info on the sub q ig

[armysoldierc148]

sorry i haven't gotten back on here lately. so, i wanted to give you guys some links to the sub q info. its not a wonderdrug, but for those of us ivig works for this is a good option. i hope this works.
http://www.fda.gov/bbs/topics/news/2006/NEW01294.html
this is the goverment site
http://igliving.com/web_files/feat_a-m06_subq_us.pdf
ig living did an artical on sub q
http://www.vivaglobin.com/patient/index.aspx
there is a video link on this page that shows and tells a lot about the shot. and they will send you a dvd as well

i'm trying to wait till the week between christmas and new years to do the treatment so my hubby doesn't have to take leave. as soon as i get more info i'll pass it on here. maybe we'll all get cured for christmas?

[GaBelle]

Great links! I'm going to have to have a port put in. Considering calling my neuro about this first!

[Maxs9th]

Thanks for the info...does it take less time to infuse than IVIg? Is it less expensive?
Gabrielle

[Juanita]

I had my IVIG this weekend and asked the infusion nurse if she knew anything about it. She has one patient who is using this type of treatment - a high school student.

She told me it works almost like an insulin pump, just a little bigger. There is a small tube that goes under the skin (usually in the abdominal area) and that tube hooks to a pump which is connected to the bag which contains the medicine. The bag needs to be changed about every 2 hours. It takes about 24 hours to infuse the same medicine she can give through a vein in about 2-4 hours. But, in the case of the high school student, he would rather wear the pump and bag under his clothes and be able to continue to live his life rather than being hooked up to an IV in a doctors office or hospital for about 4 hours a day for 5 days. I think it would also be a good choice for someone who has very bad veins and is not a good candidate for a port.

FYI - my nurse (who does nothing but IVIG infusion) has been researching IVIG and thinks it will be available in pill form in about 10-15 years - that is the way the research is heading! I say, bring it on:D I'd rather take a pill any day!

[SheilaSchnauzies]

Hey thanks for the great info links, I have ordered the DVD and am going to look into this! It will be interesting to see how my medical insurance reacts if I get it!