View Full Version : Am I being open minded, or foolish...
milivica
11-28-2008, 12:28 AM
cause I'm ready to try this for my daughter...she's waited so long. What if it actually works?
The only hole I can't answer, is if this is for real, why can't you just hold a book more to your left, wouldn't that 'fix' the physics problem he speaks of?
http://www.readfluent.com/?trigger=news
Seriously...what if it's this simple? If not, I can't say I didn't at least try, I'm out 19 bucks for shipping and she continues making progress (albeit gradual) with the tutoring.
Am I nuts for thinking this could be real? I feel I'm being foolish, yet believe it could be true since it's coming from a parent.
The Pogue
11-28-2008, 10:45 AM
2 words: utter crap
milivica
11-28-2008, 12:59 PM
Did you watch all the news shows on it? It has worked for some dyslexics (not all).
Hmm. Utter crap. Well ok then, one vote for UC.
The Pogue
11-28-2008, 06:18 PM
diagnosed by an occupational therapist? That unethical therapist needs their license pulled NOW! Dyslexia is not a visual disorder, period.
Remember all the media attention the "tinted overlay cure" got during the 80's? The emperor was naked there, and he is again now. Dyslexia is a disorder of the phonemic system, and must be addressed that way.
Her son never had dyslexia.
milivica
11-30-2008, 08:15 PM
I hear ya, I do. And I totally get that it's a language problem, and that if a person cannot hear individual phonemes, glasses cannot possibly correct that. Got it. And until you can hear individual phonemes (for example, the word bike has 3 which are 'buh' 'i' kuh') you cannot match the symbol or letter, to the phoneme. And, even if the glasses did help for some dyslexic kids, let's say they had dyslexia plus some still unidentified visual problem - that still doesn't explain why simply holding the book slightly more to your left wouldn't then recenter and realign where the light is coming into that eye just as the glasses claim to, or why people with only one eye either by birth defect or loss of an eye does not then become dyslexic since no right eye at all can receive light and read.
I get the far fetchedness of it. But, it'll kill me not to try, esp with a money back guarantee (less s&h) I want to call since there is a number, and ask these questions. At least now I can 'feel' or 'sense' over the phone, if the person is full of it or not. Because a dad created this, and because I know pretty much no one gets it that RDI cures autism, I'm kind of wondering if by chance this could be the real deal just like RDI is for curing autism (despite no one flocking to it, which I'm still stunned about).
OH, off topic, speaking of autism, I'm the guest speaker at a conference for autism, cool huh! I will be speaking not only as a person on the spectrum, but as a parent of a child on the spectrum. It will be a great experience. Dh said I should have something prepared speech wise, I don't feel the need really, I'll go by the topic and hand when I get up there, by questions others have asked, and misinformation that kills parents to hear like that so called window of opportunity that expires...not. Anyhow Pogue, having met me, do you really think I'll run out of things to say (hee hee, don't answer that, agreeing means you're calling me a blabbermouth - no one likes that much honesty).
Speaking of honesty I gotta tell ya, I must have giggled on and off for days over your 'utter crap' comment. OMG that's good. I'm a sucker for communication that cannot possibly be misunderstood.
Kristen (ColeysMom)
12-01-2008, 10:37 AM
Mili, I have no way to know whether this works or not.
You could say that it works when dyslexia is not the real problem, as in a misdiagnosis, or when there is something secondary that compromises it...but then that begs the question, if these kids (that it worked for) were misdiagnosed, whose to say Carmen hasn't been too...
right?
So I hear that you want to try it...as for figuring out whether it seems ligit or not...there's generally a good reason why it's easy for people to get sucked into a 'scam'... these people are good at fooling others out of their money.
Let's assume for a minute that Pogue is right, it's U/C (he he)...the first thing you need to wonder is whether you will actually recieve anything for your money...assuming that you do, and it doesn't work (because remember it's U/C), then you gotta look at the fact that this is an internet sale, and there is likely no way for you to actually get your money back.
So, I think if you want to know one way or another, if this is U/C, or going back to a less pessemistic view, that it may work IF Carmen has some undiagnosed (or inorrectly diagnosed) issue that this works for...or the other option, Carmen is correctly & fully diagnosed and this just doesn't work for real dyslexia...well then I think you need to say one way or another that answering this question is worth full price plus s & h.
Ok, so money issues resolved...
Back to whether it's worth the try...I'd do a couple tests. Change the lighting, move the book, cover an eye...whatever...ask Carmen if there are times that it's easier for her than others...see if you can get a little incling from her as to whether this thing might make some sense (for her).
Aren't there other things that are a bit more 'fullproof' for dyslexia? Why are you searching the net?
milivica
12-02-2008, 11:17 PM
I think the only 'fullproof' thing for dyslexia is the child gaining phonemic awareness and making sure the occipto-temporal region of the brain is being used for reading by doing paired reading.
Oddly, I wasn't searching the net for what to do for dyslexia, cause I feel I've got a great handle on it due to this book that is fantastic that I posted...I think MaryEv got it too. But I was searching YouTube for famous dyslexics, so I could show Carmen - and when I did show her she hugged me tight and shrieked, "I'm soooo glad I have dyslexia mommy" (and I though okay, don't get carried away, hee hee).
Anyhow, it was during that search I saw all the different news stories about a vet who created these prism glasses over a period of trial and error for 8 years for his dyslexic son, some things he said resonated with me as the parent of an autistic child. So, he was more the selling point to me rather than the product you could say. I do believe I'd get my money back despite it being an internet sale due to knowing the state and town he lives and works in from the news coverage. Otherwise, not sure I'd try it.
And you said 'U/C'...love it, I think we've officially got some new letters around here. For example: BTW, the IEP we had ASAP today for EC was U/C, I mean WTF...how can give a PDD-NOS to a clear ASD dx.
milivica
12-02-2008, 11:19 PM
Her son never had dyslexia.
Ah, I never thought of that actually.
Keggy
12-04-2008, 08:57 AM
If you want to try it (and its not expensive) use a credit card and buy it. You have buyer protection with credit cards. heck, use paypal with a credit card, can't ask for better protection than that.
There are so many mysteries in the world for us to ignore simple things like this. Sometimes the simple thing that makes no sense changes everything. As long as it isn't invasive, expensive, time consuming... etc. Its sounds like you have to read something, do something easy? Right? I say GFT! (go for it) you will always be thinking ISH (I should have) if you don't.
Kristen (ColeysMom)
12-04-2008, 09:49 AM
Isn't it usually the case that simple things are the answer?
Our lives have gotten so complex that I think people have forgotten how to 'see' the obvious...not saying that this is an obviuos answer, I wouldn't know...but heck it probably makes as much sense to try this as most other things that haven't been 'proven'...
Let us know what you do & how it goes...
GOOD LUCK with your decision...
milivica
12-05-2008, 12:43 AM
As long as I'm sure I won't be out the money if they don't work (other than $19 for s&h) I will have to try it, or like Keg said I'll wonder what if I'd tried. I really don't believe they'll work, but I'll try. And speaking of Keg...I remember you tried something for your eyes, something so you wouldn't need glasses I think, eye exercises or something...what was that about, and if you get a chance check out the link I posted (only if you're curious).
Thanks everyone! Guess I'm going for 'U/C' with a money back guarantee, hee hee.
peglem
12-05-2008, 12:55 AM
Anything that works costs way more maoney than that! ;) Like Pfieffer! Oh, wait....
milivica
12-05-2008, 11:35 PM
Ouch!!!!
Yeah, Pfeiffer sure was a lot of wasted money for us, testing this, testing that, then saying none of the tests are really for 100% sure anyhow. I forget but think he was taking 20 pills a day of all different kinds, and honest at the time that seemed sane to me. God those were hard days and times.
Though if Vince had some co-occuring that place might have helped us, some parents swore by it.
The ABA our state paid for was upwards of 100,000/yr and it didn't work, the glasses are under $100, hmmm, maybe they will work???
Well, when/if I get them, I'll for sure let you guys know. If it's as simple as putting them on and getting instant results, and they do not work for Carmen, I'll ask her special reading class if any kids want to try them just for the heck of it (with parent permission).....if they didn't work for Carmen it would still be way darn cool if they worked for another kid.
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