Multiple diagnoses

[emb1682]

Hi everyone-
Some of you may notice i have posted in various threads, but then found this one, which seems to really "sum it up." Unfortunately, my many doctors are unable to differentiate all of my symptoms/problems because they all sort of feed into each other, and its hard that no one understands how draining chronic pain/fatigue can be day after day. Not to complain or anything, but just to give people an idea of what i have, maybe i can find someone to talk to that will understand my frustrations, and i love to talk to new people. i have spina bifida, hydrocephalus, arnold chiari malformation II, narcolepsy, restless leg syndrome, depression, PTSD, and all the fun stuff that goes along with each one of those diagnoses.

[ainee]

G'day emb1682,
Just to let you know that you're not alone, because many people seem to have many symptoms - sometimes for years, without a diagnosis.
The symptoms I had, seem to cross over many different illnesses and conditions. I had many blood and other tests, x-rays, MRI's etc., nothing could be found to cause my symptoms.
I did have fused neck vertabra and a high reading of Cadmium - but my doctors dismissed these as the cause of my symptoms.
I've posted my story on many threads, including Success Stories in BT. I haven't had any luck in finding a medical person to follow up with my research - it's a shame, because I believe what I've discovered, through experimentation, research and my survival, the treatment I took could help many ill people to have better health.
I'm not claiming the easy, cheap treatment to be a cure for anything, but if it gave better health to just one person, then I will think that all my suffering was worthwhile.
Have a nice day.
ainee.

[smhiles]

Hi emb1682 and ainee,
I hope you are doing better. You are not alone. I have chronic multiple diseases, and they run together to where I sometimes can't tell the Doc which is causing the pain. I take a slew of meds to where I can't tell which one is working or is causing certain side effects. Sometimes life is a blur, but I know I must see life clearly for my family. It does get frustrating sometimes, sometimes depressing, but I have to remind myself that "this too shall pass" and outlast the disease, because I am a survivor, we all are. Hang in there.

[ainee]

G'day Emb and smhiles,
You might be interested in the information which I've posted recently on Child Neurology in a thread - Low circulation and wounds - started by Trishmomof4 - and also on Complementary and Alternative Medicines thread - Salt lamps etc. - started by Buttons2.
I'm not claiming the treatment I've been using for over 5 years is a cure for anything, but believe from all my experimentation, research etc. - and my better health, that it could give better health to anyone, regardless of illness, condition, diagnosis or cause. It gives better blood and oxygen circulation, which has suppressed and eventually reversed most of my symptoms. Several people with all sorts of illnesses and conditions, said they had better health while taking what I suggested.
One man with Alzheimer's said he felt better after a couple of weeks. He also had cramps, clenched up hands at times, numbness, pins and needles etc.
A woman also said it helped her hands that clenched up at times - mine also.
A women tried it for trembling in her legs. She also said it shifted a haemorrhiod - I had success with that one as well. I'd had one for 20 years - it shifted in a few weeks after getting the dose right.
A man with a lung condition, found the treatment I suggested helped him breath easier - he only took it when he was crook - even though I suggested he take it all the time - if he had, he may not have been so ill as often. I've had asthma for the past couple of years, brought on by inflamation in my lungs - although I have to use a puffer, I believe the treatment I take each day, helps because it increases the oxygen content and circulation 24/7 to keep other symptoms under control.
A man with MD said his legs felt better after a week or so - he also said he was a diabetic - and his levels were better. I don't know if any of these people still take the treatment - I've lost touch with them. My research found that many illnesses and conditions lack oxygen in the body. Diabetes is one and anaemia - which is the first sign of many illnesses - also has lack of oxygen in the blood. I believe this treatment could also be used to prevent many from getting ill in the first place, and to give many better health. I've heard that there is 40% less oxygen in the atmosphere now, to what there was 100 years ago - so by using this simple MOT - Mini Oxygen Treatment - every day, it increases the oxygen content in the body, to give better health.
ainee.

[smhiles]

thanks ainee for the info, my dh bought some type of air/water machine for the house, i feel so much better, breathing better and energy inside.

[Mr.Doe]

There are a group of researchers and doctors that draw a connection between chronic fatigue and fibromyalgia to neurotoxic exposure. Such toxins include mold, lyme disease, lead, mercury from dental amalgum, toxic fish exposure from eating larger reef fish, man made chemicals like lacquer thinner and gasoline etc. and RX drugs and/or mixture of drugs (especially antio-depressant meds) and mycotoxins to name a few. Chronic infection is also a suspect. The idea is that these toxins can overwhelm the bodies of certain people that are over exposed or unable to metabolize the poisons and thus they accumulate and circulate causing a domino effect of bodily systems failures resulting in a multitude of odd, seemingly unrelated, symptoms that defy diagnosis. Typical doctors try to separate the symptoms and go after one or two which goes nowhere if they don't see the whole picture and realize everything has a common cause or source. People just don't develop 30 different unrelated symptoms on the same day! Google Holtorf Medical Group in Torrence, CA for an overview of these ideas, also www.chronicneurotoxins.com and also the work of Garth Nicholson PHd. I have been fighting the same battle for 11 years, numerous rides in the MRI machine, countless blood and urine tests, probes, radioscans, ER visits and a multitude of incompetent doctors in a hurry to empty the waiting room and hit the links. No help there. The sites above are some of the best theories I have found in 2 years research on my own. They may sound like a stretch and you may not be aware of any exposure to anything, but keep an open mind and read the material-especially Holtorf-it might just help you. Good luck, Mr. Doe

Hi everyone-
Some of you may notice i have posted in various threads, but then found this one, which seems to really "sum it up." Unfortunately, my many doctors are unable to differentiate all of my symptoms/problems because they all sort of feed into each other, and its hard that no one understands how draining chronic pain/fatigue can be day after day. Not to complain or anything, but just to give people an idea of what i have, maybe i can find someone to talk to that will understand my frustrations, and i love to talk to new people. i have spina bifida, hydrocephalus, arnold chiari malformation II, narcolepsy, restless leg syndrome, depression, PTSD, and all the fun stuff that goes along with each one of those diagnoses.