back range of motion

[marfla]

wondering if others have or do experience back problems like lower back pain, neck/shoulder spasms etc...?

Plus have you found you feel like your spine neck to lower back is tighting more and more, losing some range of motion esp lower back- waist area?

Not sure if this is more due to my gait and truncal ataxia? caused by how i walk or sit, etc.... or just another symptom increasing?

I will be seeing a physiatrsts Rehab MD Jan 3 and have this on my list of questions. I am thinking its probably more due to my gait problems and giving a domino affect to other muscles, skeletal, etc.... Yet it has just started recently and is getting worse although my gait and way I sit hasn't changed.

thanks
marfla

[JimReag]

I also have lower and upper back problems. Not sure if they are caused by ataxia or the arthritis the neuro's say I have in both places. My upper back/cervix seems to be much worse: stiff neck, limited range of motion. It is very frustrating trying to nail down causes of various problems associated with cerebellar degeneration. One neuro actually said "You have it. It'll get worse. There's nothing we can do about it. Get used to it." I feel like an orphan. We gotta keep looking and trying new things. I just ordered a "tai chi for balance" dvd. Maybe it will help with the balance issues. I haven't a clue about the back and neck problems. Anything new from you?
JIM

[JAVISI]

Marfla and Jim,
I have cerebellar atavia and also have lower back and neck pain. I thnk some of it has to do with the way I walk I will get awful back spasms if I walk too much but I also know that I have arthritis in my back too!:confused:

As for my neck, I have fallen a gotten whip lash a few times I have had neck pain ever since!:(

I think the ataxia aggrivates the problems that are already there?:rolleyes:

It is nice to see the ataxia thread started again. I was faithfully on it before the crash. Hope to talk to you both again soon!:D

Dreaming Big and Reaching for the Stars, Javi;)

[bono]

Hello! I am new to the site and want to say hello to everyone! I am a 44 yr old women with sca2. ive known Ive been ataxic for 7 yrs but recently had genetic testing and learned I had sca2.i live in ny and know no one with this disease.Im scared but very hopeful.I have no idea what to expect. I too just developed lower back pain.I have 2 young children 10 and 7 and all they want is to see me run. It breaks my heart.Im still mobile and get to the gym often.My handwritting is illigible and my speech somewhat slurred. I have another nuero appt next week. Are there any meds?I need psychological support. Please write back Thanks dee

[dbobsnodgrass]

dear Friends, I am new to this thread and wondered if I could get some info. I have been treated with for Tigminal Neualgia for a year and a half. Developed Toxic Epidermal Necrolsis, after using Tegretol. Had a craniotomy last May, worked 2 weeks; in August I had steotactic Radiosurgery another 2 weeks. Found the right meds, but only lasted 4 months. Another stereo Radiation therapy this February, no face pain. Any one have anything like this? Thank you all very much. All my best. bob