Hi from Baton Rouge

[Dixie_Amazon]

Hi, my name is Dennise. I have been diagnosed with Fibro and am undergoing testing for possible MS.

[LIZARD]

Hey, Dennise. :)

Welcome to BT! :D Make sure to get an MRI of your head and neck, too. Chiari Malformation is known for mimicking MS.

http://www.ninds.nih.gov/disorders/chiari/detail_chiari.htm


LIZARD :)

[Dixie_Amazon]

Thanks for the welcome Liz.

I have had a spinal and a cranial MRI. Wednesday I go back for another cranial to compare to the one I had in June. My neuro really thinks it is MS but doesn't feel like she has enough evidence to diagnosis it. I have had a nerve study too that came back normal except for carpal tunnel syndrome in both hand, which I already knew. So far nothing to explain my somewhat numb feet, fainting or intermittent burning pins and needles.

Getting diagnosed is so much fun! :rolleyes:

[annelb]

I hope, in your search for a diagnosis, your doctor has checked your vitamin D and B12 levels and these are not just "normal", but optimal.

Another possibility is celiac disease or non-celiac gluten sensitivity. These can cause neurological problems that can mimic MS. You can read more about this in The Gluten File http://jccglutenfree.googlepages.com/ There is a Gluten Sensitivity/Celiac Disease forum here on Braintalk.

I have small fiber peripheral neuropathy - burning/painful/numb feet. I experienced a remarkable improvement in symptoms after I started a gluten free diet 5 years ago.

Anne

[Dixie_Amazon]

My Endo (I have metabolic syndrome) is super and checked my vitamin D and it was way low. I took a really large dose once a week for a few months and now I take 2000 iu a day. I am having new blood work done in January to recheck it.

I get burning pins and needles intermittently in patches from the neck down. What really alarmed me is that I starting have them all over from the neck down, lasting anywhere from 15 minutes to 2 hours. Episodes are usually weeks apart.