PDA

View Full Version : Death (Bactrim) to a young woman near and dear on Sunday


jtroy
02-03-2009, 07:25 PM
Every day when we put something (read medication) into our bodies we take a risk....EVERY SINGLE TIME NO MATTER IF YOU'VE TAKEN IT BEFORE...and so a recent event that has shaken me, something I've always known about...and it pisses me off.

My wife is a 1st grade teacher and for the last couple of years she's been blessed to have an assistant in her room (small town here.) This person has, of course, become close to her and also is near and dear to me (anybody who makes my wife's day easier is golden to me.) She also has a sister that is from our town...lives an hour or so away...and has an inspirational story to me (since my little sister has been addicted to Methamphetamine for 15 years or so.) She's also my age. I've only met her...my wife knows her better...but she lived an hour away to avoid the small-town "stuff" even though she was on a better path.

This woman was very addicted to Meth at one time. It caused her alot of trouble with everyone. Also, she was in a relationship with another addict and was abused by him. Long story short she kicked the guy out of her life, got treatment, and was clean....and had been for a long time....today she was a functional, working, mother of an 18 month old baby and 4 year old. Those stories inspire me as I know my little sis can kick it if she wants to.

Now the story: a week before this past Sunday this woman took Bactrim for potential Strep throat...she's taken it before...the doc knew that it could cause some rashes but she's never had a "reaction" great enough to cause the doc pause (dummy.) Lately, i.e., the last couple years, she's taken it with absolutely no ill effects....which should be a warning about all meds but particularly Bactrim. So she took a dosage and within hours began to feel like she had the flu...which she figured was normal....and so she took her dosage and went to bed.

When she awoke she had blisters in her mouth and throat...as well as rashes more severe than she'd ever had in years past with Bactrim. Called the Doc...was advised her mouth and throat "discomfort" was just the Strep, continue taking the stuff and call if it got worse...well, it did before she even had time to get another dose....her entire mouth was blistered and now her "rashes" turned into blisters....she called the office and they told her to get to the ER.

Within 12 hours she had to be intubated because all of her mucosal surfaces were blistered. Within 24 hours she had 3rd deg. "burns" on a large part of her body...she was transferred to Oklahoma City to a burn unit....24 hours after that 100% of her body had 3rd degree "burns." The obvious culprit being the Bactrim and although there are a ton of people allergic to it there are a ton who are "not" that take it and end up in a similar situation, though usually not so severe. You'll even find "lawyers" who "specialize" in suing Wellcome or generic cos over JUST this drug....which I find telling.

So, this past Sunday after a week of fighting she died in that burn unit. She leaves behind a huge family, 2 babies that now have only a father, a sister who may never be able to come back to my wife's classroom...but should in due time b/c of a large support system there. This woman kicked an abusive man, kicked Meth, kicked feeling like she was worth nothing....married and had beautiful kids....and was taking something every family doc scripts out every single day (who also needed his patient to be intubated before he realized wtf was going on) only to kick a sore throat in order to get back to work.

People often report being allergic to "sulfa" drugs. The thing is this: most if not all sulfonamides are potentiated (basically made to work better...won't get all scientific here) with something called Trimethoprim. And Trimethoprim call also cause an allergic reaction or hypersensitivity. I can't comment about people only animals...and what I know is that there is also a problem with "sulfa drugs" in animals as well....and this sucks for all of us because for reasons that'll only take longer these meds are great for UTI's, kidney infections, etc. My question, and it has plagued me for years, is if the huge aresenal of other meds we have is so small and less effective or whatever reason...basically I wonder if potentiated sulfonamides are worth their increased risk.

Why not try Amoxicillin, or a quinolone, or something else for her Strep throat? The questions go on and on....like, why give a patient with a known hypersensitivity to Bactrim that very drug...for STREP THROAT?? I'm mad at the guy but I cannot hold him responsible...as a matter of fact...I can't hold anyone responsible...and that makes me mad to. Her family will probably get a chunk of money from whoever made the particular pill she took which will likely at least pay for her kids' college....but it's just not worth it.

Too many times I saw this in animals....and I'll tell you that although I found the severe TENS/Stevens-Johnson syndrome to be even rarer in animals....there are likely more dogs that have dermatological issues with these meds (which so often are scripted by vets first when likely a cephalosporin would be better.)....and all in all I'm really starting to question Trimethoprim as being more of the culprit....maybe the docs here can comment. Either way our community is devestated and my wife is very devestated. And tommorrow I get to attend her funeral.

Just a long post to remind all of us that it doesn't matter whether you've taken something before, take it all the time, etc., there always always is a risk with taking a medication. If you are allergic to a sulfa drug don't you ever take it. As for me and my family I'm resorting to some old-fashioned empirically based, totally biased, information and not allowing it...and a doc will have to show me a significant reason why another wouldn't also be effective.

Wishing you and yours the best,

T. Jones, DVM

Pharmacist.steve
02-03-2009, 09:55 PM
Those allergic to sulfa should also take care in taking some diuretics (Lasix & Diamox) in particular and any Cox-2 inhibitors (Celebrex)...but then again .. I routinely see pts who are suppose to be allergic to penicillin being prescribed cephasporins.. without problems..

Of course, there was a study in the early 70's where a hospital tested everyone coming into the hospital that said they were allergic to penicillin and only 50% were actually allergic..

jtroy
02-04-2009, 03:41 AM
Good point Steve...certainly those with a known hypersensitivity to sulfa antibiotics should be cautious with sulfa diuretics. I knew that Celebrex was a sulfa Cox-2 inhibitor but I was not aware of there being a problem with it causing hypersensitivity...who knew? I think something I've always known, even preached before, but maybe never really digested and thought about during a quiet time of pause, is that truly every time we take meds there is a potential for great harm and death. We get so caught up in the pain because it just plain hurts so bad, and we cannot focus, and we just take the meds....

For those friends, neighbors, family members, spouses, children, bosses, etc., who think we are just "pill-poppers" and the pain is just in our heads....I wonder if they realized just how much risk we are willing to take in order to have a higher quality of life or greater functionality....I wonder if that might just change their view a little.

I know I view each of us differently after this....particularly those of us who really truly have thought about this risk...told our spouses where to bury us and our wishes should we be gone...nobody wants to take meds. I despise them and I've had to take dosage levels of medications that are at the least extremely rarely taken and I hate it...I worry deeply that I'm causing long-term problems with my liver or kidneys....but I'm willing to do it in order to function at home instead of the hospital and also be able to interact as much as possible with my daughter.

Now I just need to worry about the funeral tomorrow...it's exactly 12 hours away.

Regards,

T. Jones, DVM

Mark N
02-04-2009, 05:12 AM
Troy, sorry to hear of her death and the impact it has on those close to you. It is a good warning to each of us as much of our medication isn't without dangers. One thing we have to factor in though is that pain itself can cause our deaths for many reasons. The meds are a trade-off as you say so that we have a better life but also so we don't lose our life because of pain.

The problem with the woman shows that we need to be educated enough about our health and the medication we take so we know if we are at risk with a new medication for us. We can't just count on our doctor to know, we also need to know as much as we can.

Diandra
02-04-2009, 01:06 PM
Dear Troy,
Your anger and frustration for something so avoidable is very understandable. What a tragic loss, for so many. It is one of those situations where you can't stop thinking, "If only....if only...". I am allergic to sulfa and if nothing else, I will heed your warnings and Steve's warnings not only about sulfa but about other drugs to be concerned about. I had no idea.

My prayers to her entire circle of family and friends, you and your family included.
God Bless you,
Diandra