New here! Not new to MS

[Mrs.W]

Hello all! I have been on injectibles for 12 years (currently on copaxone). I amdoing well,some balance issues. Lately I have had post injection reactions( imediate severe back pain, flushing, chest pain and chills. Very disturbing! Anyone else?

[stillstANNding]

Welcome, Mrs. W.:)

There are many people here on DMD's including Copaxone. I have been thru the interferons (A and R) and am in my 3rd year of C. No IPIRs and don't want any!

How are things with you otherwise?
ANN

[Abby2006]

Welcome to the board Mrs. W.

Abby

[agate]

Hi Mrs. W, and
http://i65.photobucket.com/albums/h218/agate_photo/welcome_001-1.gif

Congratulations on managing to stay on injectables for 12 years! It sounds as if you might have started on Copaxone recently--?

I haven't heard of back pain after a Copaxone shot but then I've been lucky and haven't had one of the IPIRs yet. I hope you've reported your reactions to your doctor and to Shared Solutions.

They might want you to stop taking Copaxone at least temporarily.

Looking forward to your posts--though it's always too bad when MS is part of somebody's life.:)

[LaCeli]

Welcome, Mrs. W.
I have taken "C" for 7 rs. Over the last year I started experiencing the after effect. I know when it's coming, pretty immediate. I get hot, flushed, nausea and I too; a few times, have experienced the back/pelvic pain.

It passes but you sure know it. Shared Solutions knows and now I'm keeping a journal when it happens. F/u with nuero in Oct.

Have you discussed it with your doctor? Make a note of day, site and Sx.

I'm glad you found us. :)

[Howie]

11 years with MS here. Welcome to the forum! :)


.

[Mrs.W]

Thanks for the welcome and replies! Got my dx in 92. Started with Avonex in 97,(8 years) a few months on rebif, last 3 years on C. Told Shared Solutions and Dr. about reactions. I want to stay on C because it seems to be helping, but the random ipirs ( 5 in the last 3 years) are a concern! At my ms support group, one the members said her Dr. told her that the level remains high if only taken 3 times a week. This Dr. is a ms specialist. What do you think?

[agate]

Hi again Mrs. W,

I've heard that too about Copaxone--that you can take it every other day or even 3 times a week without cutting down on its effectiveness. I'm not sure that that would change the IPIR picture but at least fewer shots would mean fewer opportunities for an IPIR to happen.

I hope you'll ask your doctor about this.

[MomtoM]

Hi Mrs. W, I've been on C for 2 years and have had a total of 4 IPIRs. None included back pain, though.
All of them were immediate with flushing and chest tightness, very hot.
I usually feel pretty sick for a while afterward too, sometimes till the next day.

I've heard that (about the levels) with C too but my dr said no to that so far, that it isn't really proven.

C has been awesome for me too! It's hard to do the next day's shot after an IPIR but worth it.

Welcome to the board!

Deb