Emily1
11-12-2006, 03:10 PM
Hi,
Well I suppose Ill try to kick off this thread.
Im 31, have had endo since approx age 20. I didnt find out what it was until I was 29 and a doctor finally did surgery on me. Up until then it had been misdiagnosed as ovarian cysts and I was told there was nothing to be done....
I had been put on depo provera at age 17 after I had to have surgery for a ruptured ovarian cyst. However before that I had never had any symptoms of endo and after that it began while I was on the hormones. At about age 21 I wanted to stop the depo provera so I did although I must say it was difficult.
At age 22 I was so desperate with this supposed ovarian cyst pain that I went to a natural doctor who gave me homeopathy. When I asked when I would need another dose she said it could be 5-6 years and to return when the symptoms came back. I laughed at her literally as I walked out. yea right like a couple little pellets was going to fix what I had been suffering, to an extent I had asked doctors to remove my right ovary.
I was fine for 7 years to my surprise, the pain stopped and I had no further problems with it. Until I was 29 it hit me with a vengence. And by this point it wasnt just the same old bad "ovarian cyst rupture" pain it was nearly constant. After a year I happened into a good doctors office who quickly did surgery and found not only endo but also adhesions which he removed.
I have refused hormones ever since but still have considerable problems with the endo. Having the adhesions removed helped a lot and that relief continues so that I am not in constant pain. Right now I have to be careful around my periods to not tear something and start bleeding internally. But if I do which I do tend to do, I have morphine sublingual to give me some relief. Because I am poor I can not manage to get another surgery. I will not go on hormones because it didnt stop the endo before and in fact I didnt even have endo symptoms until after I was on the hormones to supress ovarian cysts!
Whats helped me with the endo the most is surgery and what I have recently done again is homeopathy. Of course homeopathy can be a bit hit or miss but for whatever reason this doctor sure did a good job on me. I went back to her 2 months ago and had another dose done. I have made it through !two periods! now quite well. Once again I am surprised and quite happy. I havent made it through two periods without a severe episode in over 2 years.
I hope to see this forum get active :).
Well I suppose Ill try to kick off this thread.
Im 31, have had endo since approx age 20. I didnt find out what it was until I was 29 and a doctor finally did surgery on me. Up until then it had been misdiagnosed as ovarian cysts and I was told there was nothing to be done....
I had been put on depo provera at age 17 after I had to have surgery for a ruptured ovarian cyst. However before that I had never had any symptoms of endo and after that it began while I was on the hormones. At about age 21 I wanted to stop the depo provera so I did although I must say it was difficult.
At age 22 I was so desperate with this supposed ovarian cyst pain that I went to a natural doctor who gave me homeopathy. When I asked when I would need another dose she said it could be 5-6 years and to return when the symptoms came back. I laughed at her literally as I walked out. yea right like a couple little pellets was going to fix what I had been suffering, to an extent I had asked doctors to remove my right ovary.
I was fine for 7 years to my surprise, the pain stopped and I had no further problems with it. Until I was 29 it hit me with a vengence. And by this point it wasnt just the same old bad "ovarian cyst rupture" pain it was nearly constant. After a year I happened into a good doctors office who quickly did surgery and found not only endo but also adhesions which he removed.
I have refused hormones ever since but still have considerable problems with the endo. Having the adhesions removed helped a lot and that relief continues so that I am not in constant pain. Right now I have to be careful around my periods to not tear something and start bleeding internally. But if I do which I do tend to do, I have morphine sublingual to give me some relief. Because I am poor I can not manage to get another surgery. I will not go on hormones because it didnt stop the endo before and in fact I didnt even have endo symptoms until after I was on the hormones to supress ovarian cysts!
Whats helped me with the endo the most is surgery and what I have recently done again is homeopathy. Of course homeopathy can be a bit hit or miss but for whatever reason this doctor sure did a good job on me. I went back to her 2 months ago and had another dose done. I have made it through !two periods! now quite well. Once again I am surprised and quite happy. I havent made it through two periods without a severe episode in over 2 years.
I hope to see this forum get active :).