Long Time No See...

[bobkat]

Hi All,

I decided to post the same post from BT2 here too - Thanks to Ella, got notice that the original BT is up and running again:


Thanks to Ella, here I am with the supportive family that helped me so much through my diagnosis and options almost a year ago. I am glad to report that I am doing extremely well. No more pain/twinges and no meds since March 2006 (my MVD was February 2006). I had a wonderful summer off (remember, I'm a Special Education Teacher). My family and I traveled a ton - Disney, Cincinnati, and two trips to Long Island - one trip included visits to to the Hamptons and Mountauk. It's just about a month back at school and it's going very well. It's nice to be teaching with no pain and no recovery from surgery. Unforutnately, I pulled a tendon in the arch of my foot from walking too much on my treadmill (I have also joined Weight Watchers and have lost a little over 40 pounds). I am currently in a walking cast and hope to be back in sneakers (with added othotics) and back on my treadmill soon. Since my surgery I have really put my mind into 2 things; reduce stress, and get this body healthy!! So far, so good (a little bump in the road with my foot has not got me down yet!!!)

I look forward to being part of this wonderful community again.

Kathy

[KIMMERS]

Hi Kathy,

This is Kim. Glad to hear that you are still doing well from the MVD. Sorry about your foot.

I finally met Jean in Portland. She had to find me. I looked for her but wasn't able to find her. It was great to meet her. I just wish we would have had more time to talk. Oh well, we will get more time to talk on here.

I just wanted to say hello. Also, hello to everyone else.

Kim (Kimberly Rae)

[TrainwreckSurvivor]

Hello Everyone!
It's good to be back, I was formerly known as KatieWest. Since I was only able to read posts before this last crash I am greatful, in a weird way, because now I can get back on and post. :D
Kathy, I've been following your story for months-you are an amazing woman! Your courage and strength have helped me hold on at times.
Kim, thanks for the heads up the BT was back! I was also at the Porland convention with Kim and had the opportunity to meet Jean and hang out with her. For those of you who haven't met her face-to-face she is awesome! :D
It's great to be back YEAH John and BT peoples!!!
~Katie

[Trish]

Kim and Katie a BIG HELLO!! SO wonderful you both are doing so well...

Fantastic that the forum is back.... woooweee!


Now to get us all gathered together....

Trish Ann

[KIMMERS]

Hi Trish,

Refresh my memory. Did you go by this name before the crash? I'm sorry that I don't remember. Where do you live? What pain do you have? This might jog my memory. (let's hope)

Thanks,

Kim

[julzz]

Hi Kim: Well, finally made it into the group.
FYI, I wanted to tell you and whomever may read this post that I have had a-typical face pain and dx with TN for 6 and one half years. I just had a new procedure at Mary Bird Perkins Cancer Center that is must like Gamma Knife, but from what I gather more precise and linear as opposed to arched. The name of the procedure is Stereotactic Radiosurgery. If anyone else has had this procedure I'd love to see how they have responded. I am only 2 weeks out and still having some pain tho I have a lot of faith that this is going to work. Dr. said it could take 2-6 months for the full benefits.
Thank you Kim for finding your way into my life.
God Bless and hope you are feeling okay. Please introduce me to others. The more people that can identify with this terrible disease the more hope I believe I will have. I'm in a lot of pain right now so I'll close this another thank you and looking forward to telling you and others how my treatment works out. Best, Julz

[KIMMERS]

Julz,

Hi, welcome, I'm glad you found your way. You will feel very welcome here. This is a wonder group and everyone is very helpful. People in this forum are from all over the country. As time goes by, hopefully they will be able to put up the "stickeys" at the very top of the forum. This has a bunch of information about TN. There is also a chat room here. It's under the quick links, it's called flash chat.

See you soon.

Kim

[baywatcher]

You are now one of our resources. This is a good clearing house for reports on the various treatments now in use for tn. The good and the bad and (unfortunately) the ugly. So keep us posted, and I hope that the pain decreases soon. Nancy