Jennifer27
01-17-2009, 08:44 PM
Hello,
Just wanted to introduce myself to everyone and i am hoping that being apart of something like this will help me cope with having epilepsy. I was diagnosed when i was 16 i am now 24 and having a hard time because all of a sudden i am having seizures and the docs say that my meds are just not absorbing well after being on the med for 8 years. But for some reason i feel like there is more to it but i feel like i'm really not getting heard by the docs. Its all because the main fact is that there is no cure and no doc can guarantee anything. Its just a matter of changing meds and trying to figure it out. I feel like a rat in a lab and i feel so terribly up set. Why so upset now? when i have had it since i was 16.... well my meds always took and there was never an issue. When i ever had seizure it was usually do to partying to much (alcohol) so that has stopped and i no longer do that. I started a lot research since this all happened thats how i got introduced to something like this and have realized that alot of epileptics experience this and wonder how they live there life when they really don't know if today they are going to wake up and realize that they had a seizure. That scares the **** out me (excuse the language) but that is the truth. I feel like i will never get past this and live happily if i have to live in fear everyday and every moment. How does one do this?
In the last past week i have had seizures at work. One grad mual and the other tonic/clonic seizure. It causes so much fear! I am also a mother of a 22 month year old and not knowing whats going on puts great fear in my heart for my daughter. And having these unexpected seizures just puts a big hold in my life and i have to start living differently...or do i? I am so lost and confused and i feel so alone. any advice will help i just don't know what to do anymore. Or you can email me at Jennifer.koepp@yahoo.com to discuss things back and forth there as well. Like i said i'm new at this so hopefully i can find my way back to this site to read your advice and comments. Thanks for your time. And if there is any way i can help you just say it and i will do what i can.
Just wanted to introduce myself to everyone and i am hoping that being apart of something like this will help me cope with having epilepsy. I was diagnosed when i was 16 i am now 24 and having a hard time because all of a sudden i am having seizures and the docs say that my meds are just not absorbing well after being on the med for 8 years. But for some reason i feel like there is more to it but i feel like i'm really not getting heard by the docs. Its all because the main fact is that there is no cure and no doc can guarantee anything. Its just a matter of changing meds and trying to figure it out. I feel like a rat in a lab and i feel so terribly up set. Why so upset now? when i have had it since i was 16.... well my meds always took and there was never an issue. When i ever had seizure it was usually do to partying to much (alcohol) so that has stopped and i no longer do that. I started a lot research since this all happened thats how i got introduced to something like this and have realized that alot of epileptics experience this and wonder how they live there life when they really don't know if today they are going to wake up and realize that they had a seizure. That scares the **** out me (excuse the language) but that is the truth. I feel like i will never get past this and live happily if i have to live in fear everyday and every moment. How does one do this?
In the last past week i have had seizures at work. One grad mual and the other tonic/clonic seizure. It causes so much fear! I am also a mother of a 22 month year old and not knowing whats going on puts great fear in my heart for my daughter. And having these unexpected seizures just puts a big hold in my life and i have to start living differently...or do i? I am so lost and confused and i feel so alone. any advice will help i just don't know what to do anymore. Or you can email me at Jennifer.koepp@yahoo.com to discuss things back and forth there as well. Like i said i'm new at this so hopefully i can find my way back to this site to read your advice and comments. Thanks for your time. And if there is any way i can help you just say it and i will do what i can.