2009, 01:43 PM
Oh Marc you do care (mods we need a huggy emoticon) Marc, Botox is very expensive, painful and didn't help straighten that lady up so why bother I just wish I could drink (darn this MS)

Abby

My dystonia is going forward so yea its a bit of a challenge:)

Why do you think that you can't drink because of MS? I drink a glass of red wine every night with my meal and am none the worse for wear.

gmi
Abby2006
09-06-2009, 09:23 AM
gmi its not that you cab't drink with MS but I have vertigo and a on board 'buzz' all the time anything more and I am in danger of falling.

I'f love a glass of Merlot

Abby
gonnamakeit
09-06-2009, 12:16 PM
gmi its not that you cab't drink with MS but I have vertigo and a on board 'buzz' all the time anything more and I am in danger of falling.

I'f love a glass of Merlot

Abby

Drink a glass of wine before you go to bed. Then you don't have to worry about falling down.

gmi
Abby2006
09-06-2009, 12:32 PM
hmmm thats a thought except taking demerol I don't know

Abby
agate
09-06-2009, 01:40 PM
Abby, if you're getting along without alcohol, why add it to the mix? The more substances you take in, the more complicated the interactions among them are going to be.

Alcohol messes with the central nervous system. MS is a central nervous system disorder. I don't want to take too much stuff that does anything to the CNS.

That's just my view, though.