artycarrie
12-09-2008, 12:28 AM
what can you do to make it eaiser to identify what symptom is because of what condition?
i have hypermobily syndrome which causes chronc pain and ME, but then meds for my depressin cause fatigue. and when i walk my legs stop working but i that caus eof the undiagnosed neuro stuff or because of the hypermobilty syndrome and what its doing to my joints..argggg!
when people ask me how i am today and i say breifly how im feeling they ask 'is that becaue of the hypermobility' most the time i jsut say yes because i just dont know.
but what do you say to people when your symptoms could be down to a number of conditions without sounding like a hypochondriac?
also what can you do when two conditions clash in terms of coping?
im going blind but im also loosing ability to walk. its pretty tough using a walking stick and a white cane together but if i move to using a wheelchair more often it will be impossible. also if i get a guide dog (got an assemsemtn today) i wont be able to use a wheelchair and dog together (not allowed in uk)
im 28 and not ready to become totoally reliant on others topush me around when the are avaible. so what do i do?
im hoping theres someon else wih naff eyes and legs who can offer some suggestions.
i have hypermobily syndrome which causes chronc pain and ME, but then meds for my depressin cause fatigue. and when i walk my legs stop working but i that caus eof the undiagnosed neuro stuff or because of the hypermobilty syndrome and what its doing to my joints..argggg!
when people ask me how i am today and i say breifly how im feeling they ask 'is that becaue of the hypermobility' most the time i jsut say yes because i just dont know.
but what do you say to people when your symptoms could be down to a number of conditions without sounding like a hypochondriac?
also what can you do when two conditions clash in terms of coping?
im going blind but im also loosing ability to walk. its pretty tough using a walking stick and a white cane together but if i move to using a wheelchair more often it will be impossible. also if i get a guide dog (got an assemsemtn today) i wont be able to use a wheelchair and dog together (not allowed in uk)
im 28 and not ready to become totoally reliant on others topush me around when the are avaible. so what do i do?
im hoping theres someon else wih naff eyes and legs who can offer some suggestions.