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Duchess
11-16-2006, 01:00 PM
hi friends of RSD :D . i am from south africa. february 2005 i had carpal tunnel surgery to both hands. i had decided that i would have both hands done at the same time. i had decided this so as i would only have the 2 weeks off work and not 4 if i had one hand done at a time. after the surgery everything was fantastic till about 3 weeks later when i almost climbed the wall with pain in my hands. luckily for me my OS had also had CS done on his one hand so he knew that there shouldn't have been any pain. it was mid april when he told me this was RSD and that i should go to the pain clinic. now in south africa not much is known about RSD, so i'm thrilled to have internet and have found this forum. it's almost 2 years now and i still have it. the only thing the pain clinic did for me was to tell me never ever sit with your hands curled up and to constantly have them moving. fortunately for me i have read a bit on the internet so i was wise to not sit with the hands curled up. this has prevented my hands from becoming deformed etc.
i have now got this RSD in both my feet and my back. i've been medically boarded from work because of it. if i go shopping i use my crutches because after 5 minutes my feet burn like ****.
i've also had some neuralgia on the right hand side of my mouth. i've been to the dentist 'cos i needed some filling and i just have twice the anesthetic instead of just the one dose. i've had crowns put in the right hand side and the dentist now numbs both the top and bottom of the mouth to help me.
i was on all these medicines given to me from the pain clinic but i decided in february this year that i'd had enough and i was not going to continue taking them for the rest of my life. the only meds i do take is the painkillers. i have morphine as well for the days when i just can't cope.
i have seen soooooooo many doctors, neurologists, neurosurgeons, OS etc and they all say they've seen RSD in 1 hand or foot but never in both and they stare. i get quite annoyed 'cos i'm sure i'm not a phenomenon lol.
anyway i just thought i'd introduce myself.

Diamon Lil
11-16-2006, 01:29 PM
Hello Dutchess: Welcome to the board. I am sorry it is because you have RSD but this is a good place to come to for support or just to vent. It is not uncommon for RSD to spread to other parts of the body. Some people have it full body. Many doctors in the United States do not know much about RSD either. You will find that asking questions from those who have it is helpful. Again, welcome to the board. Regards, Lil

kathy d
11-17-2006, 08:56 PM
Duchess,
Hello and welcome to this wonderful Web site with the greatest bunch of RSD friends you will ever find!! It took me several months to find this site but I often check it just because the information from the postings is so current. Also, it is great to read stories of people in the same situation as yourself. It gives me support to go on. I had my right foot run over [and sat on] by a car 21 months ago and have had the RSD spread from my right foot/leg and then all over my ENTIRE body since then. I have done the run of the mill doctors and had some good outcomes from the Lidocaine IV. However, after a horrible doctor visit where the doctor yanked and pulled on my entire body my body went nuts and I am left in severe pain each day with it getting worse and worse. I am waiting to hear when I can have the Ketamine IV done with Dr. Robert Scwartzman in Philadelphia, PA [USA]. It is so wonderful to speak to you especially from another country. It shows one thing...RSD doesn't care where you are from...it just rears its ugly head whenever it wants to. Welcome and I look forward to speaking with you.
Take care,
Kathy d.

Duchess
11-18-2006, 10:34 AM
thanx for the welcome peeps. :)

frogga
11-22-2006, 12:12 AM
hey duchess

don't I understand!!! hate the way drs are like - well it only happens in 1 limb..

NO.. it doesn't..

drs are silly!

welcome anyway! (im another full bodyer)

love rosie ***xx