Is there anyone else with MCS ?

[snapdragon]

Is there anyone else here who has MCS ? I have just found this part of the site today and would like to meet others who have MCS ,this is a large site and there must be more than me :confused: ,. I also have had Brain Anuresym surgery , Fibro, IBS CFS and possiable MS? but the MCS has been harder to deal with than all the rest :rolleyes: . Hope to meet others ,Snap :)

[Nanna B]

Hi Snap,

I guess I do belong here, too. I just got my report back on Friday seems as though I am allergic/sensitive to: Benzene, Brilliant Black, Fluoride, Orris Root, Sodium Sulfite, Chlorine and a whole host of molds and food additives. I also am allergic/sensitive to 70 of the 120 foods that they tested me for!

Benzene, chlorine, and fluoride are in our city water, so my husband went out and got us a whole house water filter, so I can at least take a "clean" shower.

The food additive, sodium sulfite, is in just about everything I eat.

I like my toothpaste, but tried the natural Burt's Bees toothpaste. Oh, gag! I can't do it.

I didn't know getting healthy was going to be so difficult. I have a new attitude about the foods I eat. I no longer want to eat those things that are making me feel this way! Right now I am dealing with Fibro, so I am very hopeful this change will help to make me feel better.

Have a nice day!
Nancy

[jonno6766]

Fragrance of any type exacerbates my pain symptoms of fibromyalgia.

[diaba]

Hi Snap, I also have MCS and MS. I am sensitive to most chemicals, and can't even tolerate the medication that's suppossed to slow the MS down.

The MCS symptoms are tough to deal with. Seems hard for people without it to understand. They think I'm sensitive to smells, it's not the smell, it's the chemicals! I even had to ask my mom to wash her hair when she was at my house because the hairspray was bothering me, oh boy...

Take care, diana

[Lavandula Canadensis]

Hi everyone with MCS... I just joined BT a few days ago... I find that
MCS is the most important challenge I have... more important that all the other ones all toghether, really ! I'll be glad to participate in further conversations and keep this forum active should anyone show up with an interest... Hope to hear from you soon! :)

[Zonulin]

I just have to post due to some recent findings I've been exposed to, plus the fact that I know someone with Multiple System Atrophy, yet another neurological illness (although more deadly than most). Two weeks ago I attended a lecture by Dr. William Walsh (PhD in Chemistry) of the Pfeiffer Clinic in Illinois re nutrient therapy and mental illness...600,000 lab tests later, the clinic has found (nutshell version) that mental illness is caused by some type of environmental insult and an individual's inability to dispense with/dispose of the toxin(s). Thousands of times they found similar clues: too much Copper; too little Zinc, not enough metallothionein to rid the body of toxins, not enough ceruloplasmin to rid the body of excess Copper, etc. Neurological illnesses, autoimmune illnesses, gut issues, mental health issues - it all seems to boil down to those two factors: an environmental insult and an inability to deal with toxins once they enter the body.
Anyone reading this who has run the gamut of lab tests with no results might try requesting (to start) a serum Copper test and a plasma Zinc test from their doctor. That would be a START in trying to figure out where you can go from here...

Karen