Roll Call 26/11/06

[glenda]

Hi Everyone,
Thought i'd start roll call and give Beth a rest...it's sunday here,a day early for some.All is well here..getting ready for the girls xmas party next sunday 3rd.They are so excited i'm worried they will burst. The tree is up ready..it does look lovely..Janet (who is intellectually disabled from birth trauma is 46yrs old.)sits and looks then reminds me how lovely it looks.I have listened to the same xmas carols over and over and over !!!! At times i want to melt frosty the snowman & blow rudolf the reindeer up..however it is such a buzz to see their faces with each item added.The outdoor setting has arrived along with the bbq..only the swing seat to put together.I don't think when xmas comes i will be able to better what i have already scene.I hope the family are well and the week ahead brings much happieness.Take care...God Bless. Glenda

[EAE]

Hello Glenda, all who post later, and all who come here to look and see what we are all about,

I do hope that any people who have gotten the diagnosis of PSP for themself or a family member will at some point feel comfortable in asking questions, or spend a few moments chatting with those of us who have been through this horrible disease first hand. There is a wealth of knowledge here which I dare to say no physician can compete with for they have only read about it and diagnosed it. We have lived it. You are welcome to rant, rave, cry on our shoulders, ask questions...in short, anything which will make this journey easier for you. It may sound like everyone else knows each other, but that's because we've been through so much together...and whereas we'd rather you had no reason to find us, we gladly welcome you into our circle. It may not make you feel any better, but from my experience, this disease only strikes the nicest of people!

It is indeed nice to check in and see that the roll call has already started! Thank you Glenda. What you are doing for the residents is so important, giving them something to look forward to. I can remember Mom's last Christmas. She was able to do so little and just watched things happen around her. I had turned the living room into a bedroom for us both since the bedrooms are on the second floor of my house and we couldn't do stairs. I would wake up early and turn the tree on first. One of those mornings when she awakened, rather than complain about all the things she couldn't do, she looked at me, and in speech which only I could understand, said, "Do you know how nice it is to wake up in the room where the Christmas tree is?" I guess I'll never look at the Christmas tree without thinking of that. She loved this time of year. Once I get mine up I think I'll try to spend a few moments in the wee morning hours just sitting to enjoy it as she did....

May the week ahead be gentle to us all....

Beth

[MariaD61]

Hello Beth and Glenda so glad to see you. The holidays are here! Wish my mom was here, I miss my mom so so much, i am always in tears not showing on the outside but my heart crys in the inside. I hear from others that has lost loved ones that it will get better! I ask WHEN? I know that God is able to heal my broken heart and give me peace therfore I will keep ,waiting and praying,praying and waiting! Death has never touched me as it has with losing my mom to PSP.I can rejoice knowing shes at peace. Beth i can also remember so of the things my mom would say. With PSP she became very short patiented and has always been outspoken one day a minister called to offer her prayer the lady prayed so long my mom said o.k. Miss thats enough by. My mom my brother and i laughed about that all day. Memories are priceless. Peace be unto you both. Rose

[glenda]

:D oh Rose that did make me laugh...(your mum and the minister) it will get better but it's early days be kind to yourself ..go with the flow & shed the tears that need to be shed.I still miss my parents it's been 4yrs...i dont think it matters how old we are..we are still the child they our parents.I think it shows the love that was shared between parent and child when we still feel the loss so deeply...psp is such a cruel hideous disease the impact it leaves before takes a longtime to forget.Stay strong my friend..know we care deeply for you here..you are never on your own ! luv G