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Miss.BrainAneurysm

01-24-2009, 08:09 PM

Found it...whew
Hi, I am new...and I am having trouble with my condition if you will....I was diagnoised with a large rare brain aneurysm in the month of April 2007.
I was having eye issues, distorted vision, and pressure and went to see the eye Dr. they kept telling me my eyes were ok...well after a year of having this eye issue, I talked with my regular Doctor....I went and saw another eye doctor..I was in his office for like three hrs...tests and all, he told me I had PAPALADIEMA (spelling) meaing a mimic like tumor....????
He insited I get a MRI, and CT scan right away, and he called my doctor, I had an MRI the next day.
My doctor called me the next day ,and said I have good news and bad news.... the good news is you do not have a brain tumor...Hello I did not even know they were really looking, the eye doc. kept saying to me you will be fine....so then my doctor said the bad news is you have a large rare brain aneurysm...I was shocked....but then I had to get another ct/scan and everything was confirmed...
I made an appointment with the neurologist...and wow the first doc, was young and ready to fix me if he could....Hold on DOC....I was not comfortable with his wanting to do this and that...My mom , she is a nurse, and my husband were both like "something has to be done"....
Let me back up a bit, they also said it looked as though I have had this all my life, I just turned 40 this January...I thought if that is the case, then maybe I should not mess with this....???
I also, when we left the Doctors that day....had a peace come over me, and I felt as GOD was with me, and I decided right there, that I did not want anything done....why risk my health I have now, to maybe stroke out, or die.....
I continued to seek other Doctors opinions and had to get an angiogram, going through the groin area to the head...WOW the ANEURYSM is huge, I want to share the pictures to family out of state, but cannot get them off the disk.....
The one doctor who is the best around, did my first angiogram and said nothing can be done, we need to just watch it and have another angiogram the next year, I had the angiogram last year with yet another doctor, and he to said nothing can be done...
So now I need to get MRI, CT scans and watch the large monster in my head....I am blessed however it is not a tumor, and that I have some support, but people really do not understand how it is... to know that there is this huge monster in your head, and there is nothing you can do....
I joined this site , to get support and maybe be able to support someone else who is in this situation...as I stated before, God has been with me...and I could not have children, I realize now that God was saving me from maybe dying by having children, ( child bith) it can rupture a brain Aneurysm...Now I understand the power of GOD...and he has a plan, and I believe everything happens for a reason.....I just need friends who know how I feel, my emotions get the better of me at times.....
I will try to help anyone I can.....it's tough knowing when you have a condition....
May God Bless you all...
Thanks for letting me tell my story....
Miss. BrainAneurysm