Immo
01-10-2009, 03:44 PM
It is now the 11th of January here. It's 6:20 am. I am very scared. I live alone and my TN this year is getting worse and worse on a daily basis.
I spent the turn of the New Year in the ED. Two days later I was back again.
Since then I've had attacks nearly daily, and have lost count of how many times this monster has attacked me.
Nine out of the past 11 days, I'm getting very bad attacks. They're lasting several hours at a time.
The ED gave me an anti-inflammatory that "worked" it took all the pain away, but after it wore off, the pain crept back in again.
The ED told me this "Toradol" wasn't available outside the hospital. My GP has since provided a script for both the tablets and ampoules. In the last 30 hours, I've had to take 6 of the 10mg oral tablets. Along with 100mg Tegretol, 200mg Tegretol XR & a 0.5 Xanax every 4.5 hours. The relief may last 2 hours, but then it comes back with intensifying pain.
I don't know what to do with the ampoules. They're encased in solid glass, I don't have any needles and even if I did, I cannot for the life of me, imagine sticking a needle in myself, in my upper arm.. So they sit in the fridge..
If I phone the paramedics, they won't just use my inj, they still have to take me to hospital.
I'm scared because it's never been this bad before. I feel like the attacks now will not go away, the are much more painful than ever before and ..
Yesterday, the pain attacks came and went to way past double even triple my bearable levels and when I took my meds, delayed reactions as usual from them, but the attacks were back within 2 hours, giving me only a half hour of relief here and there. Relief as in, the pain would drop back below a 10. Maybe to 8/10.
I knew last night would be bad - it was. I managed to doze off by 2 am and was woken at 4:05 am. This time, BOTH sides of my face were in tortuous agony. I took the pills and by 5:30 am the pain went back to a 2. I still couldn't sleep. It's 6:35 am now. The pain is returning. It's a 10/10 now and climbing!!!
It has still returned on both sides of my face. This should be impossible - everyone (medically) and striking back, say this is not possible, it's only 1 side at a time.
Putting up with one side is bad enough. My face is in that much pain now, my neck glands have swollen up in response to pain in my face, while swollen they are painful. This serves only to make the pain in my face twice as bad..
I am now feeling pain in not only my face, but my neck & breastbone, so I am even more petrified now that something else is happening to me. I cannot touch even briefly, any part of my face! That spikes the pain level. Please help me!
I don't know what to do. Should I phone the paramedics again??
Thanks for reading ~ Kerry
I spent the turn of the New Year in the ED. Two days later I was back again.
Since then I've had attacks nearly daily, and have lost count of how many times this monster has attacked me.
Nine out of the past 11 days, I'm getting very bad attacks. They're lasting several hours at a time.
The ED gave me an anti-inflammatory that "worked" it took all the pain away, but after it wore off, the pain crept back in again.
The ED told me this "Toradol" wasn't available outside the hospital. My GP has since provided a script for both the tablets and ampoules. In the last 30 hours, I've had to take 6 of the 10mg oral tablets. Along with 100mg Tegretol, 200mg Tegretol XR & a 0.5 Xanax every 4.5 hours. The relief may last 2 hours, but then it comes back with intensifying pain.
I don't know what to do with the ampoules. They're encased in solid glass, I don't have any needles and even if I did, I cannot for the life of me, imagine sticking a needle in myself, in my upper arm.. So they sit in the fridge..
If I phone the paramedics, they won't just use my inj, they still have to take me to hospital.
I'm scared because it's never been this bad before. I feel like the attacks now will not go away, the are much more painful than ever before and ..
Yesterday, the pain attacks came and went to way past double even triple my bearable levels and when I took my meds, delayed reactions as usual from them, but the attacks were back within 2 hours, giving me only a half hour of relief here and there. Relief as in, the pain would drop back below a 10. Maybe to 8/10.
I knew last night would be bad - it was. I managed to doze off by 2 am and was woken at 4:05 am. This time, BOTH sides of my face were in tortuous agony. I took the pills and by 5:30 am the pain went back to a 2. I still couldn't sleep. It's 6:35 am now. The pain is returning. It's a 10/10 now and climbing!!!
It has still returned on both sides of my face. This should be impossible - everyone (medically) and striking back, say this is not possible, it's only 1 side at a time.
Putting up with one side is bad enough. My face is in that much pain now, my neck glands have swollen up in response to pain in my face, while swollen they are painful. This serves only to make the pain in my face twice as bad..
I am now feeling pain in not only my face, but my neck & breastbone, so I am even more petrified now that something else is happening to me. I cannot touch even briefly, any part of my face! That spikes the pain level. Please help me!
I don't know what to do. Should I phone the paramedics again??
Thanks for reading ~ Kerry