acc_angelsaroundtheworld
06-21-2009, 09:52 PM
Because agenesis of the corpus callosum or partial ACC has such a broad range of how it may affect a person there is no prognosis for what to expect when you are diagnosed with ACC.
There are some common things that tend to SOMETIMES
be difficulties or challenges for people who have ACC.
Some of those challenges can be:
Reading comprehension - some kids and adults learn to read but they have a very difficult time and struggle with remembering what they read or being able to answer questions about what they just read.
Handwriting and taking notes - some kids and adults find it very difficult to use handwriting as an effective way to express their thoughts. They do much better if they are given the ability to type out their thoughts. They say that it slows them down if they have to try to put into words on paper what is in their thoughts. Some kids in school use what is called an Alphasmart to type rather than write.
Social Skills - some kids and adults take things very literally and don't always understand the humor, irony or wordplay in something that someone says. They may have a difficult time reading social cues. Often times, kids with ACC are bullied at school and have a very hard time making friends and learning how to socialize with kids their own age.
A LOT of repetition to learn something - this is something that is mentioned frequently by many parents of kids who have agenesis of the corpus callosum. Learning something new requires a lot of repetition before the skill is finally learned.
Headaches - some kids and adults have very bad headaches and even migraines.
Problems recalling information - knowing something but not being able to get the right words out.
Then the other things were mentioned in a previous post but I will include them here too:
Learning to ride a two wheel bike - this can be a huge challenge for many people with ACC. Some who have ACC learn to ride a two wheel bike and some are not able to ride a two wheel bike.
Learning to drive a car - Some people with ACC are not able to learn how to drive a car. The ability to properly judge distance and lack of depth perception may be reasons for this. Some people with ACC do get their drivers license though and are able to drive a car.
Tying Shoes - learning to tie shoes for someone who has ACC can take a very long time to learn.
Playing Sports like Baseball - With the inability to judge distance and lack of depth perception, some people with ACC are not able to play sports like baseball due to the threat of serious injuries to themselves.
These are just a few things that I thought I would share for any of you who have ACC who may want to comment.
Sandie *Mom to 15 year old Matthew with complete ACC*
There are some common things that tend to SOMETIMES
be difficulties or challenges for people who have ACC.
Some of those challenges can be:
Reading comprehension - some kids and adults learn to read but they have a very difficult time and struggle with remembering what they read or being able to answer questions about what they just read.
Handwriting and taking notes - some kids and adults find it very difficult to use handwriting as an effective way to express their thoughts. They do much better if they are given the ability to type out their thoughts. They say that it slows them down if they have to try to put into words on paper what is in their thoughts. Some kids in school use what is called an Alphasmart to type rather than write.
Social Skills - some kids and adults take things very literally and don't always understand the humor, irony or wordplay in something that someone says. They may have a difficult time reading social cues. Often times, kids with ACC are bullied at school and have a very hard time making friends and learning how to socialize with kids their own age.
A LOT of repetition to learn something - this is something that is mentioned frequently by many parents of kids who have agenesis of the corpus callosum. Learning something new requires a lot of repetition before the skill is finally learned.
Headaches - some kids and adults have very bad headaches and even migraines.
Problems recalling information - knowing something but not being able to get the right words out.
Then the other things were mentioned in a previous post but I will include them here too:
Learning to ride a two wheel bike - this can be a huge challenge for many people with ACC. Some who have ACC learn to ride a two wheel bike and some are not able to ride a two wheel bike.
Learning to drive a car - Some people with ACC are not able to learn how to drive a car. The ability to properly judge distance and lack of depth perception may be reasons for this. Some people with ACC do get their drivers license though and are able to drive a car.
Tying Shoes - learning to tie shoes for someone who has ACC can take a very long time to learn.
Playing Sports like Baseball - With the inability to judge distance and lack of depth perception, some people with ACC are not able to play sports like baseball due to the threat of serious injuries to themselves.
These are just a few things that I thought I would share for any of you who have ACC who may want to comment.
Sandie *Mom to 15 year old Matthew with complete ACC*