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View Full Version : Newbie with intractable pain from charcot, spine, arthritis


Looking up
06-29-2008, 07:22 PM
Hi, I am new to this forum, but have had chronic intractable pain for years. In 2006 and 2007, I had 5 surgeries for arthritis related problems and then my PCP and rheumatologist said "no more surgery". I will eventually have to have joint replacements, but I will stall that off as long as possible.

My rheumatologist put me on Avinza in the end of February in addition to Oxycodone for break through pain, Motrin, Flexeril and then some meds for other conditions. The Avinza has made me feel better than I have in years and I am able to function. I am not pain free, but the pain is tolerable. My last 2 surgeries were August and November last year for my feet. Foot surgery has a very long recovery. I was in a wheelchair for the last 5 months of '07, but now I am able to walk enough to do my own grocery shopping, etc. The foot surgery was major. The orthopedic surgeon, who specializes in feet and ankles (they are rare), rebuilt my feet. I had Charcot foot, which usually leaves you crippled, but I am able to walk.
:D The surgeon rebuilt my mid-foot with screws and plate, straightened my middle toes with pins, removed a joint in my little toe, did bunion on my big toe and nerve releases at my ankle and knee. He did all the procedures on each foot at one time on one foot then the other a few months later.

Even though it has been very difficult, I would do the surgery again. It has been very successful.

It is difficult living with chronic pain. It effects every part of your life. I have been through the stages of grief for my loss of health and now am accepting of my situation most of the time.

I am glad I found you guys, because no one understands what I am going through like another pain sufferer.

Lynne

Mark N
06-29-2008, 07:47 PM
Lynne, welcome to our forum. You sound like you have a good handle on what you are dealing with every day. I am glad you have gotten through the grief phase of chronic pain and are now in the stage of accepting dealing with it every day. You are right that it impacts every aspect of our lives. I have forgotten how to thing about something without factoring my limited abilities due chronic pain.

I hope we can give you the support you need, the info you want, and the knowledge that you aren't alone with chronic pain.

Looking up
06-29-2008, 09:06 PM
I do have bad days when I resent my limits, but that is not the norm. I try to not allow myself to have a pity party. Also, I have accepted that Zoloft at the right dose is essential to dealing with chronic pain. It is so easy to get depressed because everything is an effort to do.

I try to live within my limits, not fight or resent the limits. It is better to focus on what you can do, not what you cannot do.

As you said, you have to think about everything factoring in the chronic pain. You have to plan ahead and know your limits. If I am going out at night, I know that I have to rest in the afternoon. I have to alternate activity and rest. I am not able to lift anything over 10 pounds, so I have to plan how to get help when I need it. My husband is very understanding, but I hate to be dependent on him.

Lynne

Mark N
06-29-2008, 10:57 PM
Lynne, as hard as it is for me I have learned how to ask for help. I used to be the one helping everyone else and now I have to ask for help with small task but it is the only way to go shopping. It isn't easy to ask but it is a skill we have to learn.

Feel very lucky that your husband is very understanding because our chronic pain impacts our spouses as much or more than it does us. Many can't handle it and too many CPers have their spouses leave them because without us our spouses wouldn't have to deal with these issues. I know I am thankful for my wife and how she has helped me but it has been very tough for her to deal with my disability.

Nana4&cntn
06-29-2008, 11:08 PM
Welcome Lynne, I am sorry you had to find us, but I am happy you did. There is a tremendous amount of support here and always room for more!

I also need to tailor my activities to my pain or pain to activities. You are right about needing rest prior or after activities. Never get too tired or you pay for days. I still do a lot of things I enjoy and some I don't.

Again welcome!
Kathy