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peglem
11-06-2006, 09:11 PM
At home only- not anywhere else- Allie constantly strips naked. My real concern about this is down the road (hopefully far down the road) when she starts her period. I'm crazy from constantly getting her clothes back on. While she is expert at removing them, she needs assistance to get dressed, and anyway, she's not too motivated to learn to dress independently. I think she's just more comfortable naked. So, when she's home, I spend @ 80% of my time helping her put her clothes back on. I'm afraid that my constantly doing this reinforces it. I've tried making her do it herself-poor results. Suggestions? Anybody else had to deal with this?

Pamster
11-06-2006, 09:48 PM
Hi peglem, I don't know how old Allie is but Jackie at ten STILL runs around naked when he can at home and I get tired of helping dress him too like four times a morning before school because he's having a fit of reb ellion in the morning. One thing the behavior analyst told me about something simliar that he does is to not draw any attention to it so I don't know if it would apply here or not, we see him Weds. so I will ask him what straegies might work since I want him to start being a little more mindful of wearing his clothes at home.

We've been having an aide come out 3-4 times a week now for a few hours a time and he's only ONCE stripped while she was here, she was getting ready to leave and he'd gone into the bathroom to do his thing and before I knew it he was naked and wanting to come out, I told him he couldn't see the aide if he wasn't going to wear his clothes and he was still trying to get by me, and she walked out thank god..

I don't know what I will do if he ever tries to do it in front of her, so this is a good reminder that I need to talk to the behavior analyst about this myself and see what he recommends. Anyone else got any ideas besides redressing them wearing ourselves OUT with it time after time? I sure appreciate any ideas others might have with it. I hope he outgrows it, but that's because I am afraid down the line he's gonna be on his own in a group home and will NEED to wear clothes and won't want to and it will be a BIGGER problem then then it already is for us. :p

peglem
11-06-2006, 10:10 PM
Allie is 12! We've not drawn a lot of attention to it, except to re-dress. I tell her that people aren't supposed to see her privates. She gives me no grief in the morning before school, or if we are going somewhere. Its just when she's at home. She doesn't fight me about putting the clothes back on- they just come back off in about 10 minutes.

Pamster
11-06-2006, 10:30 PM
You're so lucky that she doesn't give you trouble in the AM like Jackie gives me about three times a week. Some days he's fine and only once am I required to dress him, and the kicker is he CAN do it himself it just frustrates him a bit to do it, so I don't think he's going to do it on his own anytime soon even though he can.

But that's off the point. I am sure grateful he leaves his clothes on at school and I have told him what you tell your daughter, that other people aren't supposed to see your privates. That is just the easiest way to put it IMO.

I hope someone else has some ideas to offer because I can't imagine how worrisome it must be for you to think about her menstrating and how she is going to have to wear underwear to be able to wear a pad on all the time for five to six days for that week its happening. :confused:

Has her p doc got any ideas or suggested something?

Isabelle
11-06-2006, 10:43 PM
Never with my son until he was given so much Risperdal and then Zyprexa, he lost sense of decency. Something similar happened to another parent, she is a single mother and her dd, a bit older than my son, was given Risperdal without her knowledge and from then on she couldn't keep her clothes on and her mother was telling me she never has done that before, according to her caregivers she used to do it once in a blue moon and to put on her clothes when ask.

Came a point that the mother and caregivers were concerned. She was losing a lot of weight, she was hurting herself for no apparent reason and couldn't keep her clothes on. One day she run out from the group home naked and into the streets and caregivers run after her, they tackled her and dislocated one of her collarbones. That was 10 years ago and her mother, angrily, wanted them to be responsible for the pain caused to her dd. Apparently the bone keeps on dislocating. She brought her home and is taking care of her, she is just on phentoin for her seizures.

That she was outraged to find out that she was given Risperdal w/out her consent, is putting mildly. She wanted to sue them but with what money? and lawyers couldn't care. The non-verbal autistic has no legal status here, anybody can do/say anything about to them, just the parents care.

And if the parent, usually the mother, is too vocal, their mental status is questioned.

So, if some autistics tend to take off their clothes, these drugs make them even more deshibited. My observation.

Pamster
11-06-2006, 10:58 PM
I am so thankful that risperdal didnn't do any damage we know of to my son. I know it has hurt people and it's scary that THAT is the first drug they approved to help people with autism, one that has the potential to do so much damage. I would have been outraged too if my DS was treated so callously. You should never tackle someone with autism in my opinion. There are easier ways to deal with things if you ask me.

When my son ran away from us two weeks ago, (my mom and I had taken groceries in and he ran behind the apartment bldg where we couldn't see him but knew where he was thank God) we both went around the building and she got one side while I moved into to grab him. I didnn't tackle him since you know I am an amputee it's near impossible to imagine me tackling my ten year old son and even more impossible to do since I don't believe in it.

Anyway we got him between us and told him "You can't run like that, you scared us badly, we couldn't see you and were so worried. You can't run away from adults like that Jackie, you have to listen to adults because they are only trying to help you." And man if I ever hear of an adult abusing his trust I will be so TICKED off it won't even be funny. So far the school has been really good about that trust, but I won't hesitate to do something if I find that someone crosses any lines.

We have to be good advocates for our kids since most of them have trouble talking and expressing things. One great thing that's new since using RDI is that Jackie is talking about what hurts him. Today he had a migraine and I helped him as best as I could to get over it. Gave him three motrin, took him into the bedroom and lay on the bed with him, rubbing his back while trying to soothe him verbally. He said, "My head hurts," and put his hand right overtop of half his head and it was even warmer on that side so I know he was having a migraine.

But THAT is major progress in my book, for him to tell us he is in pain is a major step forward. :)

peglem
11-06-2006, 11:04 PM
This problem has been going on since way, way before Allie was put on any medication and I'm not sure she ever developed a sense of decency. She's happy with her body, not self conscious about her nudity and frankly, I can't come up with a good solid reason for her to wear clothes- I mean like a reason that makes sense to her. Its less comfortable, she doesn't care if she gets cold, and she doesn't, apparently care if her family sees her naked. Kinda like the innocence of Adam & Eve before the forbidden fruit thing.

P-doc no help. The only suggestion I've heard is try a reward system. These do not work for Allie. She could care less about people waving a fish in her face. Yet, the fact that she keeps her clothes on at school, means there must be a reason there...Social pressure? I don't think she's ever tried to get naked there. When I've asked her teachers about it- they say it hasn't been an issue for them and I get the feeling they think its because I'm not strict enough with her.

Her siblings don't seem to mind too much either. They still have friends over and just tell them, "My sister is autistic. She runs around naked a lot."

Isabelle
11-06-2006, 11:34 PM
Long time ago there was a similar discussion and somebody suggestion's of safe clothes that are hard to take off was like wearing overalls backwards?????

Sorry, no great suggestions here.

Since home he is running around naked, but lately he has wearing clothes again, perhaps 2x a week, which is a huge improvement. Also he is 3 months and 21 days off all meds.

Long time ago I described how Thorazine changed his behaviour, he was 11 suddenly couldn't get ready for school. It worsen with Risperdal/Zyprexa and in 2000 searching online I found "Catatonia" and it fitted his new behaviour. Lorna Wing's name came up and we emailed her who sent us her not yet published article on "Catatonia and Autism" is her theory that some autistics suffer from catatonia, a neurologic disorder, and antipsychotics and other drugs with "parkisonism" as adverse effects could aggravate it and if his SIB was not getting better to give him any drug that didn't have "parkinsonism" on it. As turn out all and each has not only that but psychosis. Deshibition is part of psychosis.

DoIhaveto?
11-07-2006, 02:53 AM
This seems simple compared to the other answers, but I just keep thinking it could be a problem with the sensation of clothes on her skin. Does she do it with all clothes, or certain fabrics more than others? Maybe something like brushing could effect the behavior?

peglem
11-07-2006, 09:04 AM
It could be sensory related, but it seems all clothing is equal here. But why does she not do this at school? its the same clothing.

Jamies Mommy
11-07-2006, 12:00 PM
Jamie too prefers to be naked but only at home. Not at school or grandmas or anywhere else. When we go on vacation he will keep them on the first few days and after about the third day off they come. Thats how I know he is comfortable with the surroundings and is settling in so to speak. As far as gettting him to keep them off we have just started letting him wear a pair of cut off sweat pants around at home. He seems to keep them on a little longer and is able to put them back on when told to do so.
Sorry not much help!

DoIhaveto?
11-07-2006, 12:04 PM
:D
I suppose there could be any number of answers. Maybe she feels comfortable enough at home to do it there, safe. Maybe she's so distracted by things to do at school that she doesn't think of it. Maybe she knows it's not a thing that's allowed in otherplaces, but that you accept it at home?
I'd ask more than one professional about it and try a few different things.
My 3yo takes his off at home once in a while. He gets brushing, on a non-regular basis, though so it seems like it's not a frequent as it was before.

Mother's Heart
11-07-2006, 12:12 PM
perhaps because at school her hands are kept busy every minute while at home she has to have some less structured time (to fill :D) ? or with all the people/things in the room she is trying to process all of that and her brain doesn't have time to ahve it occur to her to remove the clothes?

who knows?
'
My son, who is now almost 14 yrs old (wow) has gradually progressed over the years just from us continually instructing him. He learned to keep the clothes on at school first, then in other public places, then in public restrooms (not to pull pants down on the way into the stall:rolleyes: ) )then outside. That took forever to keep him from running outside naked or removing clothes outside, but it finally clicked. Finally he is getting it that inside nakedness is really only appropriate in the bathroom or his bedroom alone, though he still obviously doesn't MIND being naked at home, he just has acquired a habit of being clothed. So, he still goes to use the bathroom, removes his pants then, emerges half-clothed. That's the next step. He now rarely removes his clothes at home without it being an issue of having wet clothing or going to the bathroom first (it's usually both) LEarning to remain clothed has run the same course as his coming to understand that genital stim is not acceptable in front of other people...but not at the same time. I guess we were more insistent and interrupted him more consistently on the stim issue, since other people are less forgiving of such incidences.

I guess I don't have the answer, except the usual one... patience, persistence and as much consistency as you can muster... but wanted to tell you there IS hope and each little action you take now will probably lead eventually to her conquering THIS challenge too.

habit...this word popping up in my reply was enlightening to me. I think it's a matter of establishing a habit, and that habit becoming the most comfortable thing. hmm. off to work on some habits for my child. Poor kid. When you make me think, then he has to work! :D :D

Mother's Heart
11-07-2006, 12:28 PM
on the thought of using less removeable clothing, yes, it's true that sometimes can break the pattern. Sigh, everytime I have to resolve a 'problem' by inventing an environmental restriction (locks on doors, shampoo put away, things up high, etc etc) it brings a regret up that I have to restrict his potential for independence in order to provide for safety (or sometimes rest for the rest of us). I much prefer longterm teaching instead of restrictions, but sometimes they are just necessary.

lisa6wks
11-07-2006, 05:41 PM
Peg, do you think it could be that she only associates being naked with being at home? I guess that's a blessing anyway :)

What if you told her she couldn't come out of her room when she is naked, because it is "bad manners" to be naked in front of others? Then she would have to dress herself in order to come out of her room? Or you could decide to go somewhere that she especially likes but let her know she has to be dressed to go.

Lisa

Isabelle
11-07-2006, 06:12 PM
Well, at least she does it in the safety of her home.

Yeah! I like that idea (lisa6wks), what happens if you say, "from now on, stay in your room until dress" or, "come out when dress". What will be her reaction? In my case I didn't go nowhere I could say anything, block him physically and like I was transparent.......like I didn't exist

lisa6wks
11-07-2006, 06:45 PM
It definitely depends on the child. If the child could care less, of course it won't work. I am just trying to make it "natural consequences" people don't leave their rooms if they are naked, so you need to get dressed to come out and eat or play.

Lisa

peglem
11-07-2006, 11:17 PM
Tonight, only had to put her shirt back on @ 5 times. She has left her bottoms on.:) I've been trying a modified Lisa6 suggestion. Instead of keeping her in her room, I just stop any activity she is engaged in and tell her she can't do it until her clothes are on. So like, "You have to wear clothes to watch tv." or "You have to wear clothes to play computer." or "you have to have clothes on to spin lids." (that's a whole other thread!)

We worked so hard to finally get her going potty independently, I'd hate to impede that w/ hard to remove clothing...but woulda been a good idea otherwise! Thanks for the help everyone. Even just knowing others are dealing with this issue helps.

silentmiaow
11-08-2006, 01:33 AM
Long time ago I described how Thorazine changed his behaviour, he was 11 suddenly couldn't get ready for school. It worsen with Risperdal/Zyprexa and in 2000 searching online I found "Catatonia" and it fitted his new behaviour. Lorna Wing's name came up and we emailed her who sent us her not yet published article on "Catatonia and Autism" is her theory that some autistics suffer from catatonia, a neurologic disorder, and antipsychotics and other drugs with "parkisonism" as adverse effects could aggravate it and if his SIB was not getting better to give him any drug that didn't have "parkinsonism" on it. As turn out all and each has not only that but psychosis. Deshibition is part of psychosis.

Neuroleptic drugs actually make me hallucinate.

(I'm diagnosed with autism and catatonia. I don't normally hallucinate, except when given some kind of drug, such as neuroleptics.)

Isabelle
11-08-2006, 02:05 PM
Alfamb, Danny at 11 was given Thorazine 0.25mg at bedtime, he was a good sleeper, suddenly he woke up at 1am screaming wide eyed trying to climb the wall. It took us a long time to calm him down and get him to sleep again, as non-verbal he couldn't tell us what was seeing. It makes me very angry that he was given such noxious drug and we were not told the consequences. Another day he fainted on his father's arms, then one morning his body was covered on a red rash (hives) and almost fainted on my arms.

Besides being non-verbal, he was hyperactive and a compulsive runner, some teacher thought that being drugged would make it easier for her to deal with those issues, while other teachers/aids thought that engaging him defuse any impulses.

cckids
11-11-2006, 08:30 AM
I think the behavioral modification sounds like it is helping a lot..

With our boys the cloths are a sensory issue... our kids defy socks. the minute they are in the house they are off. What helps keep shirts on (which they are boys so I don't push the subject much) is having a pressure vest or backpack with weight. or inside out to keep the seems off the skin.

Just a thought.

tgrimes
11-11-2006, 02:22 PM
... our kids defy socks.



hee hee... my oldest boy still trying to figure out how to make 'spray-on' socks. :)