Treating Lyme naturally

[littlemiss]

Hey all.

Haven't been on the forum for a while.

Diognoised after 7 years of being ill and finally now know I have have chronic Lyme disease, had some spinal lesions three yeras ago that left me in a right mess after I was treated for MS and had two years of IV steroids which didn't exactly help my situation.

I now have a great lyme specialist whom started me on 10,555mg daily of amoxycillin three months ago and then started me on Zithromax and Mepron two weeks ago after discovering I have babesia also.

Today I found a nurologist whom agreed I have chronic lyme and is starting me on IV treament asap due to extreme herx symptoms since being on the Zithromax and Mepron and I am bed ridden with symptoms. I needed a nurological diongosis in order for my insurance company to pay for the meds!

It kind of felt bitter sweet though! Seven years of some of the worlds finest nurologists both here and in Europe telling me I was not ill, then it was MS and then a phychiatric condition and was treated for Bipolar with meds which nearly eneded my life.

I now have that off my records thank god, 10 different tests at different labs confirming lyme and now positive for babesia, but after all this I am wondering if I should put myself through more drugs which could just make me worse and with no guarantee of ridding the lyme!

Has anyone out there treated their lyme with 100% natural therapy and been successful???

After all, it was a natropathic doctor whom found my lyme after I gave up on hospitals and nurologists.

I would rather do all natural treatment but would like to know peoples experience and if it has worked for them?? The way these drugs are making me feel is unbearable. I am vomitting all day long, have to sit on the toilet all day and now I am loosing my memory and speech difficulties and have numbness and tingling over my whole body and muscle spasma which are dring me insane.

Any advice would be great. Thanks guys : )

Happy thanksgiving all

Debs : )

[ainee]

G'day littlemiss,
Even after many tests over the years, the cause of my illness was never found. After reading about Lymes, perhaps I could have had that? - I will never know, as I successfully treated myself with an easy treatment for a sheep's disease which has similar symptoms - I had to do something - I don't eat grass or grow wool, but I was very ill and my 'sheep disease' symptoms were disbelieved.

I live on the land. In 2001, our sheep were scientifically diagnosed as with a neurological (nerve) illness, which has similar symptoms to many neurological illnesses in humans. I experimented with the simple treatment - also for human use - which suppressed and eventually reversed my symptoms.
I believe that the treatment I experimented with, could give better health to many, regardless of illness, condition, diagnosis or cause. My research backs up this claim.

I still take the easy treatment every day, to stay as well as I can. I take 250 mgs Vitamin B1 - 3 or 4 times a day, along with other treatments which I successfully experimented with. Don't take VB1 if on pain relief - and I'd advise anyone not to change any medication without seeing their doctor.
I wonder how many other people 'out there', have similar symptoms - with no diagnosis or the wrong diagnosis - and no known treatment.
ainee.

[6t5frlane]

Go To Lymenet.org.....Wealth of info there

[Buttons2]

Hi, the good news is that you finally know what is wrong & which co-infection to treat.

I understand what you are asking but am wondering why the Naturopath isn't willing to treat you? Could you possibly have the LLMD & the other doc work together on your treatment?

I've also suffered for many years & I strongly suspect I have Lyme but my only (worthless)lab test was negative.

I've been self-treating for the past few years & have seen amazing improvement. I take several herbals (sarsparilla,cat's claw,grapeseed extract) and B12,folic acid & some other B's. Just added magnesium to my regime. I also tried the salt/vitamin c protocol last spring....this was the single most beneficial thing I ever tried. I stopped using it because my blood pressure went too high. Do some research.

I've never been bedridden but I've gone through periods of using a walker to get around,extreme sciatic pain,extreme myoclonus (my first weird symptom),brain fog BIG TIME,memory loss,unable to assemble a sentence,anxiety attacks, deep depression, along with arthritis in my knees/hands. Lots more stuff that has come & gone including visit to ER for angina attack. I've had vertigo,dizziness,strange head pains,pelvic pain,often had sharp stabbing pains in various part of my body. Oh, and how can I forget that I've gained 30# & never had any weight issues in my life. The fatique @ times is so bad I do NOTHING all day.

Much of this has greatly improved! I feel hopeful this year that I will continue to improve. I'm counting on my own immune system to get me through this. I've never taken any anti-biotics & have given up on doctor's & insurance co.

Lymenet is a great resource. You can search for anything you might have a question about. The site has alot of active participants & yes you will find info on natural treatments.

Wishing you luck,Buttons

[lymebytes]

Hi Debs.

I am sorry you have been so sick, but I am glad you have been properly diagnosed and are getting treated. Steroids can make symptoms worse for people who have Lyme.

Having co-infections can complicate things. How long is your doctor planning on treating the Babesiosis? Going through treatment for this can be tough. Make sure you eat something fatty when you take the Mepron (peanut butter, cheese, etc.) or it will not be abosrbed properly. If you take the COQ-10 supplement, do not take it while you are on Mepron.

In my opinion, antibiotics are necessary (and anti-malarials for Babesiosis) to eradicate the infection, but doing things that strengthen and support the immune system is also important.

I know it is hard going through treatment, but it does get better. I have had Lyme disease and four co-infections. If I had not started treatment when I did, I would not be here now. I am still getting treated but I am much better than I was. I had a very severe case of Babesiosis. In my case, I think it was worse than Lyme.

It is important to learn as much as you can. I recommend reading "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner and Dr. Joseph Burrascano's treatment guidelines at http://www.ilads.org/burrascano_0905.html
He is one of the top Lyme doctors in the US and many Lyme doctors follow his protocols. He also gives excellent advice on diet, exercise, and supplements.

Hang in there okay?

[tmptmp]

When my Lyme disease (chonic neurological) was finally
and properly diagnosed (blood work after years of
suffering, misdiagnosis, et all,) IV antibiotics are what
cured it. Nothing else did. In my particular case it only
took a number of rounds of 6 week treatments over a two
year period because of two relapses)


Hey all.

I would rather do all natural treatment but would like to
know peoples experience and if it has worked for
them?? Any advice would be great. Thanks guys : )

Debs : )

[Sonsie]

IV antibiotics are what cured it.
What criteria did your doctor use to declare that you are cured? I've never heard of anyone with chronic Lyme disease being cured before.

[tmptmp]

What criteria did your doctor use to declare that you are cured? I've never heard of anyone with chronic Lyme disease being cured before.

My blood went back to normal. The damage to my heart and liver reversed itself. I stopped having daily seizures, et al. I was diagnosed in the late 80's. Aside from some neurological damage that did not reverse because of the late diagnosis (but got no wors,) I got better. I had no side affects from the IV antibiotics accept to feel better, immediately.

I would think that there are many who have been cured but may not write on this board. I write here to let others know that it is possible.

[Sonsie]

My blood went back to normal.
Mine has been "normal" for months and months, but since LD doesn't show up in blood work, this is meaningless according to my LLMD and information I've read about testing. My symptoms still reveal that I am ill. LD is a clinical diagnosis, remember.

[tmptmp]

My blood showed titers for years. It is only in the last few years
that that it has gone back to normal. But that's not the determining
factor - how I feel is. I am well and have been for a long, long time.
I lived with undiagnosed Lyme - and was ill for a long, long time.
I was exposed in the 60's and diagnosed in the 80's - years and
years of illness that got progessively worse and horrific when it
entered my central nervous system. I know what it feels like to
be sick and what it feels like to be well.

Believe me - I am well!
I no longer have Lyme.

I don't doubt that you know what's going on with you.
I expect the same.

[blimeyitslymie]

"Inflammation is the body's response to an injury or infection or
irritation. But with arthritis, the body's natural defense
mechanisms run amok and the usual infection-repair roles are
reversed to attack the body instead. That's what causes the pain of
arthritis.That said, there are more than 100 types of arthritic
conditions, including rheumatoid arthritis, gout, psoriatic
arthritis, fibromyalgia, lupus and Lyme disease, to name a few."
=======

http://www.southbendtribune.com/apps/pbcs.dll/article?
AID=/20070117/Lives08/701170452/-1/Lives/CAT=Lives08

South Bend Tribune
South Bend IN
January 17, 2007

Folk remedies may ease arthritis pain

KAT BERGERON
McClatchy Newspapers

BILOXI, Miss. -- What do gin-soaked raisins and copper have in
common?

Both are touted as natural or folk remedies for arthritis.

Forty-six million Americans have arthritis in some form or another,
and those who do, know that arthritis can be painful, slow you down,
and in some cases, be debilitating. The Centers for Disease Control
reports that in this country, arthritis limits the activities of
more than 17 million adults.

No wonder so many "home cures" exist alongside more modern
pharmaceutical medications and pain relievers. In addition to copper
bracelets and golden raisins soaked in gin, there are such commonly
heard suggestions as using magnets, drinking apple cider vinegar,
eating fresh pineapple, and taking gelatin and shark cartilage, to
name a few.Such folk cures -- nonconventional or alternative
medicine as some call it -- persist through generations, despite the
lack of supporting medical studies to prove whether they actually
work. You likely heard about them from your grandparent, or a work
colleague, or a neighbor, or a tennis buddy. Some purported cures,
like the gin-soaked raisins, are cyclical in their popularity.

"They persist because on some level they do help because they have
anti-inflammatory properties and people will notice some
modification of inflammation and pain," said Jim Borden, a certified
nutritionist associated with Five Seasons, a health food market in
Ocean Springs, Miss.

"But what I tell people is that with such things as raisins they're
only getting a little bit of a piece of their puzzle, and they need
to look further into how to prevent their health problems and how to
maintain better heath by controlling diet. Proper nutrition for your
body type is important. You need to know about yourself."

Arthritis literally means "inflammation of a joint." The word comes
from the Greek "arthron" for joint, and "itis" for inflammation.

Inflammation is the body's response to an injury or infection or
irritation. But with arthritis, the body's natural defense
mechanisms run amok and the usual infection-repair roles are
reversed to attack the body instead. That's what causes the pain of
arthritis.That said, there are more than 100 types of arthritic
conditions, including rheumatoid arthritis, gout, psoriatic
arthritis, fibromyalgia, lupus and Lyme disease, to name a few. The
most common is osteoarthritis, which the Arthritis Foundation says
affects 21 million Americans and is often associated with aging and
affects weight-bearing areas such as knees.

Despite a slew of modern arthritis meds and despite naysayers of
nonconventional treatments, folk cures persist and continue to
intrigue the afflicted. Finding their origins is no easy task, with
raisins as a case in point.

In the 1990s when popular radio announcer Paul Harvey mentioned the
raisin, there was a run on golden raisins and gin, and it has
returned in several cycles of popularity, including in 2006.
Political pundits had fun in the last presidential election when
Teresa Heinz Kerry, wife of candidate John Kerry, reportedly
mentioned the gin raisins.

Although the formula varies slightly according to what Web site you
check or whom you talk to, the basics are simple: Eat nine gin-
soaked raisins a day. Without a scientific placebo-controlled double
blind study, proving the efficacy of this folk cure is hard. It's
literally word of mouth, but that is the way of folk medicine.

"It's like making an extract of resveratrol, a flavonoid found in
grape skins," Borden said. He points to a Harvard study that shows
mice with resveratrol in their diet are thinner and healthier and
have a longer life span. He also points out that the substance is
found in grape juice, grape wine and other raisins, and that you can
buy resveratrol extracts.That's the way of these folk cures. There's
often more than one source.

========

At a glance

What: In the fields of natural or folk medicines, here are a few
commonly cited remedies for arthritis pain and swelling. Each of
them, over time, has been tried, scoffed at, poo-pooed and, despite
any medical evidence to support them, touted.

Special note: As in any non-traditional medicines, the user should
use common sense and his own research, including possible
consultation with a physician, before starting new treatments.

Gin & raisins: Take a box of golden raisins (sometimes called white
raisins); place in shallow container; cover raisins with distilled
gin; let soak for a few weeks until gin evaporates; place in jar;
eat nine raisins a day. (Note: Nine is the number you see most
often, but you'll also see variations).

Apple cider vinegar: Two tablespoons of apple cider vinegar in 8
ounces of water, three times a day. Some people sweeten with honey
or add baking soda for pH balance. (Note: www.EarthClinic.com says
if you stop taking this remedy for a few days, the symptoms return.)

Gelatin: You can buy animal gelatin capsules or you can make
gelatin, but instead of chilling it, drink it. Some suggest drinking
a cup a week, then more as you become accustomed to it. Some people
make concoctions with grape juice and pectin (a jam thickener, such
as Certo, that contains gelatin powders).

Fresh pineapple: Eat fresh pineapple frequently for the bromelain,
an enzyme found in fresh pineapple (freezing or canning is thought
to destroy the enzymes, so eat fresh). Bromelain also can be
purchased in capsule form as a supplement.

Copper bracelet: Some believe that copper is absorbed by the skin to
relieve joint pain when wearing a copper bracelet, but the results
are anecdotal and effects controversial. If you wear one, you might
want to avoid the ones with anti-tarnish coating.

Magnets: Static magnet therapy is believed to relieve pain by
increasing circulation, but that has not been proven by scientific
studies. The Web site www. About.com says magnetic treatment is
generally considered harmless unless it causes people to forgo
needed medical treatments.

****
Letters to the Editor:
VOP@sbtinfo.com

[ainee]

I've found that brown mustard seeds are good for inflammation. It took much experimentation, research, trial and error with my treatments to gain better health - but the brown mustard seeds, I believe, will ease inflammation, which seems to be a symptom in many illnesses and conditions - So if we could control the inflammation in the first place, the illness or condition may not become such a problem. The seeds also helped keep inflamation down after I had a bad burn on my arm.
I experimented with black mustard seeds - they seemed to be too strong. I experimented with pale seeds - they weren't strong enough. So I still take the brown mustard seeds when I need them. When I have discoloured mucus - I take the seeds for a few days - they seem to clear up the infection.
Through much experimentation, I found one teaspoon of brown mustard seeds - taken in honey, cold custard or other food, will activate when the body becomes hot - as with inflammation or risen temperature. I also took the seeds in hot food, this will activate the seed almost straight away.
This may sound funny to some, but I found that if my body didn't activate the seed, it would pass through my system in about 3 days, with the brown covering still intact. If I had inflammation or my body's temperature was risen, the brown covering would not be there - the seed would just consist of a little yellow ball, which would be the mustard. So in my research, it isn't the mustard that helped controll the inflammation, but the outer covering of the seed.
I only take the seed when I know I need it. I usually take one teaspoon a day for 3 days - then see how I'm going. Sometimes I take one teaspoon every second day for about a week. Experimentation is the key to this treatment. The cost is next to nil. It's not a drug - no withdrawl symptoms and no overdosing. But - like VB1 - mustard seed will take away the effect of pain relief - so don't take mustard seed if on pain relief.
ainee.

[2mag]

hi tmp

It is good to hear that you are well now.

During the month of January and February, I had 4 to 5 days in a row that were great - Not a spirocyte in site.

And then the Montezuma- Lyme Revenge returned - My LLMD says the Bartonella surfaced. Down in the bed worse off than when I started.

I did not keep up with my meds when I started feeling better - so I feel that I contributed to it - A tough lesson to learn

There are a few people in my city that have been healed --whether Abx or alternative - But they are living a normal life now


nevertheless, I do pray for that day - not knowing if it will be so

but God knows and will keep me in his Care

Keep on going tmp

2mag

[Ginny43]

Hi --

I haven't checked in because of being discouraged. I also spent a while trying not to take anything - no vitamins or herbs. Big mistake and I'm still not back to feeling I can manage life. This was last summer. Chronic lyme is life-long. The herbs must be also.

The new thing that stresses me is a nose so cold it hurts. Taking ginger has always helped with cold hands and cold feet. What can warm up a nose?

Due to hints here, I've increased the magnesium. I hope that helps with the skin burning/tingles/pain problem.

I'm always glad to read how everyone here is managing. You give hope, by example, of just keeping on and not giving up. Blessings to you all.

Ginny

[blondehart]

ginny, how do you use ginger for cold hands & feet??? My hands, feet & nose are always like icecicles. I also am feeling very depressed. I took antibiotics twice and am supposedly "cured" but I feel lousy. I take magnesium (maybe I should up it from the 500mg I take), B100 and methyl B12 to prevent a recurrance of the bell's palsy I had. I am so tired of taking pills and feeling lousy!!

[Ginny43]

blondehart -
I read about ginger on the web. www.quantumbalancing.com/ginger_root.htm is one example. I'm not too inventive, so I just sprinkle the powdered ginger in hot tea. It seems to help. Thanks for your reply, but I'm still looking for help.

Ginny

[tmptmp]

I count myself lucky. When I was diagnosed I was prescribed and IV antibiotic called - if memory serves - cefotoxim (sp?) That was all. No antibiotics in pill form or any other medications. Because the majority of my symptoms were neurological my doctor (in consultation with the head of the university hospitsl doing premier Lyme research at that time) wanted to make sure that the medication would get to my brain. Oral antibiotics are not as effective as IV fustion for this. At that time there were no premixed bags so I was prescribed the antibiotic in powder form, with sterile water, heporin and syringes; show how to mix and administer it. I spent one night in the hospital for the first infurstion to make sure I was not allergic and from there on out was home with a shunt in my wrist that was changed in my doctors office every week or so.

The doctors office and hospital was covered and the pharmacy bill ran in the neighborhood of a few hundres dollars.

Not likely to happen these days. But probably still doable with a doctor who is willing.

[Ginny43]

Questions -
How long ago were you diagnosed? How long did you take the antibiotic and are you well now? I certainly hope so and find it good news to hear of every one who is improving

I was prescribed the IV ceftriaxone (?) for one month and still had symptoms afterwards. That was four or five years ago. I still have symptoms, but since the drs. don't believe in prescribing any more antibiotics, I've had to struggle with herbs and vitamins.

I'm very tired of trying to guess how much of what will make me feel, if not be, better. Having hope is difficult to maintain, but I'm going to try a nutritionist next week. Someone told me this particular one helped her - not with lymes, but something else. Maybe he knows what to do to build up a destroyed immune system.

Trying, anyway. Blessings of hope to all who search.

Ginny

[tmptmp]

I was diagnosed in 1988. The first treatment was 4 weeks. When I relapsed (6 months later) the treatent with the same IV Antbiotice was 6 weeks. The seizure-like episodes that I was having daily diminished imediately with the first infusion. Everything took time although I began to get better with the very first infustion. The heart murmer took a number of years to heal. My liver went back to normal fairly quickly. Even with the relapses - I think there were two about 6 months apart which were treated immediately with 6 week rounds, I only improved.



"How long ago were you diagnosed? How long did you take the antibiotic and are you well now? --Ginny"

[tmptmp]

"...are you well now? --Ginny"

YES and have been for quite a while.

[boots]

I am new here. My lyme disease undiagonosed for months at least 8 months since first symptoms were great pain in left hip. That started March of 06- got cortisone shot for hip. I thought it was orthopedic problem as it was in March and I live in Florida for winter. Did not realize that I could have it in system for long time before it shows up. Then in Sept 06 the knee got as large as soccer ball. I was in Nantucket then and stupid doc on cape gave me another cortisone shot in knee- NEVER TOOK SERUM OUT. I had xrays and MRI. Finally in Oct went to head of orthopedic in U of P in Phila- doc there said nothing wrong with bones- and took 26 cc of serum from knee. I was at that time crippled- not walking . Told me lymes. I did the 6 weeks of doxy- no help and in Jan of 07 did the PICC line with Rocephrin. Still using specialists from U of P and the rheumatoid arthritis guy who giving me nabumetone and pain killers. Stomach and bowels went bad on Rocephrin. I was in lots of pain and no walking- no sleeping, nightsweats and then chills, pain, dizziness, some mini blackouts. Finally went to doc in Feb- did not like him- thought he somewhat weird. He took many blood tests again- the typical stuff- western blot and all the others. had another cortisone shot in knee.
Then finally in May I said- I have to find a specialist in lymes. I did my own work- found someone who could see me right away- a man who is a doc and his wife and kids have had it so deal with it for 11 years. He took blod tests and told me- first time anyone did- that I also had babesiosis and erlicheosis! So now on Mepron, Ceftin which is god awful- and Biaxin along with artemesian, Multigenics vitamins, cell renewal drops, flora, ultra flora drops, and other holistic stuff. The stomach and bowels are much improved, Take about a total of 4000 mg of antibiotics a day.
Next week more blood tests. Still have sweats, dizziness( no more wine) and still can't sleep although last night I tried no sleep pills(have taken half of a unisom for sleeping) and it worked. Use lidocaine patches on the knee when it is bad. still no golf or tennis- has anyone tried swimming?

[Sonsie]

I am new here.
Welcome! :)

I'm sorry you've had so many horrible problems, but -- and this might sound wierd to you -- you are very fortunate that you were diagnosed so quickly. The meds will make you feel better eventually, so hang in there and give it time.

Cortisone is the wrong thing to give to a Lyme patient, by the way. Can't remember what the problem is, but apparently it causes the spirochetes to flourish. :eek: So it's good that you didn't have more shots than that! Also, co-infections have to be treated before Lyme treatment can work. That's likely one reason that you had so much trouble with Rocephin.

Go here to http://www.ilads.org/guidelines.html and read the papers -- you'll learn that wine is not the only thing you should avoid. :( You'll find information on cortisone there too, I believe.

I have never liked to swim, so I can't help you on that! ;)

[lymebytes]

Hi boots, welcome!

As I was reading your symptoms, I was thinkg they sounded like Babesiosis. I am glad you saw a doctor who tested for all the co-infections. It is estimated that 60% of people who have Lyme are co-infected. Are you seeing Dr. S.?

Night sweats are a big symptom of Babesiosis. It sounds like the meds are targeting it. Make sure you treat it long enough. It seems that many people need at least four months of treatment or they have to treat it again.

Exercise is crucial to recovery. Ask your doctor if he/she thinks it is okay to swim. It seems like it would be a good form of exercise because it is non weight-bearing.

It is important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/burrascano_0905.html He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner.

[Ginny43]

Does anyone have any experience or knowledge about checking lyme from results of a hair anaylsis? I just got the results back from one - related to my trying to build up the immune system and just either live with or combat lyme that way.

The analysis said I had a problem with bio-unavailability of copper. The long list of explanations matched many lyme symptoms or continuing symptoms -- burning of the skin and exhaustion to name a couple.

I'm just wondering if there are some answers here to the conflict of doctors saying they treated me' therefore, being ill will lyme is no longer an explanation. Maybe the bacteria just unbalance all body symptoms and need restored somehow. ???

Have you read anything?

Still praying for us all,
Ginny

[Ginny43]

Sorry state --
So that last paragraph just lets you know how out of it my mind can get and why I rarely post anything. Gibberish helps no one.

Should have been = therefore, being ill with lyme is no longer an explanation. Maybe the bacteria just unbalance all body systems ...

The downward spiral of lyme affecting my mind is very discouraging.
It makes me worry a lot == and keep searching for the magic combat nutrient. It's there somewhere.

Don't give up, don't give up, don't give up.

Ginny

[Luvmycat]

HI....

I did 37 months of antibiotics and consider myself "cured" with no ill effects. (Fortunately, I have a cast-iron stomach & digestive tract!) The only thing I have left is some mild light-sensitivity when the Lyme cycles but other than that I am great.

Since Babesia is actually a blood-borne parasite which resides in the red blood cells, I can't think of a natural treatment that would be effective for that.

However, for Lyme some using hyper baric oxygen treatments and some claim to be cured using Semanto (cat's claw). There's a new book out that discusses the top 10 Lyme disease treatments. It's www.lymebook.com and my Lyme doctor is coming out with a book in October, www.lymedoctor.com I believe he discusses natural methods in the book.

And then there's Rife. There are some Lyme and Rife groups on Yahoo! If you Google it, you'll find it. The testimonials on there are really encouraging.

Good luck and I hope you are feeling better very soon! (I saw 14 doctors in 2 years so I can imagine what you are going through. I was a possible MS diagnosis due to brain spots which turned out to be Lyme spots and was also considered a nut-case! Now I know who the nuts really are! The DOCTORS!)

Carol

[ainee]

With so many possible diagnosis' for many similar symptoms which cross over many different illnesses and condition - I wonder when the scientists are going to come up with a simple solution.
I believe I have.
I had many MND symptoms - wasn't diagnosed with anything in relation to my symptoms - but I experimented with simple treatments which suppressed my symptoms - and after many months my symptoms started to reverse.
I've written about it on BT, in Multiple Sclerosis - MOT - Mini Oxygen Treatment by ainee - April 2007 - which is now a locked thread.
I probably have the unknown cause/s still present, but the simple treatment has repaired damage to my nervous system and reversed my symptoms, giving me better health.
I pray that my experience may help someone else to gain better health.
ainee.

[lymebytes]

Hi Ginny. How long were you treated for Lyme? Did you have any co-infections? Were you treated by a knowledgeable doctor?

If you are having the same symptoms you had with Lyme, then it is likely you were not treated long enough or aggressively enough intially. It is my understanding that most Lyme doctors treat until all symptoms are gone plus at least two months longer.

[Erin]

With so many possible diagnosis' for many similar symptoms which cross over many different illnesses and condition - I wonder when the scientists are going to come up with a simple solution.
I believe I have.
I had many MND symptoms - wasn't diagnosed with anything in relation to my symptoms - but I experimented with simple treatments which suppressed my symptoms - and after many months my symptoms started to reverse.
I've written about it on BT, in Multiple Sclerosis - MOT - Mini Oxygen Treatment by ainee - April 2007 - which is now a locked thread.
I probably have the unknown cause/s still present, but the simple treatment has repaired damage to my nervous system and reversed my symptoms, giving me better health.
I pray that my experience may help someone else to gain better health.
ainee.

Ainee, I pray that your experiments dont cause someone to get even more ill... You've said that you're not a doctor, so please, dont post messages that will make people think that you can help them when you probably cant.

[ainee]

G'day Erin,
I believe MOT probably can give anyone better health - and until someone proves it doesn't, how can anyone say it wont?
Many people on BT give info of what they take to gain better health - some are alternative medicines and treatment - some drugs, which may or may not be suitable for others - some being treated but still haven't better health, even after years of medication - treatments - time - pain - suffering and cost.
I wonder how many are like me - undiagnosed, suffering symptoms for which a cause cannot be found, despite many tests. I wonder how many people are living from day to day praying for any help to relieve their suffering.
My experimentations after many months - ended up as my successful treatment. I can't for the life of me see how MOT could cause someone to get even more ill. If any treatment - whether it's alternative or not - gives a bad reaction or isn't giving the relief it's supposed to, then surely the person would stop taking it. I don't know of anyone who has suffered from having a vanilla milk shake - or a honey sandwich etc. and if they are allergic to anything, then surely they would know to steer clear of whatever it is. I certainly steer clear of medications my doctor put me on, because of a bad reaction.
I've posted my info - as simple as it is, which was quite effective at suppressing and eventually after months of research, experimentation, trial and error, reversing my many horrific symptoms to gain better health that I pray one day that others may enjoy.
If it had been just me who gained better health, then I'd have thought it was a fluke that I got better, but several other people have said they had better health while they were taking what I suggested.
Yeah Erin, I'll keep praying to, that someone will eventually take it on board.
Have a nice day.
ainee.

[Erin]

Ainee, you've admitted that they're your own personal experiments...you keep calling it a treatment, you even gave it a name...you're not a doctor, and you should not be telling people that this stuff will work for them.

You've only "tested" your "treatment" on yourself...just because it works for you does not mean that it'll work for other people, and just because it hasnt hurt you, doesnt mean that it wont hurt other people.

I'm sure you didnt use traditional research techniques for your experiments, did you use a control? Did you have volunteers who knew what they were getting into that you observed under your "treatments" that you kept records on?

There's a reason why doctors have to have a license to practice medicine. You dont have that license and you're leaving yourself open to possible lawsuits by suggesting these "treatments" to people.

[ainee]

G'day Erin,
Isn't BT a forum for people to give their information, free of charge - as I am doing - in the hope something may help others have better health?
Yes, my experimentations became my treatment. I'm not all that worried about how some read the words - either experimentation or treatment - I'm more interested about getting my story of survival "out there " for people to have a choice - to read others success stories, which mine is, whether some believe it or not.
I recorded everything I took, how long it lasted etc. I didn't have any medical help, although I kept my doctors informed as to what I was doing - they didn't believe something so simple would be of any significance.
I don't know why some try to shoot a messenger down in flames at every turn. Can't some leave it up to others to decide if they try something or not - I always recommend that people should see their doctor before changing any medication - even before having a vanilla milk shake or a honey sandwich. Yes, these along with other simple treatments suppressed and eventually reversed my many horrific symptoms. It wasn't what the treatment was - it was what it did in the warmth and moisture of the body which made the difference.
Have a nice day,
ainee.

[Cry Tears]

I'm wondering seeing the vast array of cures after just a few treatments, to months-and years of treatments with mimimal-mild recover,
to totally healing, or no changes in health whatsoever
Using high powered antibiotics and other concoctions to even a "cure" just by
using oxygene via the MOT treatments as a cure for Lyme disease....
I'm wondering if the Lyme bugs are different depending on the origin of infection
and thats why some are cured and some aren't.
And I'm wondering if there really was a disease or co-infections if at all in some
who claim to have been cured by just using herbs or oxygene.
I'm not trying to be controversial or stir up trouble here in this forum.
Beleive me....I know suffering first hand and have spent months of being totally bedridden
while all the neurologist clearly could see my sufferings and EMG and NC test proved
I had moderate level PN and years of severe anemia from a hidden aneurism like mass (AVM)...
so for years all I did was suffer and waited for death to take me home.
My prayer then each nite was "GOD...either Heal me or Kill me!" NOW!
Well...I didn't die...but it was a long road back...and Rose here on BT helped me learned most of my issues were B12 deficiency.
Well DUH! Doctors! I'm missing some of my small intestines where is aborbed and standard protocol
to give to people with such surgeries! OMG, then missed this totally. I am so angry I could spit nails at them!
It has been suggested I have Lyme disease...but I'm not too sure of this.
I do much better with a gluten free diet!
Blessings to all fellow sufferers....been there...done that! cheryl

[Erin]

Ainee,

I'm not trying to flame you, but I just dont want people to assume that what you're advocating is a proven treatment. Yes, you're probably going to say that you've proven it...but you havent. I dont see any proof that it worked...all we know is that you say it worked for you.

If you can find an actual doctor or researcher who can replicate your findings, and if they can prove that it can be used as a real therapy for neurological conditions, then...then I might not be quite so outspoken at thinking you're a quack whenever you start to talk about this MOT thing that you've called your "treatment"

[ainee]

G'day Cheryl and Erin,
Cheryl - I'm not claiming MOT to be a cure for anything, but as it increases the oxygen content and oxygen circulation, I believe it will give better health to many. There are many different illnesses and conditions which display similar symptoms. Research found many MND/neurological symptoms in animals, are caused by a toxin from eating toxin plants etc., just like the MND/neurological symptoms humans get from toxins/poisons. I added this up - put 2 and 2 together - and discovered it didn't matter what the cause was, from either virus, bacteria etc., which transmit toxins, or whether it was from injury which can cause a toxin because of lack of blood flow to create and anaerobic condition in which anaerobics (living without oxygen "bugs") can thrive. Even with Lymes, it probably isn't the initial cause which effects the nervous system, but the toxin it creates.
My research has found there are many illnesses and condition which have no successful treatment - perhaps this is because the medicos are trying to treat the virus etc., and not the toxin it leaves which destroys the nervous system.
VB1 is a more water soluble vitamin than VB12, therefore VB1, VC and the other things I've mentioned which also have high water soluble properties of carbon and hydrogen (or are a volitile compound,) are absorbed into the body more quickly, to increase the circulation faster, to defuse the toxins and eventually repair the damaged nerves. These are my own personal findings and I now enjoy better health.
Erin - after what I've been through, nothing much makes me flame. Yesterday I spoke to the local hospital scientist - whom I'd spoken to months ago - she again suggested I contact universities etc. I've been doing that for about 6 years with no success. MOT is not something which can be tested in a test tube - nor in mice - because it doesn't work in a glass tube the same as in the body with its warmth and moisture - and the mice can't tell what it feels. I keep praying that it won't be too much longer before some level headed person - or someone who is as ill as I was - is going to look up and listen.
Have a nice day.
ainee.