Been Here For Awhile and Still no one will talk to me

[jennifer]

Sorry, I keep doing this, but what do I have to do to get people to talk to me?

[Boopers]

Hi Jennifer,
I just pm'd you!! Sorry I didn't get to you sooner!!
Honey, I am sorry you aren't getting many responses. I have noticed that since BT has come back, there still aren't many old members back yet. I hope this changes soon.
Take care,
Linda

[Buttons2]

Hi jennifer, just happened to see your post. Guess we'll consider the people from WA as friendly huh? I don't know you or Boopers but I used to be very active on this site when we had the old BT.

I agree with Linda, we have lost many people & will just have to have some patience on building up BT relationships again.

What can we help you with right now? I see that you are 22 & like sports. I'm practically old enough to be your grandmother but I'll try to help you & certainly want you to feel welcome here!

Do you have any pets? Know any good jokes? Have any artistic talent? I'm asking cause you might want to check out those forums. (I couldn't get your previous posts to come up so have no idea where you've been posting).

Hopefully you will begin to get more responses!
Take care,Buttons

[Tootsie]

Hi Jennifer,
I had never seen any of your posts so had no idea what you meant. I check this forum, almost every day. However, I have read all of your posts on the Hydrocephalus Forum and several people responded to you there. They also suggested this Forum, along with some of the Chat rooms where you would find others to talk with you.

As for the post on the Educational Issues Forum, the Departments of Vocational Rehabilitation do have their own rules for how they can use the money that funds their programs. Did you ask them what other places might offer you some kind of training?

In my community there are Adult Education programs for all levels of ability, funded by the state and also local school districts. Some include social activities like dances, field trips to parks, zoos and tourist attractions. If you live in a small town or community there is less likely to be programs like that available to you.

I know that the Goodwill offers job training to people. There might also be volunteer activities where you could participate. Some charities and churches have shops where they sell second hand household good, clothing, appliances, etc. They need people to sort, and review the donations and prepare them for sale. We have a program called Second Harvest. Donated canned good and fresh food is donated, and then shelved, put in bags or boxes for those on limited income. Cheerio.

[Matuboo]

Sorry, I keep doing this, but what do I have to do to get people to talk to me?


Don't feel bad Jennifer, I've been here at BT for the better part of 4 years and no one will talk to me either! You seem like a sweet gal though. I don't have trouble making (or keeping) friends outside the forum but the forum just isn't a good fit for me. I come here mostly for medical questions and issues. If it's not to your liking, there are 1,000 others. I think if you give it some time though, you'll be happy here. What do you have to do to get people to talk to you? Sometimes it's as simple as your post, there's nothing wrong with asking!

[Tootsie]

Matuboo, where do you post? Cheerio.

[Matuboo]

Matuboo, where do you post? Cheerio.


My main forum (back when the old BT was in it's prime) was the Neuromuscular. I've never had a problem fitting in in the scheme of things, life in general, except perhaps, when I was young.

I just felt like that forum, at that time, was very clique and the whole of the forum was really about 7 or 8 people, chit-chatting back and forth and discluding people from their conversations. Fights would break out frequently between users and burry the posts of those that needed support, I believe that many people who needed it, didn't get it. That's not to say there were not individuals who were dedicated to helping others but mostly it was a social gathering, in what was supposed to be a forum for health support. That was then, it is much different now because those members who were so dedicated to making it the above-mentioned, are gone. It was more like usenet group than a BT forum. What's done is done though, it certainly didn't ruin my life or anything!

As for the rest of braintalk, I've not noticed this so much in other groups. Although active, they seem to be supportive and gernerally concerned about newer members and including them in discussions, health related or not. It's ok to have fun and games but shutting people out is cruel, I never saw that in the CP or Fibro forums but I don't have Fibromyalgia and fortunately, my pain issues have been resolved. It's mostly an emotional thing for me right now, I have lost a lot the last 6 years. A lot of time due to illness and a lot of everything else!

I've seen many of your posts Tootsie and the descriptions above certainly to not encapsulate you, you seem to be very giving and kind, for what it's worth. I don't know you but have read your posts and "fun threads." I think those are great, as long as everyone is included and your word-wraps made things interesting. I always liked the fibro forum but never called it home because fibro was ruled out for me. I have no diagnosis for my illness, which is probably part of the problem.

Now, back to Jennifer, I certainly hope you give things some time. I was being a bit sarcastic and negative, as I said, there are some good people here like Tootsie who do care and I certainly do myself. Best wishes to you and please don't let the forum get you down.:)

[Tootsie]

Hi Matuboo,
Thank you for the kind words. I do try but occasionally I find some of the postings triggering my "shoot from the hip" response. One thing about old age, is that it does seem to mellow some of the more negative aspects of personality!

I, too, do not fit, neatly, into any specific forum which is how I found my way to Emotional Support. My fibromyalgia is secondary to a massive thoracic deformity from scoliosis. Nothing can really be done medically, about either one, so I manage to make my way through the challenges that life presents.

Now, I need to get back to the holiday craziness. Cheerio.

[Buttons2]

Well in case you are reading this I hope you are feeling more welcome by now.

Matuboo, that's an interesting name! I understand what you are saying & I know you are not alone in feeling "left out" at times. I was active on several forums on the old BT. This time around I can't seem to get with it too much,not sure why exactly.

I'm also suffering without a firm diagnosis. I just say I have mystery illness these days. I do have myoclonis (full body jerks), but I find that I get more response from a movement disorder forum than I do here. I'm also type 2 diabetic but seldom even check the diabetes forum here anymore. Have nearly every symptom possible for Lyme disease but have stopped posting on that forum since I never have gotten a firm diagnosis. I'm in limbo land as are many other people.....

Tootsie, I also speak my mind as you know! Just my nature....or is it another manifestation of middle age living with pain 24/7 & wondering how the heck I'll get through another day?:rolleyes:

I know there must be someone reading this that wants to reach out & I just want them to know we do care & will try to be supportive.

Jennifer (and everyone else), we are here-speak up!

Take care everyone,Buttons

[Coffeeholic]

Hi Jennifer.. any time you want to chat let me know... I will be glad to if i am here

[Livejim56]

I feel the same way Jennifer

[lostnempti1]

I feel the same way Jennifer

hi jim....am sorry that you have not been spoken to...i would suggest that you start another topic for yourself and you will see that there are many people here who will be more than happy to talk to you...just remember that you are not alone in this world...you will always have us...:)

[Boopers]

Hi LiveJim,
I wanted to say welcome and sorry that you feel ignored. I have been off here for a few days but am more than happy to be your friend. I agree with Lostnempti, start a new thread and I'm sure people will respond.
Take care,
Linda

[joy]

And I think you know by now all you have to do is PM me and if not something horribly wrong, I do get back to you. Hope you are doing great and and so are Mollie and Maddie. Are you ready for Christmas? Have a great one.

I love snowmen so here is one for you.

http://bestsmileys.com/christmas6/4.gif

[Buttons2]

Hi LiveJim, I don't want anyone on BT to feel like nobody is here for them! So welcome, this is a great site & I promise you that someone will "connect" with you.

How can we help?

This is a very lonely time of the year for many people, others' are so darn busy they might not be on their computers very much...

Please share your story ( I totally agree to begin your own thread).

Doubtful that everyone has suddenly gotten a diagnosis & been cured! So let's get you started ....do you have a pressing issue? Or perhaps just something that keeps getting worse as life goes on?

You are no longer alone,Buttons

[jennifer]

Thanks to all the people that did answer me, I appreciate it. A little bit about myself, I am 22yrs old. like to go to church, loves sports. I weighed 2lbs 2ozs when I was born, have a wonderful family. I am adopted, my mom gave me up the day I was born, I was born with a conditiion called congenital hydrocephalus. For those of you that don't know what it is, it is a condition where fluid is built up on the brain, and let untreated could lead to a not so normal future. Luckily mine was caught and they put a shunt in and a tube in my neck to drain the fluid, and I really haven't had any problems. I have eye problems and I am mild mentally disabled, but I do whatever anyone else does. I hope this will help people out there understand my situation.

Jennifer

[Buttons2]

Jennifer, good to hear from you! Hey, many of us on BT have some type of mental problems-brain fog is a common description for instance.

Your story seems to be of a miracle baby, and you were special enough to have a family choose to bring you into their lives.

I'm hoping you will establish some solid friendships through the BT connection.

Wishing you well!
Buttons

[Silver Swan]

Dear Jennifer:
You express yourself so well, have excellent choice of words and grammar and not only that, obviously type very well and I am guessing you touch type. I have a hard time believing you have any mental disability! But if you say you do I have to believe you. But reading your posting, I would say you are writing very very well indeed - much better than some.

Please forgive me if I am being presumptious - I am just very impressed with how you express yourself.

Shirley H.