View Full Version : central pontine myelinolysis -need help!
pjoseph
01-27-2009, 11:23 PM
My husband was diagnosed with central pontine myelinolysis in May 2007. He cannot walk, speak or take care of himself.I need help finding treatment and therapies for him. Can any one help.
Thanks.
Pjoseph
Buttons2
01-28-2009, 12:54 PM
[/B]As a matter of fact we can help you! Please go to "member's list" at top of page. Then go to far right to "search member", type in WhataBreeze (exactly as I've typed it).
Breeze is a survivor & advocate,if anyone on the planet can help you it will be him. Best of luck to you & let me know if you have trouble finding his posts. I believe he's also posted his email on one of the threads? If not I do have it somewhere so let me know.
Buttons2
01-28-2009, 01:33 PM
I've sent you a PM. Also,I want to invite you to join the "emotional support" forum. We have a great bunch of people there that try to post daily & provide as many cyber hugs & support that we can. I'm guessing you have alot on your plate to deal with & could use some caring friends.
WhataBreeze
01-30-2009, 04:21 AM
You both have a PM on the way. No I'm not "Superman," but I do TRY HARD! The best to everyone from Franky and I, WhataBreeze. G-d Bless.... ;)
Mal L
01-30-2009, 08:26 AM
I checked the ninds link, and found that the cause is too rapid correction of sodium deficiency -- iatrogenic, in other words. This is terrible, and I am wondering what is being done to prevent this disaster from happening. Or, are they closing their eyes to it.
Buttons2
01-30-2009, 02:06 PM
You are absolutely right....this is terrible. Breeze now dedicate's his life to being an advocate. You might enjoy reading his posts. He can use all the help possible,so if you're interested please send him a PM.
Thanks
Buttons2
01-30-2009, 02:09 PM
Breeze, it's amazing to me how you show up just when needed. I see this as a cosmic connection. I'm also very relieved to know your mother is still alive & Franky too!
(((((hugs)))) and keep up the fight,you are a very special guy!
vBulletin® v3.6.8, Copyright ©2000-2009, Jelsoft Enterprises Ltd.