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View Full Version : Sah Avm &stroke Right Side Brain


monica06
01-05-2009, 06:58 PM
Hi my name is Monica I live in Missouri AUg11 of 06 (36yrs old mom of 4)I was standing in my kitchen I had a weird feeling come over my head so weird I turned to tell my hubby sitting at the counter talking to 2 neighbors and when i turned i realized i couldnt see him it was blurry and i started to fall forward to the floor the neighbor caught me my hubby grabbed me held me up i told him i felt like puking then my head started to hurt went to the bathroom couldnt see myself in the mirror thinking wow this is weird hubby helped me laydown (layed on my right side said that saved me the blood stayed on that side instead of spreading worse)and i kept a bag of frozen veggies on my head the rest of the night the headache got worse the next afternoon crying i begged to go to the hospital thinking this must be the migraines people talk about...they did a ct scan I didnt rem it and the dr came back asked if I had been hit in the head turned to hubby joking did u hit me lol nooooooooo then he asked if i had brain tumors nooooooooo why??? well u have a brain bleed ur are getting sent by ambulance to st lukes in kansas city by ambulance WHAT!!!! I said cant you just give me a shot or something so i can go homeand sleep it off????that was a BIG NO from him....I was in ICU 1week sent home said too much blood clot they sent me home (get my papers in order)there was too much blood to operate /to do surgery at a later date which started out for the end of sept then moved to the 15th then the 5th (I asked then can we chane it so i dont die on my exs bday it would make his day please move it )then finally aug 29th went in on the 28th they did another angio this time it burned on left side of my head not right the side that was where the bleed was...the angio dr said i was fine its a miricle yourrgoing home!!!arent u happy WHAT???how can avm and bleed just dissapper I told him yes I believe in GOD and miricles but if you wrong and i die hope they sue you i still feel like i have a headband on my head soo tight it hurts in recovery the hunted down my neurosurgen in az the had already cancelled my room for the night before surgery he said no keeep her there well do exploratory brain surgery in the morning at 11 am went in for surgery told hubby and family that if they find nothing theyll be in and out in an hour ..WELLL>>>as soon as the poped my skull my brain was oozing out had major swelling and I had not 1 but 2 bleeds took 5 hours...they said i would have died with in a week if i had went home!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!wel l my eyesight suxs now i'm 50% in both eyes on left side cause i had a stroke which messes with depth preception also memory is swiss cheese here 5 bottles of pills take them on timeLOL I couldnt keep track of my meds for crap I would get the bottel out talk to one of the kids could rem if i took it already or not then id be too scared to take it so id wait hope id rem next time...fell oct 07 down the 3 steps to my house concrete and shattered my my good right leg since left side is weakfrom the stroke at this point i was severly depressed stuck in the house again now with a cast couldnt handel stupid crutches so i had a wheelchair and a walker...when most of your clothes are pjs and such you need to get out more anyways I have constant headaches begg for meds need to find a dr that understands but i cant drive and i live wayyyyyyyyyy out in the country 1hr and half from kc one neuro said well you need to move to the city so u have care uhhhhhh cant its my hubbys fam farm and with 4 kids its paycheck to paycheck...still fight for disability got a letter yesterday my hearing is the 20th in columbia 3 hrs away and hubbys laid off went to the lawyer that supposed to be help his sec was gone on vacation he pulled my file it had 2 pages in it thats it all my records and he had nothing!!!!!!!!!!!!!!!!siad i need to go get the records..yeah ok no money to even go to the damn dr now i have to look and try to find what i have cant go to neuro cause we owe st lukes $3,000...i told the well you got over 200,000 i wont have any money and i cant work ...thats my story sorry if its confusing (in family research i was contacted by a cousin said her dad died brain bleed and other fam members alll on my dads side i worry when my kids get bad headaches