Cidp and insurance

[cerberus]

I have been recently diagnosed with cidp and was wondering about insurance coverage My insurance wont cover the amount of medicine that the doctors want me to take Has anyone else had this problem and how did they get around it Any help would be appreciated Thanks

[MAC36]

Yes I am 36 and have been dealing w CIDP for about 14 years. I've tried just about all there is out there but am now actively looking to get different or newer treatments. The costs are a big problem so my friends have suggested having a benefit in June. Looks like its gonna help me get what I need. Can you do something like that? I hope to get more awareness and eventually help others by hosting more benefits in the future for myself and others ith CIDP. What industry do you work in?? there may be a foundation that will help financially...the process is tough but worth it.

[Mal L]

CIDP = Chronic Inflammatory Demyelinating Polyneuropathy, in case anyone wondered.