Is this true about Demyelinating of the brain?

[BigTom]

I was told I could not possibly be possible to have children with my myelin sheath with white matter. While I had a baby girl so some evil people are saying my neurologist are wrong. "If I truly was in chronic pain and had any disease that attacks the nervous system I would be unable to bear kids. It makes them have no sperm count." Where do idiots come up with this crap? Just to attack us with chronic pain?

[Nana4&cntn]

Welcome to BT BigTom!

Congarulations on the Baby. There is nothing like a baby to make the world a better place.

I have met some very ignorant,arrogant and just going thru the motion docs.

I think you should take your baby girl with you to your next appointment, and say. WRONG

Find a new Doc that will take you seriously, it sometimes takes awhile, but you will find one. Do you have a University Medical Center near? I would start there, they have the resources and docs to give a proper diagnosis.

Take care,
Kathy

[mrsdoubtfyre]

and this is a big IF...

You have nerve damage in the hypothalamus and pituitary area, you may not
make FSH and LH which are hormones that control sperm formation.
http://users.rcn.com/jkimball.ma.ultranet/BiologyPages/P/Pituitary.html

If you take alot of opiates for pain, this family of drugs suppresses testosterone production in males, and may impact fertility and erectile ability.

Patients who show damage to the hypothalamus and/or pituitary, are typically offered hormone drug therapy to replace these lost hormones.

I have heard many patients relay horrific statements made by doctors whose
egos have gone out of control. I find statements like this disturbing.
Either the doctor had an inflated ego...or he likes to use BIG medical words
to impress patients. These patients then, who are typically unfamiliar with the terminology and also frightened and not listening 100% then get the gist wrong and misapprehend the whole explanation.

Both of these scenarios IMO are the doctor's fault when they happen. A doctor like this is "too important" to help YOU understand your own medical issues. I think this is basically cruel and arrogant. It can be fascinating or even funny (which I don't agree with at all), on TV by HOUSE for example. But it
is not funny when it is you who encounters a doctor like House!

I don't see exactly WHO told you this. Did your doctor? or someone else? It is not clear from your post. It IS up to your
doctor to explain your case to you clearly.

[Mark N]

Congratulations on your baby girl. As to where do people get these ideas, it is a case of a little knowledge can be a dangerous thing. Having a little knowledge they think they know all there is about your condition and pain. Those of us with CP see how those without CP trying to regulate and tell us what we need or more often don't need with medications. There just are people that think they know it all and say things that hurt us without regard for the hurt they cause.

[BigTom]

That You for your kind posts! This was family that said I said "I was faking my MS because they cannot visual see my disease." "Tom cannot be the father of his daughter (Married to my wife for 23 years since I was 18.) because people with MS cannot have kids!) So these people go on the internet and start attacking me. One person had the arrogance to post on the internet that I was "buying street drugs, faking my MS that my neuros were Quakes!" They want to be in wheel chairs and I have heard some talk about the guy with Peripherial Neuropathy as a fake!) Even a wheel chair is not good enough for them! We MSer's just enjoy our pain and the wonderful L'herrite's and of course the attacks of eye problems. You know that fun burning and pins and needles on our head and the burning on the spine(Sorry I am just being facious! :)!!) One thing that I have learned is that arrogance and fear are two key enemies of all who have diseases. Alot of those without ailments are ready to attack and are devoid of emotional support. It is strange to watch them get sick and want a pity party which I have seen! Some Fake Friends (Joan Jett Song) and family are afraid and do not educate or educate themselves just enough to attack us. "MS is no big deal there is a cure for it!" Not kidding that! "ALS is not a big deal!" This is the wicked family and fools I am dealing with. They have attacked me since the onset of this debiliating disease.



Kind Regards Your Friend BigTom

[Mark N]

Tom, it is bad enough when people around us say things like that but to have your family do it is a worse betrayal. No matter how good a family you have there are always questions and concerns about our meds, pain, and disability. But in good families things are talked out and our families believe what we tell them. I wish that your family were more supportive but it may be time to separate your family from them. It is much better to be surrounded by supportive people when you are facing the results of MS down the road. It is just hard to believe people and the way they act some times. This is a good place to come and let it out any time it builds up too much. Just focus on your wife and your new girl as they are your life. I know my kids did more to get me through than any other family members as they were always supportive and saw my pain and the impact of my deteriorating spine. Between them and my wife I have all the support I need. I know your daughter will grow up learning about MS and being one of your best supporters.

[Nana4&cntn]

Tom, I agree with everything Mark said! There are so many judgemental and know it all's, NOT who think they have the answers. You and your wife know the truth and that truly is all that matters, The beautiful baby girl is the bond between you. Let the negativity take a ride and keep away from it as it is toxic.

Take care and enjoy your wife and daughter,
Kathy