PaulaScott
10-05-2006, 11:54 PM
Emily's OT called this afternoon that Em had had a seizure during therapy. OT missed the very beginning as she'd turned away for a brief moment, but side that it wasn't more than 10 seconds max, there was no movement, no blinking, no response, and most concerning, she wasn't breathing.
This makes me positively sick because it confirms what I thought I had been seeing, but was trying to convince myself wasn't happening. I thought I saw one episode about a month ago, the aide on the bus saw another that same week and I suspect that I've seen a few more just seconds long. She's also jerking a lot more as she first goes to sleep than she had been.
Sweet Dh was convinced that she was perfectly fine and wanted to talk to the neuro about weaning her from her meds (Topamax and Depekene combo).
These seem to have been gradually increasing in the last couple of months. Em has also grown a lot over the summer, partially because we changed her feedings to Pediasure from the homemade diet we were using because she couldn't tolerate any longer. However, I'm concerned about the Pediasure because of the amount of sugar in it and her increase in yeast infections. And to add to that, she has ringworm.
We have a regular neuro appointment next Tuesday, so I'll talk to him about it then.
I'm sorry for venting, particularly since so many of you deal with far more serious sz than we do, but I feel just sick that we'd thought the sz were gone and they were just hiding.
This makes me positively sick because it confirms what I thought I had been seeing, but was trying to convince myself wasn't happening. I thought I saw one episode about a month ago, the aide on the bus saw another that same week and I suspect that I've seen a few more just seconds long. She's also jerking a lot more as she first goes to sleep than she had been.
Sweet Dh was convinced that she was perfectly fine and wanted to talk to the neuro about weaning her from her meds (Topamax and Depekene combo).
These seem to have been gradually increasing in the last couple of months. Em has also grown a lot over the summer, partially because we changed her feedings to Pediasure from the homemade diet we were using because she couldn't tolerate any longer. However, I'm concerned about the Pediasure because of the amount of sugar in it and her increase in yeast infections. And to add to that, she has ringworm.
We have a regular neuro appointment next Tuesday, so I'll talk to him about it then.
I'm sorry for venting, particularly since so many of you deal with far more serious sz than we do, but I feel just sick that we'd thought the sz were gone and they were just hiding.