Why B12 should not be taken lightly

[dorvad]

As some of you know already I was diagnosed with Subacute Combined Degeneration of the Spinal Cord in 2004.

Questions
Do any of you have the following symptoms.
Getting int the car, Bottom on seat 1 leg in and 1 outside that just wont move for a period of time.
When you lie down at night time do you lose the ability to move your legs for a period of time
Do you have instances when even when you are out walking you stop and then cant move your legs for a period of time
Sitting down for say about 1/2 an hour and then when you try to get up your legs wont support you, infact at times I need 2 people to support me to get up.
My Neurologist says that there is nothing else he can do to assist me, many of the symptoms I suffer from are like MS and I am trying to get them to take me on but so far to no avail, Rose is so right being B12 defficient and not being diagnosed for about 10yrs after its inception is bad news, please if in doubt about your B12 levels shout and shout loud untill some one pays attention.

[rose]

I hope you improve. Sometimes that happens when one has decided no more improvements will come. Most of my other problems have gone over the years, but my legs were affected first and worst, so who knows.

Tremendous changes can occur after those first couple of years. Some of my worst problems became more symptomatic temporarily and then improved or disappeared during the years after the first two.

I'm glad you are helping get the word out. B12 deficiency is nothing to take lightly.

rose

[dorvad]

The condition I now know is called paraparesis or hemiparesis, for want of a better word paralysis.

My Rehab Doctor and my Neurologist have both said there is nothing more that can be done.

You know what really annoys me about this condition is that is not taken seriously by some people, it has all the effects and symptoms of MS but none of the back up.

And when you have to face something that is not normal about the condition ie paralysis, you face it on your own and with the ones you love.

My GP,s have never seen this condition as bad as this.

Sorry if my words show a bit of anger as that is not my intention, I suppose it is just my frustration at being the only one.

[rose]

I also have paraparesis, and although I can now stand much longer than a few years ago and bend down to pick something up off the floor much more safely than for many years, I do have much increased spasticity, etc.

Almost everything else is gone, but the movement of my legs is very bad.

I would like to think it will go away (as so many other worsened symptoms have as my body continued to repair over months and years) but I think it is much more likely that the spasticity and hesitancy are secondary to muscle imbalance, etc., I have had for so many years as a result of the B12 deficiency damage.

rose

[LizaJane]

Rose, I had always thought of you as someone who made a complete recovery. It stuns me to find out that the "Rose" I'd been imagining all along is not the person you really are. After reading posts of various people over the years, I've come to feel I know many, and have an image in my mind of what they look like, and what they're symptoms are like. You, I'd imagined as well. I'm sorry to hear that you have not made a complete recovery.

[rose]

Over time I have made a complete recovery in some very important areas, and there were no guarantees. Considering how long some of the other problems took to resolve, I still have hope for my legs.

This is why I am determined to get the information out. All this was completely unnecessary.

rose