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pinkylu
03-19-2009, 03:05 PM
hi there, my name is lu.

im new here and this is only my 2nd post. :)
thought id drop a line here just to say hello to everyone:)
its kinda weird to write here, im not sure how i can help others here but if i can i will:)
just over a year ago i had a craniotomy to remove a colloid cyst from my third ventricle
i suffered from shocking migraines (that would last for days), positional pain over my forehead,eye pain, loss of balance, vertigo, and other problems, behavoural changes, paranioa etc. could not get out bed in the morning, (morning migraines were the worst!!) and a g.p who ignored my problems untill i was on the verge of falling into a coma!!

i found my hospital treatment very upsetting and confusing, the last year feels like ive been pulled away from my normal life and thrown into someone elses nightmare!!
im so glad i found this forum, everyone here seems lovely and supportive.

anyway, now ive finally plucked up the courage to post here, hope to speak to you soon:)
thanks lulu

-------------------------------------
colloid cyst removed by craniotomy march 08,
severe hydrocephelus, short term memory issues,
post op heamoragge, blood clots.
1 year down the line!!

LIZARD
03-19-2009, 05:15 PM
Hey, Lulu. :)

I'm so sorry for all you have been through! :( (((((((Lulu)))))))). BT's colloid cyst forum is here: http://brain.hastypastry.net/forums/forumdisplay.php?f=120. I know they can help. :)

LIZARD :)

Buttons2
03-19-2009, 06:13 PM
Welcome to BT Lulu. I hope you'll soon feel right at home here! Hopefully this next year post-op will be much better for you.....

pinkylu
03-21-2009, 10:31 PM
hey there lizard and buttons2!!
thankyou for your replies:)
i will have a good look through the colloid cyst forums:)
off for my 1 year post op check up and mri next week!!
eeek!!!



thanks again:)
lulu

chunky
03-22-2009, 02:15 AM
Hi Lulu welcome to a great bunch of people who can identify with you, we are here to support one another and sound off to those who understand what we are going thru.
Donna

bhatA
03-22-2009, 10:56 AM
Lu

sorry to hear about your colloid cyst. As you are based in England, you can choose the hosp. the hull royal infirmary has a good record in colloid cyst removal and post surgical treatment. You should demand your GP refer you to HRI or Cambridge for full assessment.

hope you get well. All the best