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missy
11-12-2006, 12:13 AM
hi iam new here. i have chiari and syringomyelia and spondolis i had my decompression surgery in 2000. i am 45 and have 3 children 12,21,and 25 my 21 year old is in the navy and i haven't seen him since april of this year , i have a 7inch incission the back of my head and neck ,my surgery is c5-c6 but when i found out by mri i had syringomyelia it went from c2 through t1 what happen did my chiari grow ?or something eles happen? i am up tonight i can't sleep at night to good. plus my husband just got off the computer ,looking for friends with chiari whose going through the same thing .sometimes i have to take medication ,to make me sleep and i be sleep all day and up at night . iam on a75 mgs duragisics patch and take norco for break through pain along with other medication .can any one answer my question:confused:

emb1682
11-12-2006, 12:50 AM
missy-
i wish i could answer your questions, but i cant. however, i just wanted to say hello and im sorry you cant sleep at night and are having to deal with so much pain. i know how that goes!!! im so tired, yet cant sleep due to various things, so i understand! i have hydrocephalus from spina bifida and arnold chiari malformation II. if i find any answers for you, ill surely let ya know. hang in there!

Lara
11-12-2006, 06:25 AM
Hi missy and emb,
Nice to meet you here.
missy, I'm sorry that I can't answer your questions personally, but I did just want to let you know about a few other forums here where you might be able to find more information and support.

Syringomyelia Forum (http://brain.hastypastry.net/forums/forumdisplay.php?f=258)

Arnold Chiari Malformation Forum (http://brain.hastypastry.net/forums/forumdisplay.php?f=92)

Spinal Disorders Forum (http://brain.hastypastry.net/forums/forumdisplay.php?f=251)

take care,
Lara

Boopers
11-12-2006, 06:37 PM
Hi Missy,

I can't help but wanted to send you a BIG WELCOME!! :D

Hope you can find what you are looking for!!

Take care,
Linda :)